Survey to ensure the right health information i... - Thyroid UK

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Survey to ensure the right health information is available for sharing

lynmynott profile image
lynmynottPartnerThyroid UK
6 Replies

The Professional Records Standard Body (PRSB), who develop and help to implement standards for the structure and content of health and social care records, is conducting a new survey.

The survey is designed to help define a core set of information about a person that needs to be shared to support safe, high quality joined-up care and help people take greater control of their health and care.

You have to be quick as it is closing on 30th April 2019

For more information and to complete the survey go here: surveymonkey.co.uk/r/PRSBco...

For more information about the PRSB and what they do go here: theprsb.org/

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lynmynott profile image
lynmynott
Partner
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6 Replies
crimple profile image
crimple

Completed the survey. Until hospital/GP personnel actually take notice of what is written in the notes mistakes and omissions will continue. My Dad was on a gluten and lacto free diet. it was on his notes. Neither ward that he was on bothered to let the kitchen staff know, so he was given non Gf and non LF foods!!!!!!!!!!!

helvella profile image
helvellaAdministrator

I was doing OK until I got to question 3.

Do you agree that sharing core information will bring these benefits?

The question allows five responses:

Strongly agree Agree Neither agree or disagree Disagree Strongly disagree

And has five sub-questions:

Improve the quality and safety of care

Make care more efficient

Lead to better integration between health and care services

Support people who access services to take more control and manage their own care

Support better care planning and research

Trouble is, I can't answer! The main question says "will". My answer to that has to be "no idea". If it said "might", "could", "would sometimes", "I'd like to think it would" or some other wording which is conditional, then I might have been able to answer.

As it stands, how can I possibly know it will bring these benefits?

OK - I stand accused of pedantry - and plead guilty. But if I plough on and answer regardless, my opinions might be mangled and mis-represented because I answered the question as written with an answer on the basis of how it should have been written. Therefore, I would be complicit in that mangling and mis-representation.

MaisieGray profile image
MaisieGray in reply tohelvella

I am in total agreement with you. I looked at the questionnaire, fully expecting to see problems of the sort you describe, and wasn't disappointed. I gave up with it. Definitely not pedantry, this is an example of poor questionnaire design by an organisation that might be expected to do better. But I'd go further, there is no way that sharing core data about patients could result in "better integration between health and care services" - the former is a small aspect of day to day operating procedures that may give any frontline service provider coming into contact with a patient, quick access to a few key facts if they care to check; but it has no impact on higher level organisational philosophy and agency working, that absolutely must be the driver for such pan- and inter-agency changes. That requires top down thinking, whereas the PRBS seems to be implying that a bottom up approach can bring about larger scale or higher level improved inter-organisational effectiveness.

nightingale-56 profile image
nightingale-56 in reply tohelvella

helvella not being pedantic at all. I have ploughed on, as you say, and am not sure my answers will not really be correct. It was not really clear what information should be given to what professionals and what should only be given to some. Social Care is an absolute minefield with too much left open for over ups if things go wrong. always in the professionals' favour, of course. Would also like to have been given the opportunity of being able to take a copy of questions with my answers. Have had to painstakingly manage to do this by hand.

humanbean profile image
humanbean

"Sharing core data" is not going to be as helpful as the powers-that-be think. I say this because I bought my own GP records and I know how inaccurate they are. Doctors tend to avoid recording their mistakes or they obfuscate as much as they think necessary to make sure their mistakes get buried in the paperwork.

in reply tohumanbean

You have hit the nail on the head. Brilliant response.

See David Oliver: Lies, damned lies, and the NHS

bmj.com/content/354/bmj.i4093

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