Hi just looking for help/advice. Does anyone suffer from extreme heat no matter the outside temperature. It can be the coldest day and I need a fan on to try and keep cool. I've been advised on this forum that i have hashimoto's. Is this common? I thought with hashimoto's you were mainly cold. Struggling with it now.
Thanks on advance 😊
Poor Temperature control is common Hashimoto's symptom
More frequently people feel too cold. But many struggle with feeling too hot ....or swing between the two
Hi slowdragon. Previously i had always been freezing. Even in summer. But now it's more heat than cold. It's awful trying to maintain a normal temperature. Any tips or advice? I have just started isabella Wentz hashimoto's protocol. Also i don't have hypothyroidism. Only the high antibodies. Sorry if it's a silly question but would that still make me swing between hyper and hypo?
That's interesting. I'm hypo, but have had problems with temperature regulation for years, over-heating at the slightest warming of temperatures. Cannot remember the last time I looked at clothes in M&S, not just because of the style, but because the fitting rooms are always so blooming warm that I break out into a sweat within seconds of going in them.
I am still waiting for the GP to give me online access to medical records. It will be interesting to see if they ever recorded anything about Hashimoto's, even though I'm sure they never used the H word with me. Also, will be interesting to see if the record of my first complaint about hyperhidrosis coincided with my hypo diagnosis.
BTW, for any men with the same problem, I've found a place online that is great for clothes shopping, with many, many brands available. They send stuff out free, and returns are free, so trying stuff on can happen in comfort and temperature of own home. Suddenly, I'm becoming a stylish dresser 
I don't know if I'm allowed to name the company on here, so if anybody wants the details just DM me.
Hi there. I've never had a problem with overheating until last year. It was more the cold. It's like my thermostat is broken now. My body can't seem to make its mind up. Cold on a hot day or freezing on a cold day or vice versa. I don't know if it's the hashimoto's. No dr had mentioned it. I only know from this forum
I've literally just got online access to my medical records. I'm just about to post separately about it, but my first complaint about temperature regulation was not long after being diagnosed first with Thyroiditis, then hyper, then hypo, so it could well be linked.
Hi yeah it could be. My thyroid levels are still currently in range. Can I ask how you were diagnosed with thyoiditis? I am not currently diagnosed with anything
The diagnosis was based on a series of blood tests over a short period, in combination with my list of symptoms at the time. I cannot see what the tests were unfortunately. There is some high-level info about thyroiditis (in its different forms) at nhs.uk/conditions/thyroiditis/
It can be a symptom, as the weird thing with hashi's is that you get symptoms of both hypo and hyper-thyroid, and over-heating is a common symptom of hyper.
I definitely don't suffer with feeling the cold - I describe myself as heat sensitive, as I notice as soon as the heating goes on, but I don't over-heat or need fans like yourself. I mean, on the plus side our heating bills won't be too high
Hi cooper. I used to be more of a cold person. Now since September last year it's been awful heat. I assume it's the hashimoto's but no dr has diagnosed it. Only other members on this forum have mentioned it. Due to the high antibodies. Heating bill is low but electricity bill is high
In the UK, doctors don't diagnose hashimotos - most just don't understand what it is. I think because they're of the opinion there's nothing they can do about them, then they don't bother spending too much time studying that information.
Hi cooper. Yeah i realise that now. I've been told by a few different Dr's that antibodies don't cause any symptoms but only from being on this forum i know that they do.
Hi there - oh yes I do - I find it one of the most awful symptoms it is dreadful - I go bright turkey red too..............I was on NDT and it reduced a lot when I came off the T3 side of meds - I will often reduce my meds when it is hot to accommodate my thyroid thermostat which won't be needed to be so 'high' to help keep the body warm. But I take liquid so it is easier to adjust dosage by a small amount rather than tablets.
Hi posthinking. It is dreadful isn't it. There's never just a comfortable temperature. But the heat is the worst. I am not on any thyroid meds at present as my levels are in range. The dr have me tablets that are supposed to help with the heat episodes but actually made them worse so i stopped taking them.
Hi there - glad you came off the tablets - just found this
health.howstuffworks.com/we...
Be careful what you take from these sites - take caution with E as it is a blood thinner - wonderful Vitamin but you need to be careful. I am going to try my Magnesium oil when I get the heat intolerance - I do take it when I get stressed - I get days when I only have to see something on TV that upsets me and I get a flash of heat - so it is adrenal related in my case but not sure about the heat issue - that is the thermostat - the thyroid - I use Magnesium Oil by Better you - be careful though don't overdo with that either because it can cause issues if you are under medicated where it would relax you down too much - but I wouldn't be without it. Hope this helps.
