I am new and my name is Hazel.: I have been on... - Thyroid UK

Thyroid UK

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I am new and my name is Hazel.

Hazel80 profile image
3 Replies

I have been on 150mcg Levi for the last 10years and now my dose has been reduced to 125mcg 1month ago and now 100mcg. Can anyone explain this.

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Hazel80
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humanbean profile image
humanbean

Have you had blood tests recently? Your doctor will probably have reduced your dose because he/she thought your TSH (Thyroid Stimulating Hormone) was too low.

There are several reasons why your TSH may have dropped, but there is far more to treating the thyroid correctly than just measuring the TSH. It isn't an accurate way of dosing anyone, and it wouldn't surprise any of us here if you were now under-medicated.

Ask at your surgery for one of the following :

a) Online access to your GP medical records including blood test results. Ask for access going back as far as possible. You will need to take proof of identity with you. The receptionist may have to ask the doctor for permission first so don't be surprised if you have to return the next day to check that permission has been granted. You will be supplied with some codes and a website address which you need to register to see your records. Once you have this access you can see your blood test results for thyroid related tests and any nutrients tests you've had. Copy them into a new post and ask for feedback.

b) Many surgeries still don't allow access to GP records online, even though they are supposed to. If that is the case, ask the receptionists to print out the results from all the blood tests you've had done for the last couple of years. You will still need to show proof of identity. You may be charged a small fee for the paper and the ink. It shouldn't be very much. If they insist on charging you £10 or more, be aware that, by law, you can get a copy of your entire electronically held GP record for £10, so refuse to pay for just a few sheets of paper for that price, come back here and ask for help on what you should do now.

Hazel80 profile image
Hazel80 in reply to humanbean

My doctor said that one of my test results was high.

humanbean profile image
humanbean in reply to Hazel80

If he lowered your dose then I'm guessing that it was your Free T4 that was high. But I really, really am just guessing, and we need definite information before we can possibly say anything helpful.

Please ask for access to your GP records or ask for copies of your blood test results. You need to get the actual test results plus the reference ranges.

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