Hello I'm new to all of this really, I was recently diagnosed with Hashimotos. My TSH was 97, which I believe is high?? I'm seeing the endocrinologist tomorrow and just wondered what to expect and what they could do to help me. Hoping this gets better.
Many Thanks
If you have been prescribed levothyroxine your TSH will soon go lower and although some symptoms will go quickly others may linger for months.Every 6-8 weeks you should have a blood test after which your levo nay be increased. The aim is to get TSH to about 1 or below. Also important is Free T4 and Free T3 plus folate,ferritin,B12 and Vit.D. All of which should be tested.For advice here always post the test results with the ranges which are shown in brackets or with < > signs .Unfortunately it seems many endos are diabetes specialists and know little about thyroid problems.
I made a list of anything I wanted to tell the endocrinologist or questions I had after my first and most unfortunate consultation
. The first visit I was too poorly to do much more than get there and I got an awful understudy who left me on a woefully inadequate dose of Levothyroxine claiming he found me euthyroid (20mcg levothyroxine with a very high TSH and my thyroid having completely expired!), and he mucked up my appointment for ultrasound - my mother and sister both had had thyroid cancer - so I was very worried about that. I remember hanging around looking at all the people there thinking my god they look ill. It was just a short session with him basically like a meaningless chat. I think I was weighed and the nurse did blood pressure, they might have taken blood too.
The next time I was more prepared and saw the endocrinologist proper who was very good, sorting out the ultrasound (no cancer phew and virtually no thyroid either a shrivelled non-functioning tiny thing), getting my dose upped and acknowledging I was still overtly hypothyroid and there was a way to go to get me back on track.
I hope you do not get an initial consultation like mine and see a competent practitioner. If you can get a list together I would do so. My endocrinologist seemed impressed I had managed to do this and listened to all of my points giving helpful answers.
It took 9 months to get optimised my TSH hit 110 at worst so pretty similar to yours. I suffered terrible heart pains so my dose had to be very low initially and increases were conservative. Hopefully they can get yours up much faster. I never really felt well when supposedly optimised but I trust you will. You will stay under the care of the endocrinologist until they get your TSH down to normal levels, hopefully well below 1 - they aimed for c.0.5 to 0.25 for me). Levo suits my sister and suited my mother but not me. I eventually switched from Levo to NDT and that has done the trick. I feel pretty good now especially since my depression has gone completely after being plagued by it for decades, so in some ways I feel better than I ever did.
Good luck 🍀☘️🍀
Recent hypothyroidism diagnosis
Recent diagnosis, advice appreciated 
Hashimoto diagnosis 
Hashimoto diagnosis 
