So I see my neurologist

[Buckley123]

I see my neurologist yesterday

I told him about the antibodies for thyroid raised in medichecks but he wasn’t concerned because all other levels are normal

He said that it’s just another sign of my immune system misfiring

Still believes in uctd

So with out meds how can I help with the lump and mucus in my throat horsiness voice and sore tight neck all of this is making me very uncomfortable 😣 I’m on hydro for uctd but this is all I’m in the wait and see what happens list to see if it evolves into something more

Anyone heard of this he is a good neurologist

Any advise would be great xxx

[humanbean]

Still believes in uctd

What is uctd?

I’m on hydro for uctd

And what is hydro?

[Buckley123 in reply to humanbean]

Undifferentiated cognitive tissue disease x

[humanbean in reply to Buckley123]

I think you might have posted on the wrong forum. This is the Thyroid UK forum and we discuss thyroid problems.

[Buckley123 in reply to humanbean]

I have high tpo antibodies on my thyroid test x

[Hidden in reply to humanbean]

UCTD often overlaps with thyroid disorders

[Hidden in reply to humanbean]

UCTD= undifferentiated connective tissue disease - autoimmune

Hydro=Hydroxichloraquine - a disease modifying drug used for Lupus, Sjögren’s and RA

[greygoose]

Well, actually, it's not just a sign of your immune system failing, your immune system is actively destroying your thyroid. According to your results in your post two days ago, you aren't yet hypo, but some people report symptoms even at those levels when they have high antibodies.

The symptoms of Undifferentiated cognitive tissue disease are very much like under-active thyroid, so could possibly be that. But, the majority of doctors will turn themselves inside-out before they will diagnose thyroid problems. They just don't like doing it - maybe because they have no idea how to properly treat them. So, instead, they 'diagnose' all sorts of weird and wonderful diseases like fibro and ME. Undifferentiated cognitive tissue disease is a new one on me, but why not!

Don't give up on your thyroid, keep testing it. In all probability your TSH will rise and you'll be able to get diagnosed.

[Buckley123 in reply to greygoose]

Thank you grey goose

I think it will too I think they are trying to match my brain lesions with all my other other symptoms if you look on google uctd you will see what I mean

I think it’s evidence of autoimmune disorder that doesn’t meet the full criteria for one disease (yet) xx

[Buckley123 in reply to Buckley123]

Something is definitely happing In my throat I have loads of saliva build up horsey voice and constant lump in my throat x

[greygoose in reply to Buckley123]

Your thyroid is probably a little swollen, then. Have you had an ultrasound?

[Buckley123 in reply to greygoose]

No I haven’t but I am seeing a ent at the end of the month so I can ask then I may drop my neuro a email if it gets worse.

Anything else I can do ?? Xx

[greygoose in reply to Buckley123]

Have you had your nutrients tested? Vit D, vit B12, folate and ferritin? These need to be optimal for your body to be able to use thyroid hormone effectively, whether it's endogenous or exogenous hormone.

[Buckley123 in reply to greygoose]

Yes I PA so I have regular b12 shots so that’s always higher all my vitamin as satisfactory but are at the very bottom of okay so all could do with supplements xx

[greygoose in reply to Buckley123]

If you're having B12 shots, you should also be taking a good B complex. A good B complex is one with at least 400 mcg methylfolate, which will bring your folate up.

If your vit D and ferritin are at the bottom of the range, you should be supplementing the vit D, plus taking vit K2-MK7 and magnesium. And your doctor should be doing a full iron panel to find out why it's so low.

[Buckley123 in reply to greygoose]

Thanks that’s very helpful ❤️

I can’t get my gp to do anything

They just said I have pa that’s why x

[greygoose in reply to Buckley123]

No, having PA doesn't cause your ferritin to be low. Silly people. I'm afraid you're going to have to insist on that one.

[Buckley123 in reply to greygoose]

ThT doesn’t surprise me at all what can cUse low ferritin do you know ? Xx

[greygoose in reply to Buckley123]

Being hypo for one thing. Being anaemic for another. That's why you need to get an iron panel done.

[Buckley123 in reply to greygoose]

My iron count is always low periods apparently 😩😂🤦🏼‍♀️

[greygoose in reply to Buckley123]

Hmmm… That's what they always say. But, I'm sure I read somewhere that heavy periods were the result of low iron, not the cause of it. Unfortunately, I can't find where I read that. But, of course, bad periods are linked to hormonal deficiencies, so bit of a chicken and egg situation, I think.

[Buckley123 in reply to greygoose]

Sorry I didn’t see this before

I don’t actually hAve bad periods really it’s just something they say and when I try to say I don’t they shrug it off

Xx

[greygoose in reply to Buckley123]

Typical! They don't want to know your real symptoms. They just want to force you into one of their moulds. Happened to me, too.

[Buckley123 in reply to greygoose]

It’s a nightmare isn’t it

So do you think I should push to see someone who specialises in thyroid or will they not be interested because my other levels are in normal range xx

[greygoose in reply to Buckley123]

If they truly are a thyroid specialist then they would be interested. But thyroid specialists are very rare. The vast majority of endos are diabetes specialists who think thyroid is unimportant and easy to treat. They have no idea. I don't know where you'd find a thyroid specialist in the UK.

[Hidden in reply to greygoose]

Buckley meant to write Undifferentiated Connective Tissue Disease - that’s connective not cognitive.

[greygoose in reply to Hidden]

Yes, I sort of got that. Thank you.

[Buckley123]

My iron count is always low periods apparently 😂