Does any one have Fibrous Dysplasia?

I have FD in my R ULNA HUMERUS AND C2 SPINE? I make new bone, however it doesn't mature and become rigid. It's similar to Mcune Alright syndrome ( cherubim )in children. It makes the bone prone to fracture. Not really something you'd really want in your second neck bone. I have PA, hypothyroidism, just curious if there is anyone else in this fix?.

2 Replies

  • What drugs are you on for PA and hypo? And have you always had the Fibrous Dysplasia?

  • Hello, b12 jabs for PA and Thyroxine for Hypothyroidism. Fibrous Dysplasia occurs during conception.

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