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Thyroid UK
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I am 19, I was diagnosed with Hypothyroidism, and pcos before I was 10 years old. I've been taking synthyriod 50-88mg (always adjusting) since I was in middle school. I have a check up with my doctor on thursday, and I just looked at my TSH levels from the blood work I just had Thursday and this is what my levels are at (dead serious) 136.600 . I'm flabbergasted,, anyway I was wondering is there any Other way I can go about getting my thyroid back under control, rather than taking synthyriod? At this point, I'll take shots if I have too.

8 Replies

Hi EmbraceYourself. That's shocking! Are you in UK? Is Dr. not open to trying other kinds of medication besides just Synthroid?

What is PCOS?


US, and no, I see her again on Thursday, I was going to discuss with her other medicines, but I wanted to see if there where other medicines to help out there first. Also, Pcos stands for PolyCystic Ovarian Syndrome


Poly cystic Ovary Syndrome.


Do you have PCOS at present? I believe you are in the USA as we don't provide Synthroid in the UK.

Your doctor will look seriously at your blood tests as you are obviously not on sufficient.

PCOS can be halted/disappear if your thyroid hormone dose is optimum.

Blood tests for thyroid hormones have to be at the very earliest fasting (you can drink water) and allow a gap of 24 hours between your last dose of synthroid and the test and take afterwards.

Always get a print-out of your results with the ranges for your own records and if you have a query post them for comments.

At 19 you are old enough to read and learn about your condition so that you are healthy and active. Post questions and members will respond. We can get well but we need good doctors who know what they are doing and not ones who only look at the blood test and not the patient and twho don't ake clinical symptoms into consideration as they, the doctor, is supposed to relieve all of them with optimum thyroid hormones.

Your doctor should also test B12, Vit D, iron, ferritin and folate. Deficiencies cause symptoms too.



I've done some research, but I just wanted to see what others had to say, before my appointment on Thursday


Doctors know few things about hypothyroidism and members will help. It is just 7.30 a.m. in the UK, so early for answers.

Re PCOS. I don't have a link but it can be sorted with thyroid hormones in an optimum dose. I have given you a copy below. I don't think you've been given an optimum of thyroid hormones as the cysts should disappear with optimum doses.

The problem with hypothyroidism which has many clinical symptoms doctors are apt to reat the 'symptom' as unconnected to hypothyroidism which it usually is but will give the patient another prescriptions for the remaining symptoms:-

"Multiple Ovarian Cysts as

a Major Symptom of Hypothyroidism

The case I describe below is of importance to women with polycystic ovaries. If

they have evidence, such as a high TSH, that conventional clinicians accept as evidence

of hypothyroidism, they may fair well. But the TSH is not a valid gauge of a woman's

tissue thyroid status. Because of this, she may fair best by adopting self-directed

care. At any rate, for women with ovarian cysts, this case is one of extreme importance.

In 2008, doctors at the gynecology department in Gunma, Japan reported the case

of a 21-year-old women with primary hypothyroidism. Her doctor referred her to the

gynecology department because she had abdominal pain and her abdomen was distended

up to the level of her navel.

At the gynecology clinic she underwent an abdominal ultrasound and CT scan. These

imaging procedures showed multiple cysts on both her right and her left ovary.

The woman's cholesterol level and liver function were increased. She also had a

high level of the muscle enzyme (creatine phosphokinase) that's often high in hypothyroidism.

Blood testing also showed that the woman had primary hypothyroidism from autoimmune


It is noteworthy that the young woman's ovarian cysts completely disappeared soon

after she began thyroid hormone therapy. Other researchers have reported girls with

primary hypothyroidism whose main health problems were ovarian cysts or precocious

puberty. But this appears to be the first case in which a young adult female had

ovarian cysts that resulted from autoimmune-induced hypothyroidism.

The researchers cautioned clinicians: "To avoid inadvertent surgery to remove an

ovarian tumor, it is essential that a patient with multiple ovarian cysts and hypothyroidism

be properly managed, as the simple replacement of a thyroid hormone could resolve

the ovarian cysts."[1]


1. Kubota, K., Itho, M., Kishi, H., et al.: Primary hypothyroidism presenting as

multiple ovarian cysts in an adult woman: a case report. Gynecol. Endocrinol.,

24(10):586-589, 2008.


Thank you for your time, and the research you put in. The only reason I'm in the UK group, is because I couldn't find one for the US, but hey we are all people right?!. Your information has actually opened up some good questions for me to ask my Endocrinologist. I never knew my Thyroid could be related the a cysts that formed and burst on one of my ovaries a year ago. I went back and review my blood work, and it also shows the levels on my liver is elevated. If I was able to take a picture of my lab work, I would post it on here, to get a better input.


We welcome any members from any part of the world. :)

We are all in the same boat as regards ignorance by the medical profession who know no clinical symptoms and pcos is one of the many.

You can post your results but I'd put them on a new post, giving an idea of your hypo background as so many questions come in daily.


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