Am i Hashi

Hi Folks

I was tested for Graves and Hashi privately 4 years ago and the results where normal, 4 years on it has been a merry go round of doctors,consultants, trips to a and e, and am now waiting to have ct scan of arteries for blockages.

I seem to go for periods of time where i feel well and then i seem to be very hyper where i cant relax always on the go cant sleep very well at all, in fact i just cant rest even though i feel so tired.

Then i become totally shattered no energy but throughout it all i always have trouble with constipation and very itchy skin.

Plus there are times when my palpitations come on so bad and then ease right off, any thoughts guys would be greatly appreciated.

Thanks so much

Dotti

9 Replies

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  • Have you thought about chronic infections (Lyme Disease, viral infections, mycotoxin illness, candida), or the possibility that you may have a mast cell problem. All of these things can cause the symptoms that you describe. We chased the thyroid route for years, but about three years ago discovered that her thyroid problems were merely one of the multiple symptoms caused by the above. This was discovered by a specialist in the USA who is now unraveling years of misdiagnoses and mistreatment and my daughter is gradually recovering.

    You may wish to see this article from the well known US thyroid expert Mary Shomon for starters - verywell.com/lyme-disease-m... Two years ago I posted this article on Facebook. Two years on and still this link is not recognised or even investigated by the medical profession, thyroid "experts" or thyroid charities in the UK. Shame on all of them!

    Let me know if I can PM you more information.

    Jane x

  • Thank you so much

    Dotti

  • There are other conditions such as anaemia which have overlapping symptoms with hypothyroidism:

    nhs.uk/conditions/Anaemia-i...

    Has your ferritin, folate, B12 been tested? If so, what are the results?

  • I would suggest a new set of blood tests. TSH, T4, T3, Free T4, Free T3 and antibodies.

    The test should be fasting and the earliest possible. NHS sometimes don't do the ones requested if they deem the TSH is 'normal'. That is meaningless if we've symptoms. Sometimes, especially in the UK, the 'wise' men who make the guidelines have deemed it has to reach 10 before being diagnosed and considering other countries prescribe when it's just over 3 - you can see why thousands remain very unwell and undiagnosed.

    Ask GP for B12, Vit D, iron, ferritin and folate.

    Always get a print-out of your results, with the ranges and post for comments.

    On this forum the words 'normal' 'fine' o.k. are to be ignored if we still have clinical symptoms.

    If GP wont do them you we have labs which will do so and you get a small discount if you quote the Code No.

    Are you taking thyroid hormones? and dose? Hashi's does cause swings of hyper/hypo.

  • Yes i take levo 75mcgs and have done so for 16 years, my GP is bloody useless i guess i will have to go private for the blood tests

    Dotti

  • Yes........If you can not get GP to do these tests, then like many of us, you can get them done privately

    thyroiduk.org.uk/tuk/testin...

    Blue Horizon - Thyroid plus eleven tests all these.

    This is an easy to do fingerprick test you do at home, post back and they email results to you couple of days later.

    Usual advice on ALL thyroid tests, (home one or on NHS) is to do early in morning, ideally before 9am. No food or drink beforehand (other than water) If you are taking Levo, then don't take it in 24 hours before (take straight after). This way your tests are always consistent, and it will show highest TSH, and as this is mainly all the medics decide dose on, best idea is to keep result as high as possible

    Vitamin and minerals levels are very important, but standard NHS thinking, doesn't at the moment seem to recognise this.

    You will see, time and time again on here lots of information and advice about importance of good levels of B12, folate, ferritin and vitamin D, leaky gut and gluten connection to autoimmune Hashimoto's (& Grave's) too.

  • "Results normal" doesn't mean much. I encourage you to demand printouts from all the lab tests you have, and post results here. If you can't get them, then you should have the full thyroid panel TSH/FT3/FT4/rT3/TPOAb/TGAb as well as TSI for Graves.

    It is difficult to get diagnoses for other problems like West Nile or Lyme, from a GP. What I have noticed is that Kent Holtorf (holtorfmed.com) twitters a lot about these rarer problems, which most GPs consider to be so rare (like orphan diseases) that they don't even think about them. So you might want to thumb thru his web.

    I had the "wired and tired but can't sleep" syndrome for years. It was a combination of gluten-triggered Hashi's, hypothyroidism, enteropathy, deep nutritional deficiencies (including hypoproteinemia), and adrenal deficiency + arrhythmia.

  • Thanks again everyone for your help and advice

    Dotti

  • Hi! I have some of those same problem as well.

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