Levothyroxine symptoms : I have sub clinical... - Thyroid UK

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Levothyroxine symptoms

Rozh profile image
Rozh
14 Replies

I have sub clinical hypothyroidism and was started on 50mg Levothyroxine two weeks ago. Since starting I have had tingling in both hands and, irregular heartbeat. Saw dr yesterday and been told to stop medication.

I’m really worried. Anyone else had these symptoms.

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Rozh profile image
Rozh
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14 Replies
SeasideSusie profile image
SeasideSusieRemembering

What brand was it? If Teva then a lot of members had side effects from it.

As all tablets have fillers with the potential of side effects, you could ask to try a different brand.

Rozh profile image
Rozh in reply toSeasideSusie

It’s Almus Levothyroxine 50mg

SeasideSusie profile image
SeasideSusieRemembering in reply toRozh

OK, so Almus and Activis are the same. You could ask to try a different brand.

In the UK we also have

Wockhardt - 25mcg only

Mercury Pharma

Teva

So you could ask for a different brand, or you could drop down to 25mcg which might be a better starting dose if you are sensitive, you could build up slowly.

Rozh profile image
Rozh in reply toSeasideSusie

Thank you.

My Dr yesterday just stopped altogether.

He said as I was sub clinical sometimes you don’t need medication, as my THS was 7.6 raised but t3t4 were normal. He throughts are that medication was sending me hyperthyroidism.

Just wondered if anyone had the same symptoms.

SeasideSusie profile image
SeasideSusieRemembering in reply toRozh

He wont know if you are 'hyper' unless he tests.

With a TSH of 7.6 and symptoms then subclinical was correct and starting you on Levo was correct.

Some people do have a shaky start when beginning Levo, two weeks isn't very long.

However, as I said, you may be sensitive and need to start on a lower dose, or you may be reacting to fillers and need a different brand.

FancyPants54 profile image
FancyPants54

I'm only speaking from my own limited experience here, but I'm seemingly sensitive to this stuff so I would say start lower. 25mcg a day for 6 weeks and then get a retest. And avoid the Teva brand. That really did me in! Horrid stuff. I didn't expect a problem. I just went to get a prescription refilled and took whatever they gave me. Now I'm down as Wockhart only so that I always get the same brand.

If you still have the tingling and irregular heartbeat on 25 a day, drop down to 25 every other day for a few weeks. That is how I actually started.

Rozh profile image
Rozh in reply toFancyPants54

Thank you.

Did you get irregularly heartbeat?that is what is worrying me.

Information in medication tells you to contact Gp if you get irregular heartbeats. This freaks me out.

FancyPants54 profile image
FancyPants54 in reply toRozh

Well I'm menopausal as well (on HRT) so odd heartbeats go with the territory. I can't remember if the Teva made them worse or not, sorry.

But if you lower the dose and they are caused by the Levothyroxine, the chances are they will stop.

Rozh profile image
Rozh in reply toFancyPants54

I’m on two medications for high BP and also have chronic kidney disease stage 3.

So really worried about irregular heartbeat. Just fed up with not feeling well.

Thank you for your reply.

SlowDragon profile image
SlowDragonAdministrator

Ask GP to test thyroid antibodies, plus vitamin D, folate, ferritin and B12

Low B12 causes pins and needles

If you have high thyroid antibodies this is Hashimoto's also called autoimmune thyroid disease.

For full evaluation you ideally need TSH, FT4, FT3, TT4, TPO and TG antibodies, plus vitamin D, folate, ferritin and B12 tested

See if you can get full thyroid and vitamin testing from GP. Unlikely to get FT3

Either retest after 6 weeks taking 50mcg every day

Or after 6-8 weeks NOT taking any

Private tests are available

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results

Some people need to start on Levothyroxine very slowly. A TSH of 7.6 is not sub clinical, its hypothyroid.

Rozh profile image
Rozh in reply toSlowDragon

I have been tested for antibodies and I was negative.

Rozh profile image
Rozh in reply toSlowDragon

My T4 T3 were normal that’s why he said I was sub clinical . He told me that they would not be normal if full blown hypothyroidism.

I’m confused now. Thank you for your reply

SlowDragon profile image
SlowDragonAdministrator in reply toRozh

Many people find low vitamin levels precede full blow hypothyroid

If GP won't test these, would recommend getting full private tests

GP will probably only have tested TPO antibodies.

silverfox7 profile image
silverfox7

What is your doctor calling 'normal'? He may just mean you are in range but itswhere in the range that is important. Get into the habit of asking for a copy of your results and ranges so you can see your progress or ask for help with reading them. The ranges are important as they differ from lab to lab.

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