FDA approves first treatment for thyroid eye di... - Thyroid UK

Thyroid UK

141,188 members166,426 posts

FDA approves first treatment for thyroid eye disease

ling profile image
ling
4 Replies

fda.gov/news-events/press-a...

Written by
ling profile image
ling
To view profiles and participate in discussions please or .
4 Replies
lola_zzz profile image
lola_zzz

Any idea whether we can get these drugs prescribed privately in the UK?

ling profile image
ling in reply tolola_zzz

lola, sorry I've no idea.

Could u try checking with your doctor?

Best wishes.

lola_zzz profile image
lola_zzz in reply toling

Just been researching prices of the drug. It’s pretty dear (unsurprisingly):

A spokesperson for the company said teprotumumab will cost $14,900 per vial, with full treatment over 6 months approximately 23 vials, and that the wholesale acquisition cost for that amount is $343,000, with an annual net realized price of $200,000 (ajmc.com/newsroom/fda-appro...

ling profile image
ling in reply tolola_zzz

Yes, not surprising especially since it's new. I imagine it'll take some time to get affordable.

What bothers me is that with something like TED which is not very common, it may not get the maximum subsidies under government subsidised healthcare which means it will ultimately remain relatively expensive : (

Not what you're looking for?

You may also like...

Thyroid eye disease

Hello everyone, I’ve been told that I may have thyroid eye disease and certainly it seems that I...
Solstice11 profile image

Thyroid Eye Disease

Hi I was diagnosed with T.E.D seven years ago but my thyroid levels were in the normal range. My...
Swan29 profile image

Thyroid Eye Disease

I am so angry and upset with this disease. I just wish that it would go away. People on the outside...
Roguebarel profile image

Thyroid eye disease??

I was wondering what I should look out for in regard to TED? Apart from the symptoms listed on...
Inafunk63 profile image

Thyroid Eye Disease

Have suffered from Graves since January 2017. Underwent TT january 2018. Have severe TED and am...
Pussikins profile image

Moderation team

See all
Buddy195 profile image
Buddy195Administrator
RedApple profile image
RedAppleAdministrator
PurpleNails profile image
PurpleNailsAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.