Thyroid... HELP : Been feeling awful breathless... - Thyroid UK

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Thyroid... HELP

Lync67 profile image
15 Replies

Been feeling awful breathless, sweating, aching limbs, tired moody..

Dr ran bloods and the results have come back twice that my TSH level is below the norm.

1st time was 0.08mu/L

2nd time was 0.01mu/L

Im looking for any advice or help as dr wants to repeat in 3 months.

I can not wait 3 months i feel awful....

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Lync67 profile image
Lync67
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15 Replies

TSH doesn't make you feel anything, a low level just shows that you are taking external hormones so your brain knows it doesn't need to tell your thyroid to produce more. Your actual thyroid hormones are well in range - even room for an increase in meds. I would want to look at B12, folate, ferritin and vit D for the source of symptoms.

Lync67 profile image
Lync67 in reply toAngel_of_the_North

What are external hormones i don't t take anything.

Angel_of_the_North profile image
Angel_of_the_North in reply toLync67

If you are not taking thyroxine, you might have problem with your thyroid or pituitary gland as your TSH is lower than you'd expect given your thyroid hormone levels. You might have autoimmune thyroiditis and just had a flare up. I would still look at iron levels, B12 and folate. If you take B vitamins, the test results may be false as most are affected by biotin (a B vitamin, which you need to stop taking a week before a blood test). Was the test done first thing in the morning, fasting?

BadHare profile image
BadHare

Suppressed TSH isn't bad, it only seems to bother them. How are your nutrient levels & T3?

Let me know what you find out. My thyroid was normal and obgyn put me on meds and 6 weeks good then my thyroid went to an 11. Not working.

Hay2016 profile image
Hay2016

Hi are you on thyroid hormone? Have the doctors tested antibodies??

in reply toHay2016

Everything was good no auto immune . VitaminsOnly thing I had before was puffy face from fluid retention and joint pains. Uggg drinking lemon water to try to fight the swollen fluids. So upset ..I wonder if my thyroid is damaged now for good. It was normal before

in reply to

Yes levothyroxine .25 is what she gave me . It worked perfectly no more swollen face no more joints and pain and then my thyroid crashed in the hospital they checked my blood sugar my blood pressure everything which was good however my thyroid was showing an 11 it was normal prior to her giving me the medication so I'm wondering if my thyroid is going to come back or not they took me off the meds

Lync67 profile image
Lync67 in reply toHay2016

No im not on anything, and i dont think antibodies have been checked.

Hay2016 profile image
Hay2016 in reply toLync67

Your doc needs to be testing for antibodies for Hashimoto and graves to determine if you have autoimmune thyroid disease.

Lync67 profile image
Lync67

I dont take anything, i went to gp feeling terrible and she ran bloods and the results showed TSH levels below guide range, i still not on any medication and i dont understand why or what would make the levels so low.

The GP has said she will be monitoring for subclinical hypothyroidism???

Angel_of_the_North profile image
Angel_of_the_North in reply toLync67

I think your GP said subclinical HYPER thyroidism (over active). Make sure blood tests are done first thing in the morning, fasting - nothing but water - and that you do not take any B vitamin supplements, biotin, hair and nails supplements, or nutritional yeast for at least 4 days before the test, so you get accurate results. And make sure they test TSH, free T4, free T3, TPO and TG antibodies (for autoimmune thyroid disease) and TRab or TSI antibodies (for Graves disease)

SlowDragon profile image
SlowDragonAdministrator

Your TSH is extremely low

BUT both FT4 and FT3 are well within range

This suggests central hypothyroidism - where the problem is with TSH signal from pituitary gland, rather than thyroid

Normally with hyperthyroid low TSH is due to high FT4 and FT3

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised due to hypothyroidism or hyperthyroid

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Ask GP to test vitamin levels and thyroid antibodies

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Medichecks currently have an offer on until end of May - 20% off

thyroiduk.org.uk/index.html

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten.

So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and difference between Graves and Hashimoto's

thyroiduk.org.uk/tuk/about_...

Private testing for suspected Graves - TSI or TRab antibodies

medichecks.com/thyroid-func...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

Lync67 profile image
Lync67 in reply toSlowDragon

Wow! thank you so much, no im not taking anything.

I will digest you info and act on it. 😉

SlowDragon profile image
SlowDragonAdministrator

Are you taking any vitamin supplements?

Supplements with biotin in can falsely affect test results

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