Hello, I would really appreciate some help please.
I was diagnosed with hyperthyroidism late last year, put on 15mg of Carbimizole which was subsequently reduced to 10mg and then 5mg.
I flipped to under-active but carried on with the carbimizole at 5mg a day but I experienced anxiety which got too overwhelming I had to stop work. I had never experienced anxiety in my life before so that has been quite scary, feeling like I’m losing my mind.
As a result of the anxiety I decided about 2 weeks ago to stop taking the the carbimizole because, whilst I feel it helped my physical symptoms for a while, I also feel that it caused the anxiety by disrupting things with my thyroid.
So I am now looking for someone who will help me heal naturally, and I would be really grateful if anyone knows of a good natural endocrine doctor / naturopath / holistic endocrine practioner / herbalist etc. who can help me do this.
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Lucy-D
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Were you actually tested for having Graves' disease by testing TSI or TRab antibodies?
We see many people with early stage Hashimoto's misdiagnosed as Graves
For full Thyroid evaluation you need TSH, FT4, TT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12 as these are very often too low. Ca cause symptoms in their own right or upset Thyroid as well
Unfortunately you can't get TSI or TRab antibodies tested privately
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
If TPO and/or TG antibodies are high this is most likely Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease). Though you can get high TPO/TG antibodies with Graves
About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .
I wonder why you can't get TRAB or TSI privately? Seems like there's a gap in the market there, if anyone from Medichecks or Blue Horizon is reading this?
Do you have your initial and most recent blood test results, and when were the latter taken ? From your dose of 15mg, it doesn't look as if you would have been very overactive at the beginning.
Assuming this was definitely Graves' the usual advice is to remain on antithyroids such as Carbimazole for 12-18 months, which is thought to give the best chance of achieving remission. The chances of achieving remission at the first shot are around 50%.
Were your results in the under-active range for more than one test ? It's quite difficult to get the dose of carbimazole right because the Graves' makes your thyroid a bit unpredictable - the disease naturally goes through phases of relapse and remission, so it's not particularly unusual to have results which are in the hypo range due to over-medication, and these can normally be sorted out by reducing the dose of carbi.
If you're going to start anything new, as SlowDragon says, I would definitely get a new set of tests. As you're still theoretically being treated for Graves', you may get them on the NHS. If you haven't discussed your anxiety with your GP and endo, it would also be worth doing that.
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Graves’ disease medication help????
Graves disease
Looking for a private doctor to treat underactive thyroid in London, Surrey or Kent. 
Endocrine Nurse appointment but no plan in place plus weight loss
Any good Doctor/endo in Belfast area
