Cerys Mathews programme 28th April, should be available on catch up for a few weeks, listen in just after the 11.30 news.
Cushing's disease/pituitary tumour: Kiko Mathew... - Thyroid UK
Cushing's disease/pituitary tumour: Kiko Mathews (rowing person) talking about this on 6 Music if anyone's interested.
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BadHare
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She's one of the few people who have managed to recover from Cushing's disease without it impacting her too much. Many others really struggle to get back to a "normal" life! 
BadHare in reply to
I doubt they'd interview someone who wasn't doing well.
Good, at least, that she mentioned the symptoms, how they affected her, & the treatment. I need to listen to it from the start. It was on in the background & part way through when my ears pricked up at the mention of pituitary tumour.
in reply to BadHare
Have you got a pituitary tumour? I've had Cushing's & now run a FB group for people either with it or testing for it. I think Kiki did her crossing just a few months following her 2nd pituitary surgery!
BadHare in reply to
I have. It's a micro prolactinoma that was picked up 5 years ago. I'm sure I've always had it as I had most hypo symptoms for as long as I can remember, up until I started self-medicating.
No sign of Cushing's, though I've read a little about it. I've spotted mentions of it on here, hence the post about the radio interview, & on the Pituitary Foundation website.
Great that you run a support group. ) We all need more help than the endocrinologists seem to provide!
in reply to BadHare
How do I get more information about pituitary tumors? I'm new to the group. Thanks.
BadHare in reply to
This is a good place to start: pituitary.org.uk/
If you're in The UK, there are local support groups.
in reply to BadHare
Thanks very much. I'm interested in knowing if LDN is recommended if someone has a pituitary tumor.
BadHare in reply to
I've no idea. That's a question for a medic if you can fine one that's useful.
Perhaps ask the Pituitary Foundation once you have a clear diagnosis as there are many health issues that can be caused depending on the location & size of tumours.
in reply to BadHare
P.S. I just found out I *MAY* have one, not sure. My doc is still diagnosing. I'm also interested in knowing if LDN is recommended if a patient find out they have
john_83 in reply to
I’m in the same situation. Just received a letter stating that the mri shows I “may have a pit adenoma” they will go to a board of endo’s to decide. I guess the mri was inconclusive? Is that what you received?