Hi thank you for the advice. I had always thought it was thyroid related but unfortunately my bloods don't show it. I had been advised on this site that I have hashimoto's (due to high tpo and tg antibodies) so i started the isabella Wentz hashimoto's protocol. In the hope that might help. I had always Ben freezing. Hot water bottle and heated blanket in the summer. Just last Sept it changed to the heat too. Fans on even in winter. It's awful.
I would rather be freezing cold than have heat intolerance - do you think the same?
Oh definitely. Although I used to complain about being freezing then. I much prefer it. I still get freezing cold when others are warm but it's more heat than cold now.
HI Sophie - if I find a solution - I will be the first to let you know............but nothing so far. I was so bad at one time - my face was dripping onto my papers at the office - but being that bad I eventually found out (I was on NDT) that I didn't need T3 - and it was overheating me). But it has continued but not so bad and I have been like that since I was a child - I hate the heat. At one time I had to have my car windscreen blacked out as I was burning through the glass even fully clothed - but that was Beta carotene building up in the liver which was having a direct reaction on my skin. It was like a blowtorch on my skin - so painful - but that was before thyroxine and is a symptom of the liver not being very happy due to thyroid dysfunction.
Sorry you have suffered to bad with it. I used to love the heat too. Always holidays abroad. Now i am dreading the summer already 😔
Hi posthinking01. Wow! I had a very similar experience a few months back. At its worst, it felt like I was burning from inside out and I could literally see my skin wrinkling?!
How did you come to find out that it was beta carotene building up in the liver? Were you taking beta carotene supplements or eating a lot of it in your diet?
Is your liver function being monitored now?
Thank you
Hi there - just off to hairdressers but will answer you when I get back - as I found this in an ancient paper going back to 1850's I believe.
Wow can't wait to hear ... Thank you!
Here is an interesting series of documents - carotene building up in liver would show initially as yellowing of the skin - hand and soles of feet in first instance. I haven't found that document yet. Will send later on.
No - no monitoring - nothing showed on liver function tests - it was hormonal - wasn't taking supplements just eating a diet that may have had Vitamin A within it.
As I said my issues were yellowing of skin and hands and feet so was definitely betacarotene but here is a link to a site where they are stating it could be something else.
livestrong.com/article/4754...
Hope this helps
BW's
Thank you very much for your time and efforts! It is greatly appreciated : )
The article re hypothyroid was a most interesting read. The way medicine was practised in the past, without the aid of diagnostic tests, tells a lot. It makes me think, why in this day and age, when we know so much more, patients still struggle so hard to get the help they need?!
Thank you very much posthinking01!
Take care and God bless you : )
Sophie take a look at this too - health.howstuffworks.com/we...
Sophie you say you are following IW protocol what is it you are doing that has changed you from being cold to rather warm
Hi sorry. The heat started last year. I've only just started the protocol to see if it will help. As members on this forum have advised I have hashimoto's. It's supposed to reduce antibodies and improve symptoms. Cutting out gluten, dairy, sugar, caffeine and soy.
Hi Sophie - good idea - anything is worth a try - it's such a horrible affliction.
It is. I suffered very bad night sweats and unbearable heat during last winter. It was the coldest winter nights and I had a fan on full and windows open. Nothing worked to cool down.
Night sweats can be low B12
Low B12 is extremely common with Hashimoto's (Even if your blood test results don't show you are hypothyroid....you very likely are)
ncbi.nlm.nih.gov/pubmed/186...
There is a high (approx 40%) prevalence of B12 deficiency in hypothyroid patients. Traditional symptoms are not a good guide to determining presence of B12 deficiency. Screening for vitamin B12 levels should be undertaken in all hypothyroid patients, irrespective of their thyroid antibody status.
Are you supplementing B12 and/or good quality daily vitamin B complex?
Hi Sophie - are you able to get your hormones tested as you may be low on oestrogen - that will cause these sweats at night. During the heatwave last year I had to stay in for 6 weeks - I could not go out as it was too embarrassing as I went bright red and was sweating profusely and felt like I was going to explode - it was bad enough indoors but to go outside was not an option.
Hi my oestrogen levels were high actually. Not low. I know what you mean. If we get a heatwave i will be indoors by my fan. It's not much fun is it? I hope we don't get a heatwave this year. I'm looking forward to the winter.
Agh - oestrogen dominance - then you could have low progesterone levels which will also compromise your thyroid - I have the same issue but don't like progesterone tablets or the cream as I am not convinced it is oestrogen that causes breast cancer but progesterone in my opinion - are you on HRT ?
