Fibromyalgia

[Sylvia22]

Do members consider that fibromyalgia is connected to Hashimotos. I have both

[MaisieGray]

Dr. John Lowe, one of the leading practitioners in the field of fibromyalgia research, found that the chronic symptoms associated with hypothyroidism and fibromyalgia were partially or entirely due to lack of or undertreatment of the thyroid. Dr. J. Teitelbaum, an expert in chronic conditions, believes that hypothyroidism and fibromyalgia are linked through the origin of the dysfunction. His view is that fibromyalgia is caused by dysfunction of the hypothalamus, which exerts substantial influence over essential bodily functions including sleep, hormone balance, temperature, and autonomic nervous systems regulating blood pressure, blood flow, and the transport of food through the gut. As part of the HPA axis, the hypothalamus works together with the pituitary, adrenals, and the thyroid to regulate hormones throughout the body, so that malfunction in one area can have a significant negative impact on the others.

[Hidden in reply to MaisieGray]

That’s interesting, as I have fibromyalgia and have recently been diagnosed with hypothyroidism. I’ll look him up 🎉

[Sylvia22 in reply to MaisieGray]

Thanks so much for this. My Levothyroxine was reduced by small amount few months ago and I have had several bad fibromyalgia flares since. Will show my Doctor this.

[SlowDragon Administrator]

Yes, very often inadequatly level of replacement thyroid hormones, and/or low vitamins (especially common with Hashimoto's) and/or gluten intolerance

See on previous post you had dose of Levothyroxine reduced relatively recently

Have you had blood tests since? If so add results and members can comment

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24hours prior to test, delay and take immediately after blood draw. This gives highest TSH and lowest FT4. (Patient to patient tip, best mentioned to GP or phlebotomist)

Is this how you do your tests?

Poor conversion of FT4 to FT3 is extremely common with Hashimoto's. Absolutely essential to test FT3

Are you on strictly gluten free diet? If not ask GP for coeliac blood test and vitamin testing at same time

DIO2 gene variation is common too. Other genetic variations can affect Thyroid results too

Private testing of DIO2 only available (unless in Kent )

thyroiduk.org.uk/tuk/testin...

bluehorizonmedicals.co.uk/t...

[Marz]

Have you had your FT3 tested as well as the FT4 ? T3 is need in every cell of the body - trillions and trillions - for good metabolism and for your body to function well.

At the top of the page here - click onto Posts and look for a recent one by DippyDame - it may help explain a few things in the link posted. 😊 Clicking onto the name will take you to the post !

[Sylvia22 in reply to Marz]

When I went to see endo he said my T3 was good. Can’t remember what it was. Will have a look at the link. Thank you

[Marz in reply to Sylvia22]

It will be declared good even if just in range - pity you didn't have a copy of the results. Hope reading the link helps you ... 😊

[Sylvia22 in reply to Marz]

Yes. Last night my Daughter and I were looking at articles about Amydula therapy It is said to be very good at retraining the brain and consequently helping Fibromyalgia CF

And ME. Do you know anything about this.

[Marz in reply to Sylvia22]

Amygdala - meaning Walnut in Greek ! I have not read or heard about Amygdala therapy - would that be for people having suffered trauma ?

[Sylvia22 in reply to Marz]

It is called the Gupta Programme. Yes as he believes that many of us sufferers get stuck after stress and trauma. I have had quiet a bit of this in the past as have many people. Google it and have a read.

[Marz in reply to Sylvia22]

I am sure he is right - and many Docs talk about neuroplasticity these days. I follow Dr Perlmutter a Neurosurgeon in the US. I have not read every word of the Gupta link but I get the drift.

It may be worth considering that there are more receptors for T3 in the Brain than any other part of the body - followed by the gut - then heart etc ... So we need good levels of T3 so there is enough to go around the trillions and trillions of cells. So if T3 is low it will be like spreading a teaspoon of butter on a whole load of bread - impossible Many people talk about Fibro being due to T3 not being able to get into the cells too - so check out Impaired Resistance to Thyroid Hormones. Not only fibro but many other conditions too ...

[Sylvia22 in reply to Marz]

Going to check this out a bit more.

[MariLiz]

I believe there is a link as I have both, I also have Pernicious Anaemia, another autoimmune condition. I think if you have one, you are likely to get more.

[Sylvia22 in reply to MariLiz]

Makes you sick doesn’t it.

[MariLiz in reply to Sylvia22]

Certainly does! You get thoroughly fed up with dealing with so many symptoms, and being uncertain which condition is causing them! Or even if they might be due to the medications you’ve been given?

[Sylvia22 in reply to MariLiz]

Feel worn out at moment. Hey ho

[MariLiz in reply to Sylvia22]

Take care, hope you have a better day tomorrow!

[Sylvia22 in reply to MariLiz]

Hi thanks. Feel little better today. Going to see GP I am going to have a rant about them reducing my dose.

[Hpbr]

Have you watched this video. It's a pearl. Sadly Dr Lowe passed away, but this video is very helpful and his message lives on.

thyroiduk.org.uk/tuk/relate...