Some advice: Hey I’ve just been diagnosed with... - Thyroid UK

Thyroid UK

141,243 members166,489 posts

Some advice

Sweenco profile image
8 Replies

Hey

I’ve just been diagnosed with Hashimoto/hypothyroidism and picked up my medication today Levo thyroxine,I’ve been feeling awful for weeks anyway when’s the best time to begin taking this I’ve read a few people saying first thing in the morning and a few saying last thing at night doctors says it doesn’t really matter any advice would be appreciated 👍

I tend to feeling really crappy in the am shaky sick weak if it makes any difference?

Thanks

James

Written by
Sweenco profile image
Sweenco
To view profiles and participate in discussions please or .
Read more about...
8 Replies
SeasideSusie profile image
SeasideSusieRemembering

Sweenco

All you can do is experiment and find what suits you best.

Always take your Levo on an empty stomach, one hour before or two hours after food, with a glass of water only, no tea, coffee, milk, etc, and water only one hour each side. This ensures nothing affects it's absorption. If taking your Levo at night and you have your main meal in the evening, make sure you leave 3 hours before taking Levo.

Any other medication or supplements should be taken 2 hours away from Levo, some need 4 hours.

As you have Hashi's, you can help reduce the antibodies by adopting a strict gluten free diet and supplementing with selenium l-selenomethionine 200mcg daily. Keeping TSH suppressed can also help reduce the antibodies.

Gluten/thyroid connection: chriskresser.com/the-gluten...

stopthethyroidmadness.com/h...

stopthethyroidmadness.com/h...

hypothyroidmom.com/hashimot...

thyroiduk.org.uk/tuk/about_...

Hashi's can cause gut/absorption problems which can lead to nutritional deficiencies. It would be wise to ask your GP to test

Vit D

B12

Folate

Ferritin

keeta profile image
keeta in reply toSeasideSusie

Hi lovely totally agree with seaside suzie .but i take so many b4 i go to bed for RD .i take them in the morning but i also have a sickly stomach so make sure i eat something an hour later. Xx

Sweenco profile image
Sweenco in reply toSeasideSusie

Hey

Thanks for the advice, I had thought about the gluten as I’m also having stomach problems aswell bloating etc so it might be a good shout.

Anything to make me feel better 😀 it’s horrible so many symptoms 🙄

I think I’ve had symptoms for years with a few prolonged bouts of illness in between but always had the spaced out foggy head tiredness tinnitus eye floaters for as long as I remember.

Thanks

James

Judithdalston profile image
Judithdalston

It doesn't matter, once it builds up in the body it has a long half like so will be available for the 24 hours till your next dose. You might find it easier to consider it in relation to when you eat and drink, and sleep. If you take levothyroxin you should leave an hour before eating, taking calcium( milk, yoghurt, cheese etc), caffeine or other drugs and supplements, or if you do eat etc then wait at least 2 hours ( possibly upto 3 hours for women who digest slower) till you take your levothyroxin. So if your likestyle allows you to take your levothyroxin very early well before breakfast that should be ok, similarly could be at bedtime. Take lots of water with the thyroxin. Many of us take it in the middle of the night as we get up for the loo. If you take supplements like Vit D or iron beware taking your thyroxin within 4 hours of their digestion- good idea to go with spray/ drops for Vit D as ingestion via the mouth is not so problematic re length of time before taking T4, or other pills. So it's up to you, getting into a good habit not to forget it, nor ingesting it with items that can hamper absorption.

shaws profile image
shawsAdministrator

Don't believe the doctor. Did he tell you that food interferes with the uptake of the hormone? No, I expect is the answer. Few doctors are experts these days with regard to hypo and symptoms. Before the blood tests and levothyroxine were inntroduced all doctors knew all symptoms and we were given a trial of NDT. (natural dessicated thyroid hormones).

Most find a.m. dose more convenient i.e. when we get up with one full glass of water and wait an hour before eating (usually by the time we get dressed etc and hour has elapsed).

If you find a bedtime dose best, make sure you've last eaten about 2 to three hours before. Also take dose with one glass of water.

If you are having a blood test next day and take an a.m. dose, miss dose and take after test. If you take a bedtime dose, miss this and take after a.m. test and take as usuall the same day at bedtime.

These procedures give the best outcome.

Sweenco profile image
Sweenco in reply toshaws

Hey

Doctors not the best tbh 😂

I’ve had a few illnesses over the years and was told I had pvfs every time because my bloods were all normal but i always remember I was always told my thyroid was borderline every time. So I’ve been feeling awful for weeks this time bloods done same outcome test again in 4 months so I asked what my last to test results were 6 months ago my tsh was 5.5 which I now know to be high then 2 weeks ago it was 11.5.....he wanted it retested in 4 months and I was 11.5 that’s how good a doctor I have 😂

Anyway I made him test me properly and low and behold I got a very sheepish call from him telling me I was right and my immune system is attacking my thyroid(or the other way round).

If I hadn’t said something I’d still be feeling awful and no further forward .....doctors 🙄🙄🤣

shaws profile image
shawsAdministrator in reply toSweenco

One of our doctors (now deceased) has stated (more or less that there incompetence) that patients are in a Parlous Situation due to the ignoreance of the medical profession.

He stated that with their reliance of blood test results and ignoring clinical symptoms (modern-day doctors know none and wont diagnose by them) we are put in a Parlous Situation.

We definitely can believe that. I believe that everyone on this forum knows far more (eventually) that any Endo or GP.

jimh111 profile image
jimh111

Coffee and bran have a substantial effect on levothyroxine absorption, other foods little effect. Morning or evening are both fine, as your doctor says it doesn't really matter. Just be consistent and then you dose can be adjusted accordingly.

Not what you're looking for?

You may also like...

some advice

just has the private blood test done after having borderline results with gp this year. Both...

Hoping for some advice

Hello, all. Having read through some of your questions and posts, I feel that my scenario/question...
overtherain profile image

Need some advice?

Hi I'm Stacey I'm new to this . I was diagnosed with under active thyroid last September and given...
Stace3 profile image

I need some advice?

Hi, this is my first time here and I want to ask for some advice. I’m 19 and from my recent blood...
borahae profile image

Was hoping for some advice please

Didn't really receive any advice from my previous post...
Jefner profile image

Moderation team

See all
SlowDragon profile image
SlowDragonAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.