Hi i'm not sure of my progesterone levels. But the dr said the high oestradiol is nothing to be concerned about. No i'm not on HRT. It's not the menopause. I'm 37.
Agh well - as I don't like progesterone can't suggest anything else at the moment. Will keep looking for an answer........
Yes.... i am too. Do you have hyper or hypothyroidism or hashimoto's too?
HI Sophie =- Hashi's but also Addison's - so on cortisol steroids
Can i ask your symptoms of hashis? I don't have a goitre, just the raised antibodies.
Tiredness - muscle weakness - overweight and cannot lose weight - can't exercise because I cannot due to tiredness. Antibodies 1700
I have extreme fatigue and exhaustion too. But no weight gain. I kept losing weight (apologies ) just no energy for anything
Hi Sophie - losing weight could be hyper or adrenals under pressure.
Hi the weight loss and heat points to more hyper than hypo i think?
Yes I agree - and low adrenals can also cause weight loss.
Hi Sophie I forget if you said you were on thyroid meds but too little symptoms are exactly the same as too much i.e. hair loss - exhaustion - weight loss etc. - people tend to forget that so you have to be careful you are not taking too much thyroid medication.
Hi no i'm not on any thyroid meds yet. As my levels are still in range. I've had symptoms for a while though.
Hmm what are your levels and the range then
TSH 1.99 (0.7-4.2)
Free t4 20.5 (12-22)
Free t3 5.54 (3.1-6.8)
TPO 124 <34
TG 151 <115
Sophie sorry I didn't get back to you re your hair issue - oh yes - breaking off and dry - I was looking like a nutty Professor with my hair sticking up on end until I got my levels right. You could try supplements to help as it will be the thyroid vitamins and minerals that are being compromised.
Hi that's ok. I'm pretty much the same. It's like i've been electrocuted when I get up. I am taking selenium and magnesium just now. As well as vid d. As i was vit d deficient.
Hi Sophie - less is more with the D - it causes calcium to be drawn into the blood stream if in excess.
Thanks for the warning. I was on the 3000 unit spray. Daily to get my levels back up. Any other supplements that are good for hair? It's a bit depressing isn't it. When nothing helps
As someone who has 'suffered' with multiple health issues but been unable to take 'drugs' for the condition other than steroids and thyroid medication - I have kept my illness stable (Lupus on top of everything else) by checking vitamin and mineral and hormonal levels on a regular basis - and what I have discovered on this 25 year journey is that less is more - the kidneys and the liver cannot take being overwhelmed with supplements - what I also noticed was that if I took say B12 because I was deficient - the next tests showed B6 was low etc. etc. - it was clear that the body works in synergy and taking one without the other often causes an imbalance.
Sorry to hear you had so many health issues. I was being investigated for Lupus too. I'm waiting on a skin biopsy to see if that shows anything. I posted my last thyroid ranges. Did you see them? It wasn't early morning or fasting though
Hi Sophie - I wouldn't say I was an expert but I do roughly know how to read test results having had to do it for so many years. But your levels look good - I tend to be better on results that show middle of the range levels - yours look adequate - can't remember are you on thyroid meds or waiting to go on.
Hi no i'm not on any meds at the moment as my levels are ok. Just had symptoms for a while.
Hi Sophie - Personally I wouldn't go on thyroid meds unless I really had to - what symptoms did you have because thyroid disease can be mimicked by so many other issues.
Long story. But it's been a cycle of symptoms. Last may i started getting extreme nausea and feeling very unwell. This would start and stop randomly, lasted about 2 months. Problems with my breathing which lasted a week. Then horrible chest discomfort. Again lasted a week. I started getting joint pains (which i've not had before ) shoulder, top and bottom back. Then the night sweats and unbearable heat during the winter time (which still happens now )I'm between than I get flu like symptoms and feeling unwell. I do have raynuads which had gotten worse too and also i developed a sun allergy. Also extreme fatigue and exhaustion. Sorry for the long post.
Hi Sophie - several things can cause breathlessness - low iron (ferritin) and also low B12. Joint pains can be either low Vitamin D or too much - or excessive supplements but I don't know what you are taking - if you could remind me. What tests are being undertaken for Lupus - you need an ANA test (anti nuclear antibodies) and several others - Raynauds is a circulatory issue as you probably know. Do you take Vitamin B complex at all or a multi vitamin or mineral as these might help. Vitamin E thins the blood and can help with Raynauds but only take 100 iu's of mixed tocopherols. You may have sticky blood which I did (Hughes Syndrome) which can cause problems all over the body. Let me know. We can talk about what is good for your hair when we take a look at what else you are taking.
