hashimotos: anyone tell me if this causes night... - Thyroid UK

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hashimotos

juls profile image
juls
8 Replies

anyone tell me if this causes night sweats shortness of breath without exertion, felt really unwell last night started with getting hot then cold repeatedly had sweats every night for a while now just wondering as last night I felt really agitated so went up the stair's and really short of breath heart was pounding I made it but I had to sit down as went dizzy and weak didn't have the strength to take off my dressing gown has anyone experienced this at all...? this shortness of breath is awful

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juls profile image
juls
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8 Replies
SlowDragon profile image
SlowDragonAdministrator

How much Levothyroxine are you currently taking?

Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto's

Essential to test vitamin D, folate, ferritin and B12. Always get actual results and ranges. Post results when you have them, members can advise

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels. Low vitamin levels affect Thyroid hormone working

Your last results show poor conversion of FT4 to FT3

Common with Hashimoto's, especially if vitamins are too low

Night sweats can be low B12

Shortness of breath low iron or ferritin

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten

Are you on strictly gluten free diet already?.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally if not already gluten free ask GP for coeliac blood test first, also request vitamin testing

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

Getting vitamins optimal is essential

Very often with Hashimoto's we need to be strictly gluten free

Also as you have empty sella TSH is very likely unreliable. Essential to always test FT3 and FT4

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies Or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

juls profile image
juls in reply toSlowDragon

Thanks, blood was all done by endocrinologist same time as the other thyroid test's shown here, I know I am insufficient with vitamin D I am due to see my GP soon so will get more blood tested for coeliac b12 etc. GP doesn't seem concerned with my blood results said F4 was just a slightly high level. same as some of the other tests nothing to worry about. I don't have a clue about hormones what they do, I just know when I get like that I feel so ill. I am happy there are some good answers here. thank you for your time. I take 100 levothyroxine said I am well medicated?

SlowDragon profile image
SlowDragonAdministrator in reply tojuls

Everyone is an individual. Impossible to say what dose you need

Do you have any actual blood test results? if not will need to get hold of copies. You are legally entitled to printed copies of your blood test results and ranges.

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up. They can no longer charge for printing out, rules changed after May 25th 2018

Can you add most recent results and ranges for TSH, FT3 and FT4, plus have you also had thyroid antibodies tested

Also vitamin D, folate, ferritin and B12 results and ranges if you have them

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

juls profile image
juls in reply toSlowDragon

yes, I have my results TSH was 1.53 mU/L (0.3-4.5) Free thyroxine 23.8pmol/L (10.0-22.0) Free T3 4.3 pmol/L (3.1-6.8 ) TPO 70 kunits/L. (0.34) I have all these on here already storm under Interpretation results. my blood chemistry results are normal ..will ask for blood works done on what you said thanks x

SlowDragon profile image
SlowDragonAdministrator in reply tojuls

Can you add the ranges (figures in brackets after each result)

Every lab has different ranges

Was this test done early in morning, fasting and no Levothyroxine in 24 hours before test?

Essential to get actual results and ranges on vitamin D, folate, ferritin and B12 too

juls profile image
juls in reply toSlowDragon

blood was drawn in the afternoon, not on fasting was done at endo appointment hospital, hmm probs have made a difference taking them 3 in the afternoon. you mentioned about my tests in the first response as I have empty sella . will get blood done for other..i do have an insufficiency of the Vit D. hve edited the last results cortisol level was 305nmol/L taken in the afternoon no range noted.

SlowDragon profile image
SlowDragonAdministrator in reply tojuls

So your TPO antibodies are above range, which confirms cause of hypothyroidism as due to autoimmune thyroid disease also called Hashimoto's

Your FT4 is at top of range (from taking Levothyroxine with is T4)

But your FT3 is low. Shows you have poor conversion

This can be due to low vitamin levels

Low vitamin levels are especially common with Hashimoto's

Also with Hashimoto's its extremely common for gut to get affected and many of us find strictly gluten free diet helps significantly

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first, plus request B12, folate and ferritin tested

Also can be helpful to supplement selenium to improve conversion of FT4 to FT3

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

But don't be surprised that GP (or endo) never mention gut, gluten or low vitamins. Hashimoto's is very poorly understood

Improving vitamins is first step.

Vitamin D to at least 80nmol but around 100nmol may be better

B12 and folate near top of range (most/many need to supplement)

Ferritin at least half way in range

Essential to test FIRST before supplementing

Consider trying strictly gluten free diet after New Year. Often for many of us this gives immediate noticeable improvement.

Thousands of posts on here about gluten free diet and how it helps

But if no immediate obvious improvements best to stick on it 3-6 months. It can be slow improvements. Retest TPO antibodies before considering restarting gluten, then see if symptoms get worse

Hashimoto's and bi-polar

drknews.com/when-hashimotos...

holtorfmed.com/mental-illne...

ncbi.nlm.nih.gov/pmc/articl...

FaithnHope36 profile image
FaithnHope36

Sometimes it is thyroiditis. Yes with hashimotos with our it is already inflamed but sometimes it gets super inflamed and you needed a course of steroids to bring it down. I dealt with that for 6 months and I was hospitalized about six times it wasn't until my doctor gave me a 6 day course of steroids that I was able to go back to work after 4 months. A lot of people frown on steroids and I don't like taking them either but it gets to a point where you got to do what you have to do. Because as Hashimoto patients whether we like or not we're going to end or medication anyway and so why not trying to have a quality of life now

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