I told him about the antibodies for thyroid raised in medichecks but he wasn’t concerned because all other levels are normal
He said that it’s just another sign of my immune system misfiring
Still believes in uctd
So with out meds how can I help with the lump and mucus in my throat horsiness voice and sore tight neck all of this is making me very uncomfortable 😣 I’m on hydro for uctd but this is all I’m in the wait and see what happens list to see if it evolves into something more
Anyone heard of this he is a good neurologist
Any advise would be great xxx
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Buckley123
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Well, actually, it's not just a sign of your immune system failing, your immune system is actively destroying your thyroid. According to your results in your post two days ago, you aren't yet hypo, but some people report symptoms even at those levels when they have high antibodies.
The symptoms of Undifferentiated cognitive tissue disease are very much like under-active thyroid, so could possibly be that. But, the majority of doctors will turn themselves inside-out before they will diagnose thyroid problems. They just don't like doing it - maybe because they have no idea how to properly treat them. So, instead, they 'diagnose' all sorts of weird and wonderful diseases like fibro and ME. Undifferentiated cognitive tissue disease is a new one on me, but why not!
Don't give up on your thyroid, keep testing it. In all probability your TSH will rise and you'll be able to get diagnosed.
I think it will too I think they are trying to match my brain lesions with all my other other symptoms if you look on google uctd you will see what I mean
I think it’s evidence of autoimmune disorder that doesn’t meet the full criteria for one disease (yet) xx
Have you had your nutrients tested? Vit D, vit B12, folate and ferritin? These need to be optimal for your body to be able to use thyroid hormone effectively, whether it's endogenous or exogenous hormone.
Yes I PA so I have regular b12 shots so that’s always higher all my vitamin as satisfactory but are at the very bottom of okay so all could do with supplements xx
If you're having B12 shots, you should also be taking a good B complex. A good B complex is one with at least 400 mcg methylfolate, which will bring your folate up.
If your vit D and ferritin are at the bottom of the range, you should be supplementing the vit D, plus taking vit K2-MK7 and magnesium. And your doctor should be doing a full iron panel to find out why it's so low.
Hmmm… That's what they always say. But, I'm sure I read somewhere that heavy periods were the result of low iron, not the cause of it. Unfortunately, I can't find where I read that. But, of course, bad periods are linked to hormonal deficiencies, so bit of a chicken and egg situation, I think.
If they truly are a thyroid specialist then they would be interested. But thyroid specialists are very rare. The vast majority of endos are diabetes specialists who think thyroid is unimportant and easy to treat. They have no idea. I don't know where you'd find a thyroid specialist in the UK.
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Should I do my own tests before seeing private endo? 
Do I need to see an endo
Hi so I have my results! 
How slowly should I come off T3 to see if I can actually cope on my own now?
Is it my choice which NHS endo I see?
