Getting it Wrong on Chronic Fatigue Syndrome - Thyroid UK

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Getting it Wrong on Chronic Fatigue Syndrome

wellness1 profile image
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This article in the NY Times refutes the conclusions of a study that advocated psychotherapy and a gradual increase in exercise as the most effective treatment for CFS. Whether you have been diagnosed with CFS or not, you may find this interesting if you are a student of the treatment and understanding of chronic illness.

"In short, this episode has damaged public trust in science."

tinyurl.com/musdmyr

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wellness1
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humanbean profile image
humanbean

I've become aware in recent years that people with ME/CFS are treated appallingly by the medical profession. And in many ways the UK has been in the forefront of the torture, all in the name of saving money - although they will never admit that is the motive.

wellness1 profile image
wellness1 in reply to humanbean

That is terrible humanbean, and no excuse for it. It must be an incredible challenge for people with ME/CFS to act as their own advocates and challenge the system they feel is letting them down. (some thyroid patients would empathise :)) Interesting that one of the researchers who challenged the study suffers with CFS and had the expertise and access to challenge the prevailing wisdom.

humanbean profile image
humanbean in reply to wellness1

I don't have ME/CFS myself, but I do read a forum for people that do. There was an old post I read there recently from someone who went to A&E with a broken rib that was sticking out of the skin. Because the person had ME/CFS a doctor and a nurse ordered him/her out of A&E insisting that people with ME/CFS didn't need treating because they were just making it all up. The person had a carer with them, and neither the person with the broken rib or the carer could get these so-called medical professionals to even look at the rib. They kept on insisting it wasn't real because people with ME/CFS make everything up.

I just wish the person who wrote about this had continued his post to let people know how it all ended, but sadly not.

wellness1 profile image
wellness1

Horrific!

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