Graves

[Demonkitten666]

I saw my consultant yesterday and he took me off my carmizbole without warning and he never even looked at me I was just wondering if it is normal

[shaws Administrator]

Those who have been prescribed will respond. It does sound very unprofessional to not, at least, tell patient why they have decided and what patient should/may expect.

[Trophygirl]

Hi demon kitten.I too have graves. and they stopped my carbimazole after reading my last blood test said I've gone into remmision.I'm trying to get hold of my results so I can put them on here .so many wonderful people and good advice given take care xx

[Fruitandnutcase]

I’m in remission from Graves. I was treated with block and replace but one day I went along for a consultation and next day I stopped everything. At that point I was taking 40mcg carbimazole and 100mcg levothyroxine every day.

My bloods were tested the week before I saw the endo but I wasn’t expecting to stop, on the other hand I had been told that my block and replace treatment would take a year and that was exactly a year after my treatment started so I suppose I shouldn’t have been surprised.

Get a hold of all of your blood test results. I never ever had my T3 checked or my vitamin D so ever since I have checked my own using Blue Horizons Thyroid 11 Home fingerprick blood test which covers everything I wanted to know. I also went totally gluten free about three years ago to try and reduce my thyroid antibodies (I did!) so it’s worth considering that too.

[Demonkitten666 in reply to Fruitandnutcase]

Thank u I will try to get my bloods to see what they are

[Silver_Fairy]

He really should have explained why he was stopping the Carbimazole and what he expected to happen next.

Hopefully, you have gone into remission. How do you feel?

[Demonkitten666 in reply to Silver_Fairy]

So far I feel ok but only been off them a day but I have a lot of other problems with my health

[Silver_Fairy in reply to Demonkitten666]

Do you know if they are related to the Graves? May I ask what the other problems are?

[Demonkitten666 in reply to Silver_Fairy]

Type 1 diabetes crumbling disc and legs that swell for no reason and lump in arm that my Dr said is normal

[Silver_Fairy in reply to Demonkitten666]

Have you had your VitD tested?

I think you should get your last results and put them on here. Im betting you were overmedicated on the Carbimazole and you've gone hypo - it happens so much!

Did he advise when you should get tested next?

[Demonkitten666 in reply to Silver_Fairy]

He said end of March to be tested again