Please complete Patients' Survey on NICE draft guideline

[TaraJR]

ITT Improve Thyroid Treatment have a survey to reflect the patients' voice on the the NICE draft guideline on thyroid disease and management. It ends on 30th June.

Please complete it! forms.gle/E3kC53BdqNtJnpao8

If you have any further comments, please email them to [e-mail]

We need as many responses as we can get to truly reflect patients' views. So please..!

[Helsan]

Thanks for posting Tara. Only a few days left for replies. Please have your day!

[TaraJR in reply to Helsan]

Thank you And please share wherever you can, with whoever you can!

[Marz]

Done 😎

[TaraJR in reply to Marz]

Thank you And please share as much as you can!

[Sylvia22]

Completed survey

[TaraJR in reply to Sylvia22]

Thank you! Hoping everyone will share as much as possible too!

[spongecat]

Done!

[TaraJR in reply to spongecat]

Many thanks And don't forget to share wherever you can!

[Hidden]

Only just seen this, but still have a few days to respond.

Starting to read the notes on Question 1 I came across this:

"Some evidence suggested that combination therapy with levothyroxine and liothyronine could be harmful because it may suppress the production of TSH. "

The key question is: "What is the documented evidence that TSH suppression in otherwise optimally treated hypothyroid patients is harmful?"

[TaraJR in reply to Hidden]

Many thanks for completing the ITT survey. And please share with whoever you can, and wherever you can! There are only a few days left now.

[Hidden in reply to TaraJR]

I am still struggling with it? There is so much I want to say, and I am so angry at some of their stupid questions!

[TaraJR in reply to Hidden]

The questions mostly refer to NICE wording. If you have more comments, or if it's easier to email them, then please do that. Address in the original post

[Hidden in reply to TaraJR]

It keeps cutting me off and returning to the starting blank page! I managed to save most of my answers but have only got as far as question 4 or 5.

Is there a word or time limit for filling it in?

Maybe I should write to them instead, as you suggested.

[TaraJR in reply to Hidden]

Oh dear I am sorry. I haven' heard of any problems like that up to now. Are you using a phone or a MAC ? Maybe they don't work so well? But I'm only guessing. Do feel free to email your comments in, as they're all being saved. It will be a shame not to get your thoughts sent in after you trying so hard.

[Hidden in reply to TaraJR]

I'm using a Windows desktop - can't type much on a phone.

I expect it's timing out - been at it since I first commented here! Almost reached the end this time, 4th attempt! At least have the answers copied into a Word document. Getting tired, try again tomorrow

[Cariad123]

Done

[TaraJR in reply to Cariad123]

Lovely thank you so much. And please share with everyone and everywhere!

[serenfach]

Done. Now to reduce my blood pressure after reading it! The dog and cat quietly left the room as I ranted at the screen! Is it too early for glass of wine?

[TaraJR in reply to serenfach]

Brilliant! And yes I understand re blood pressure and need for wine! Hope your cat and dog aren't afraid to come back in now!