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Thyroid UK
91,953 members106,212 posts

Just don't feel right

Hi I wonder if you could help me I had a total thyroid removed in 2010 when I was around 16 years old I have been to many doctors and they all say my levels are normal even though I don't feel right is there anything I could do or ask for or talk to as no one seems to understand. ?? Living in the U.K. I feel people don't understand I currently take levothyroxine 150mg

5 Replies

Get copies of your recent blood tests, ideally including FT3 (often not tested) plus vitamin D, folate, B12 and ferritin

If you have the results now, add them here. If you need to get them from GP then start a new post once you get them.

GP can not refuse to give them to you, under data protection rules, though they may make a small charge for printing out.

You may be under medicated, or have low vitamins. Once these are improved/sorted as you have had had thyroid completely removed you may well benefit from addition of T3.

Thyroid UK have list of recommended thyroid specialists, email louise.roberts@thyroiduk.org.uk

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IF you're FT3 wasn't tested may be worth doing a private blood test including T3 Rt3 etc. (My GP can't test for T3 - against 'the rules'). You might have trouble converting t4 into t3.


Hello you are not alone. I had my thyroid removed in 1988 and always felt ill after. The thing is we look ok and Drs say just take this little pill and you are fine! No! There are too many of us now speaking out, self treating, paying for additional tests etc. You have to do your research which can be difficult when you are not up to it. From experience the longer you leave it the longer the recovery! There are also specific Facebook pages for people without a thyroid. You will always get great advice and support here! Good luck and do not be daunted!


What are these fb groups xx


Look at bluehorizonmedicals.co.uk they have good private testing. Not cheap but may be worth it to get a clear picture of all your levels plus Folate, Ferritin, Vit D, B12

Thyroid plus 11,12&15 are all good comprehensive tests. May be sensible to get one that includes RT3

Drs will tell us our levels are within range but their ranges are so broad because they do not want to supplement half the population. Always get a copy from the secretary and post results on here if you are unsure.

Folate and Ferritin need to be mid range.

Vit D 60-100

B12 600+ anything under 500 can start to cause neurological changes.


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