Is There A U.S.Thyroid Site?: I wasn't aware that... - Thyroid UK

Thyroid UK

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Is There A U.S.Thyroid Site?

crone profile image
17 Replies

I wasn't aware that this was a U.K. site. Is there a U.S. site that is similar? It would be more relevant to me.

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crone profile image
crone
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17 Replies
humanbean profile image
humanbean

There are a fair number of members who are from the US, and a few have said that they haven't found an equivalent in the US.

I hope you find a forum that fits your requirements. In the meantime, perhaps you could mention you are from the US in your posts. To some extent we can tailor our advice and suggestions to where people come from.

It's annoying for UK members if they write a long post about how to cope with the NHS and UK systems, only to be told it is irrelevant because the post is from a US member.

So being up-front about it makes it easier for you and us, and you are more likely to get relevant help. But I hope you find a forum that fits your requirements more closely. :)

crone profile image
crone in reply to humanbean

First,lets get something crystal clear,I had no intention of deceiving or misleading anyone.I simply was not aware that it was such a big deal to announcey country of origin. Since there is no U.S. thyroid site,the second part takes care of itself.I have no reason to post anything here.

humanbean profile image
humanbean in reply to crone

I wasn't having a go at you. I didn't think you were trying to deceive or mislead. Most people don't announce their country of origin because for a lot of advice it isn't relevant. But if you are asking for information that could differ from country to country then it is important to say where you come from.

I sometimes mention I'm from the UK if it alters the information I'm asking for or giving.

SeasideSusie profile image
SeasideSusieRemembering

Would Mary Shoman's forum on about.com be any good for you? That was the first forum I found about 20 years ago, US based but there were so many Brits visited (due to lack of UK forums at the time) that they started a UK sub-forum. I think the UK forum has probably long gone but there was a lot of support back then.

Have a look around and see what you think (it looks like the different sub-forums are listed at the bottom) thyroid.about.com/cs/orgssu...

crone profile image
crone in reply to SeasideSusie

Thank you from the U.S.

I guess you are already familiar with the Stop the Thyroid Madness? It also has a forum for members only.

crone profile image
crone in reply to

Yes I am but thank you for your thoughtful reply.

in reply to crone

OK, I hope you keep posting here, as it's interesting to hear about what is going on elsewhere. I am not in the UK either (although in Europe), so I understand your predicament.

crone profile image
crone

Thank you so much,I will explore these.

Misscshell24 profile image
Misscshell24

There is a fb Hashi's support group, although thyroid UK has been far more helpful. But might be worth looking into. I don't think you have to have hashimotos to be join the group. They have other info that is good for thyroid issues.

I am in the US, part of the year and in the UK for the summer. My mom, who has hashi's is in the U.K. As well as the rest of my family. Aside from the time difference, I prefer this site over the others I have found.

You might find some links to support groups on sttm or hypothyroid mom or I could send you some of the fb group links, if you're interested. If you find any worth while, please let us know.

crone profile image
crone in reply to Misscshell24

Thank You Misscshell24,

I do have it,so I will check the group out.Someone out there must know somewhere to get T-3 !

milkwoman profile image
milkwoman

I am in the USA and I can honestly tell you that this site is the BEST site for information. No US site comes close. I have learned so much in the last 2.5 years since I was diagnosed.

The folks here are very kind and generous.

Is there a specific question or concern that you have? There are many of us here who are from the states. Perhaps we can help?

crone profile image
crone in reply to milkwoman

Dear milkwoman,

Thanks for your response.Having had this condition for 30 + years,there is not too much information that I am lacking about my particular issues.I am however trying to find a online prescription pharmacy that I can obtain T-3 from.The overseas ones want you to do bank transfers and all that rigmarole that I have no expertise in,nor am I willing to find out how. If you know of any that just take plain old credit cards as payment,please let me know. Thanks.

milkwoman profile image
milkwoman in reply to crone

Oh, you probably should have asked that from the get go. There are very informative folks here and I know many acquire their T3 online.

I can't help you there. When I was taking T3, I was getting it via prescription from a local compounding pharmacy. I take it your endo (or GP) won't prescribe T3? I'm very fortunate that mine will. It just seems that I don't need it as I feel better on levothyroxine alone. It did take some time, however, for me to find the right dosage as well as the right levo. I was undermedicated for awhile but now I feel pretty good on 100 mcg/day. I am also very sensitive to fillers and that was my issue for quite some time. It is all sorted out now as I'm on a levo brand that only has gelatin (Tirosint).

You may want to post your T3 question as a new post. I'm sure some body will have an answer for you.

Good luck!

helvella profile image
helvellaAdministratorThyroid UK in reply to crone

There are few, if any, sources of T3 without a prescription who accept any Visa or Mastercard payments. The card companies have ensured that if they find out that such products are being paid for on their cards, they terminate the merchant agreements.

crone profile image
crone in reply to helvella

Not what I wanted to hear but thanks for the information helvella.

helvella profile image
helvellaAdministratorThyroid UK

In days past, the Yahoo groups hosted several thyroid groups - many USA-focussed. Can't say I'd willingly use anything from Yahoo ever again, though. After numerous problems with my account and then them finding so much information leaked.

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