Hi i've had so many blood tests over the months. Iron is good and b12. My vit d is now upto 111. It was 25 previously. My ana was positive but then negative. The ena panel was also negative. The only supplements I am taking are vit d. Selenium and magnesium. I wasn't taking any supplements when all all this started. I had a 3 day course of iloprost infusions for the raynuads. Which helped a bit but my right hand still swells up and gets painful. Not sure if that's the raynuads or not
HI Sophie how much magnesium are you taking may I ask and are your hands red with the raynauds - is it your wrist that is swollen or the hands. Here are the side effects of Iloprist Side-effects.
Common or very common
Chest discomfort; cough; diarrhoea; dizziness; dyspnoea; haemorrhage; headache; hypotension; nausea; oral disorders; pain; palpitations; rash; syncope; tachycardia; throat complaints; vasodilation; vomiting
It's just the fingers on my right hand that swell up and go very res. I had the iloprost in march this year. Way after any symptoms appeared. 150mg of magnesium.
Hi do you have any tips for the hair issue. It's starting to get me down now as it's been awful for a while and just getting worse 😔
Hi Sophie that is a difficult one...............are you on any medication I need to know about ? If you could let me know - including vitamins and minerals - I think you said D Selenium and magnesium am I right? How is your diet and do you drink alcohol - sorry to be personal but it all contributes to health of hair.
Yes. That's right. I take medication for my bladder but that's it. My diet is good now. Plenty water, fruit,veg and meats. I don't drink any alcohol
Hi Sophie what do you take for your bladder may I ask - I have suffered with UTI's for 10 years and on courses of antibiotics every 6 weeks for this problem and nearly died with Sepsis due to them as my immune system can't fight them off. Now taking a low dose of antibiotics at night and they have stopped - thank goodness.
Hi it's called solifenacin. It's for an overactive bladder. Not sure if that's related to the other symptoms.
Hi Sophie - just been doing some research - it was a bit technical so whilst not being rude I haven't posted but will if you want - low Vit D can cause an overactive bladder situation and that high doses of Vitamin C can irritate the lining of the bladder. You have got your levels of D up to 111 but at 25 you were certainly very low so you did have an issue with D - I am not a Dr - in fact I could not be a GP I would not sleep at night sending people off with numerous drugs to take I would be worried sick - but I am someone that due to metabolic issues was unable to take drugs for the Lupus etc. only being able to take the steroid and thyroid meds and any deficient vit and minerals - any deficiency my body grabbed thankfully - drugs it didn't like. So what I am trying to say is that I have knowledge of what I had to do to keep going but I am not medically trained so anything I impart to you is for your information and for you to make up your own mind about. I notice that the solifenacin states amongst other effects caution in people with overactive thyroid and it stops sweating !
Now back to Raynauds - quote Preliminary research suggests that taking essential fatty acid supplements may be mildly effective in the treatment of Raynaud's phenomenon. Vitamin B3 (also known as niacin) is also thought to benefit people with Raynaud's since the nutrient causes blood vessels to dilate and stimulates circulation to the skin Unquote
Please be careful with Essential fatty acids - fish oils as it can thin your blood if you are that way inclined and can build up in the liver. Whilst it recommends B3 - take a look at this.
Quote What happens if I take too much vitamin B3? Taking over 3g of vitamin B3 a day leads to more serious side-effects, including liver problems, gout, digestive tract ulcers, loss of vision, high blood sugar and an an irregular heartbeat Unquote.
I am a real advocate of supplementing but I am also very aware only because I have had regular vitamin and mineral testing throughout my illnesses - how you can go into an overdose scenario which can have devastating effects. Often I have continued taking a supplement because I had a test saying I was deficient - for it to go back into normal without me realising- till I started with symptoms of overdose. It is such a fine line.
What I would suggest is that you take a good quality Vitamin B complex product - B vitamins should always be taken as a complex as they work in synergy - only to be taken separately if you are able to monitor the results by tests. B Vitamins are also good for the hair and skin. Or you could take a good multi vitamin and mineral which will have the minerals required for the hair - zinc etc. - what I found is that if you are deficient - the body diverts the sustenance for a good head of hair to other parts of the body to help keep it going - if your hair is awful like mine was - there is a deficiency somewhere - and it is a game of trial and error to find out where that is - like the engine of a car - the mechanics have to find out what is going wrong by the process of elimination.
Hope this helps.
Hi thank you for all the information. In don't think my bladder is related to low vit d. As it's still a bit of a problem even with normal levels and taking the bladder medication. I will try the vit b complex. Yes mine is just awful. I find it embarrassing now and affecting my self esteem.
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