3.27 TSH with Thyroid antibodies can't get treatment :0(

[Juliec666]

Hi my name is Julie I'm 37 and been suffering with a neurological problem for 5 years. I've always suspected a thyroid issue on top but my TSH level is always in normal reference range i do however have a diagnosis of hashimotos (2015) due to high antibodies but my endo chose the monitor and wait and see approach. Since then my TSH levels have increased from 1 gradually to now 3.27 my GP is on my side but my endo refuses to treat me so my GPs hands are tied. My symptoms are....

Severe fatigue (even with solid 8hrs sleep every night)

Headaches and chronic joint and muscle pain

Hair falling out and dry skin

Brachycardia (heartrate 53bpm up to 72 when feeling ok)

Low basal temp

Plantar fasciitis

Irregular (frequent) heavy painful periods (gynae can't find a reason for it)

Dizzy spells and brain fog

Mood swings

Excessive weight gain even with low cal diet.

What do i do next? I really can't catry on like this.

[Helsan]

Goodness! My thyroid Consultant says he worries if TSH is over 1. Ask for a second opinion it is your right.

[Juliec666 in reply to Helsan]

I have she(GP) is writing to my old endocrinologist in a hope he will say differently. Current endo says they will only treat me if i fall pregnant!! 😠 i have enough to deal with from my neuro condition without all this on top. I'm sick of fighting doctors all the time.

[greygoose]

Some of your symptoms could be due to low nutrient levels. Given that hypos tend to have low nutrients, and you are hypo with a TSH of 3.27, it would be a good idea to ask your doctor to test vit D, vit B12, folate and ferritin. But, don't rely on her to correctly interpret the results, doctors know nothing about nutrition. Post the results and ranges on here, and let members help you.

[Juliec666 in reply to greygoose]

Thankyou I'm not due to see her for another 3 weeks so i will see what she says then. I have had those tests previously and endocrinologist said everything was fine with them bit i didn't get the levels just took his word for it. I do take multivitamins and iron tablets and try to sit in the sun for at least half hour (when we have some)

My endos range for hypo is 0.4-4.85 so they are adamant my TSh is normal even tho they can see it's not normal for me as it is continually rising as it was 1 the first time it was tested in 2012.

[greygoose in reply to Juliec666]

Yes, but we all know - except endos - that the ranges are wrong! They should end at 3. Which is why so many people are suffering needlessly.

You are just wasting your money on multivits, you're not going to get anything out of them. They certainly won't address a true deficiency. And, iron shouldn't be taken unless you know you need it. So, if I were you, I would stop both until you can get tested.

[Juliec666 in reply to greygoose]

Ok...thankyou for the info. I started taking the multivits with iron when i just felt sooo drained they do help slightly i can feel a difference when i don't take them. But i will stop them a wait to see what my GP says next apt. Hopefully she'll have been in touch with my old endo by then for a 2nd opinion. If they still refuse to treat my thyroid what would i do next? This has been ongoing for 2 years already I'm not sure where i go next. I've spent 3 years fighting a misdiagnosis for a spinal fluid leak (i was right my neuro was wrong) and it's been a rough ride if i now have to fight my GP over something else i think her patience may start to run out with me.

[greygoose in reply to Juliec666]

If you want accurate blood test results, best to stop the multivit. Several things in them can affect blood test results.

I would think it would be more a case of you losing patience with your GP! Because she's not listening to you. After all, you were right when the neuro was wrong. What further proof does she need that the patient knows best? It's her job to get you well, and - indirectly - that's what you pay her to do. Never mind her tried patience, that's what she's there for.

[Juliec666 in reply to greygoose]

Problem is my GP agrees with me but claims her hands are tied because the endo says no treatment is necessary hence why she is direcly writing to my previous endo. Guess all i can do is wait til she has a reply from that.

[greygoose in reply to Juliec666]

Well, I'm not sure about the hands tied thing. It seems to me that their hands are tied when it suits them! I think, she probably feels out of her depth with it, and that's why she needs the endo's backing. Even so, it's still her job to make you well, whatever it takes. And, if you have to fight, so does she.

[Hidden]

As GG says nutrient deficiencies go right along with Hashimoto's and checking out B12, folate and ferritin will go some way to getting to the bottom of it. It may be that there is more than one thing going on at the same time and unfortunately there are many cross over symptoms with deficiencies so you have to check them out one by one. However, see if you can get an iodine loading test to see if you are deficient. Iodine deficiency can cause heavy periods, weight gain, low basal temperature, hair loss and dry skin.

[greygoose in reply to Hidden]

Only because an iodine deficiency affects thyroid hormone production. It just means she's hypo.

[Juliec666]

Arghhhhhhh!!!!!! My Tsh is now 4.58 and endo still refusing to medicate me and says my symptoms are not necessarily thyroid as i have a complex neurological condition so pinned them all on that!!! Even tho i know most of them are thyroid.

Fatigue, irregular heavy periods, weight gain, inability to lose weight, hair loss, dry skin, ridged nails, muscle cramps and pains, plantar faciitis, constipation, hoarseness and difficulty swallowing.

I can't keep fighting these dumb ass doctors 😭