Dupuytren’s : Does anybody else with an under... - Thyroid UK

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Dupuytren’s

13 Replies

Does anybody else with an under active thyroid suffer from Dupuytren’s?

Di

13 Replies
helvella profile image
helvellaAdministratorThyroid UK

Hylda,

Only a couple of old posts mention it:

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu...

Possibly it is also mentioned but mis-spelled a few times! :-) More difficult to find.

Derekssister profile image
Derekssister in reply to helvella

Hello Hylda,

I had two operations for Dupitrons (sorry about the spelling) in 1991! It is still affecting me, I don't think anything cures it indefinitely. I have had hyperthyroidism for years and had a complete thyroidectomy in 2016 due to thyroid cancer. I have had T1 diabetes since I was 4 years old and it is very common with that! I am due to have injection therapy very soon. That should see me through! I don't think it is relative but i also have MS, who knows though?

Carol (dereks sister)

in reply to Derekssister

You have certainly been in the wars. Aside from the Dupuytrens and the under active thyroid I also have AFib, but am lucky in that I don’t suffer nearly as much as a lot of people on the forums

Di

Derekssister profile image
Derekssister in reply to

I know, it makes you realise how lucky we are despite what we have!

Thanks, the Dupuytrens forum seems to think there is a connection and I have it in both hands.

Di

Spareribs profile image
Spareribs

Yes I have Dupuytren's contracture, but it hasn't got bad enough to operate.

Does yours affect your hand movement?

My hands haven’t clawed up yet, but can no longer place my right hand flat on a surface so yoga is out.

Di

Spareribs profile image
Spareribs in reply to

Were you advised stretching exercises or physio, or offered injections?

On one of the above posts some folk were saying B12 helps (& Vit D) - but I see from your profile you supplement them already. From my old post I must have had it for 15 years (age 42!) but luckily it's not a problem at present, or perhaps it's because I'm adequately medicated (thyroid wise). I didn't know there was a Dupuytrens forum....

Edit: Last year I discovered lumps under the arches of my feet (plantar fibroma which are apparently related to Dupuytren's) so I wear shoes with an inch heel.

in reply to Spareribs

The International Dupuytren Society has a forum

My right hand just has a cord from the base of my little finger. The consultant said the angle of bend wasn’t bad enough to warrant an injection yet. My left hand just has blobs from my middle finger and little finger but it is not nearly so awkward except when my hands lock when I’m reading a paper.

Di

Spareribs profile image
Spareribs in reply to

I wasn't offered treatment & haven't been back about it - here's the NHS treatment guidance (as you've probably seen) - it does say non-surgical treatments "most effective if used before the condition becomes severe".

nhs.uk/conditions/dupuytren...

Best wishes Jane :D

Kalicocat profile image
Kalicocat

Yes, I have it in my right hand beneath my right index finger and I think it may be in both feet but I haven't had that confirmed. I also have type 2 diabetes.

serenfach profile image
serenfach

I have had Dupuytrens in my right hand since I was young. It was operated on in my 30s but came back and I cannot put my hand flat now. I also have it in my left foot. The GP is not interested but now arthritis is joining in in my hands. Soon I will look like a witch with claws instead of hands! I was only diagnosed with Hashi's about 6 years ago (overdose of contrast medium). I also have vitiligo, so the auto immune bugs are obviously having a party!

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