Rai and diagnosed ibs after

[dodge1979]

Any ideas

I have been in pain for months

Sick a you like

Just gone g and d free 4 days ago and don’t feel any better

Any help

[SlowDragon Administrator]

How much Levothyroxine are you currently taking?

How long on this dose?

Is it always the same brand? And which brand?

Do you have recent blood test results and ranges you can add please

For full Thyroid evaluation you need TSH, FT4 and FT3 tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common

After RAI you may need the addition of small dose of T3, but vitamins need to be optimal first

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Ask GP to test vitamin levels if not been done

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Always take Levo on empty stomach and then nothing apart from water for at least an hour after.

Many take Levothyroxine early morning, on waking, but it may be more convenient and possibly more effective taken at bedtime.

verywell.com/should-i-take-...

Other medication at least 2 hours away, some like HRT, iron, calcium, vitamin D or magnesium at least four hours away from Levothyroxine

Many people find Levothyroxine brands are not interchangeable.

Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased or at repeat prescription.

Many patients do NOT get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients

[pennyannie]

Hey there Dodge

I'm with Graves Disease post RAI 2005, and now with Graves disease, thyroid eye disease and hypothyroidism.

I have been very unwell with what I believe were the long term consequences of RAI but found no help or acknowledgment within the Nhs system.

I would think, considering your symptoms are within months of your treatment your primary care provider and or hospital would be able to help you.

Just as a point of reference, a fully functioning working thyroid ( if you had one ) would be supporting you daily with approximately 100 T4 + 10 T3.

I don't know what medication you are on, but do know that when I switched and added in some T3 to my T4, I felt less anxious, less stressed, and more " able " and " can do " .

I am self medicating as I was denied a trial of T3 on the Nhs, and am now feeling a lot better and a taking Natural Desiccated Thyroid.

It just might be worth looking into and the following book gave me insight into what the thyroid actually does, and as we lost this major gland, we need to make up for its function.

Your Thyroid and How to Keep It Healthy - by Dr Barry Durrant Peatfield - this doctor has hypothyroidism and writes from the patient's perspective. It's an easier read than most medical books, funny, and full of information to equip the patient back to better health.