Levo bad reaction

[Fot_25]

I have been diagnosed on September 2018 with hypo and prescribed Levo 50 the first month I feel awsome but the second mothn my life become hell my anxiety went to the roof I had so much adrenaline rush that o could sleep my brain was shaking and of course crying for hours I didn’t know at first what was going none but I did my research and I thing was my adrenal gland was weak and cause it all and then I couldn’t take it anymore I stop it could turkey and then the real hell starts I could walk and my stomach become a mess and full anxiety it’s been about 3 moths and still I’m not feeling myself but my thyroid level is normal probably my body didn’t need it or it wasn’t the levo but my adrenal glads that I have to work on in any similar experience anybody ????

[shaws Administrator]

'Normal' with regard to thyroid hormones doesn't mean we 'feel normal'.

Once diagnosed as being hypothyroid, we no longer pay for any other prescriptions due to the fact that hypo is so serious and we need daily thyroid hormone replacements for life. The commonest is levothyroxine.

We begin on a dose, 50mcg, and every six weeks we have a blood test with a 25mcg increase until the TSH is 1 or lower.

Unfortunatley GPs seem to not know anything about how important thyroid hormone replacement is and the fact that it enables our whole body, from head to toe, to function.

Levothyroxine is the commonest prescribed hormone replacement and it is slowly increased every six weeks by 25mcg until TSH is 1 or lower (we don't want 'in range' after diagnosis).

Levothyroxine is a synthetic hormone also called T4. This should convert into the Active Thyroid hormone (T3) which is needed in our millions of T3 receptor cells, the heart and brain contain the most.

Most GPs don't have any knowledge of symptoms and concentrate upon the TSH alone. This is from the pituitary gland which tries to flag the thyroid gland into producing more hormones which it cannot so and it rises and we have to replace the hormones with levothyroxine or other thyroid hormones which are no longer prescribed by the NHS.

I suggest you make an appointment for a new blood test and these are some hints to get the best from a test:-

1. Make the earliest possible appointment, fasting (you can drink water).

2. Allow a 24 hours gap between your last dose of levo and the test and take afterwards.

3. Levo should be taken on an empty stomach (usually when we awake) with one full glass of water and allow a gap of 1 hour between dose and food. Food interferes with the uptake of the hormones.

4. The aim is a TSH of 1 or lower - not as many doctors seem to believe and keep TSH in range which is up to 5).

4. Always get a print-out of your results, for your own records and post if you have a query. Ranges are important which are usually in brackets after the result and should be stated otherwise members cannot comment.

If you've not had B12, Vit D, iron, ferritin and folate to be tested as well. Everything has to be optimal.

[Fot_25 in reply to shaws]

Yeas I get it but also Levo has side effect too instead of taking hormones why we never wonder why the thyroid is not function properly so is not always the hormones the solution because eventually the thyroid is gone depend on that and stop function me personally I never gone put that in my mouth so I’m gone try to make some lifestyle changes and get better