Regenerus DIO2 test?

[knitwitty]

To anyone out there who has done the above test.

Hi there I have purchased this test and have received the pack, however it is a bit short on instructions. It just says rub your inside cheeks against your teeth before you spit into the small collecting cup.

Do you have to leave a time between last eating/drinking before you do the test?

Also I have requested follow up counselling when the results are in but the instructions do not mention this , is that usual?

They do have my email address so would I be right in assuming they will contact me to arrange a consultation when the results are in?

Many thanks in advance. X

[Hibs1]

Hi I've just bought the test too and agree 're instructions. It says leave half an hour after food, drink, smoking before test. The rubbing teeth bit, I think that's if you are not producing saliva as it also says have a bit of sugar to make mouth water and won't affect test. I'm assuming they contact us when test has been done as it s the counsellor who gives the results. Hope that helps

[knitwitty in reply to Hibs1]

See slowdragon's reply re B complex vitamins I can't see any mention of them on the instructions but I'm going to lay off them for a week just to be sure.

[Hibs1 in reply to knitwitty]

Nothing about stopping anything in instruction leaf let. I don't take b or biotin anyway

[knitwitty in reply to Hibs1]

I think I'll err on the side of caution and not take any for a week just to be safe. Good luck with your test I hope it gives you the answers you need.

[Hibs1 in reply to knitwitty]

And you. 🙂

[Tinacros]

What’s this for? Xx

[knitwitty in reply to Tinacros]

It's to see if you have the genetic defect that might affect your ability to convert T4 to T3. X

[Tinacros in reply to knitwitty]

Do u get it from Medicheck?? I thought ualready took t3. I’m going getting mine tomorrow from pharmacy.. fingers crossed x

[knitwitty in reply to Tinacros]

Hi I do take T3 but I have had to purchase my own from Greece/Turkey.

I have bought the genetic test from Regenerus. X

[Tinacros in reply to knitwitty]

Thanks.. can u do the test even if u are taking the t3 xxx

[knitwitty in reply to Tinacros]

Yes it's a genetic test, you provide a saliva sample, it has nothing to do with the T3 you are taking, but it can identify whether you have a gene defect which may affect your ability to convert T4 (levothyroxine) into the bio available T3.

Good luck with getting your supply.

[SlowDragon Administrator]

Yes many of us have done DIO2 gene test

It takes quite a lot of spit to feel the pot. So allow about 20 mins to do test.

Results are emailed to you about a month later

Counselling is compulsory to any DNA testing. I found it helpful

I think you may need to stop any supplements that contain biotin a week before any test too (eg vitamin B complex) - check the instructions

If test positive this has helped some of us get T3 prescribed on NHS.

I tested positive- Heterozygous DIO2.

Adding 3 small doses T3 per day, alongside Levothyroxine was transformation.

I did DIO2 gene test after starting on T3. It helped get individual funding request for NHS T3. But some CCG areas are better than others

[knitwitty in reply to SlowDragon]

So glad you mentioned the B complex and the need to avoid taking it for a week before the test. I can't see it mentioned anywhere on the instructions but I'll not take it for a week just to be on the safe side.

Do they ask when they can call you when you get the results?

[SlowDragon Administrator in reply to knitwitty]

To be honest I can't remember. I had test around 2 years ago

I think it was a scheduled phone call, set up via email initially

[knitwitty in reply to SlowDragon]

Thanks, i'm sure they'll get back to me after the test.

[knitwitty]

Thanks, I was not aware you could pay for the counselling afterwards.

I was hoping to bypass the endocrinologist and/GP altogether as they have not been especially sympathetic to prescribing T3. Endo happy to monitor me if I buy my own T3 from "anywhere".

But thanks for the heads up regarding phoning them.

[knitwitty]

Ok, thanks.