Approx. 10 years ago I was introduced to the Society for Participatory Medicine participatorymedicine.org/
The Journal of Participatory Medicine is the Official Journal of the Society for Participatory Medicine, a peer-reviewed, open access journal with the mission to advance the understanding and practice of participatory medicine among health care professionals and patients.
The Journal is now published by JMIR Publication jopm.jmir.org/
PATIENT CENTRED CARE
From patient centred to people powered: autonomy on the rise
Following in the path of feminists and civil rights leaders, informed patients are building a progressive social movement to improve medical care. Dave deBronkart says medicine should let patients help improve care, share responsibility, and think for themselves
From what I see in the UK it hasn't crossed the Atlantic, and certainly not in thyroid treatment and diagnosis. There is still too much of "doctor knows best so shut up" attitudes here.
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The Patients Association Patient Experience Programme
