New report! Please help me to get the dose. - Thyroid UK

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New report! Please help me to get the dose.

SohanFrankyy profile image
14 Replies

Hi,

This is my new test result after stopping T4 for few days and then reducing the dose to 37 mcg, while doctor told me to take Carbimazole by stopping T4(which I did not do as per suggestion from this forum)! It seems like I have no conversion problem. What should be my dose now? I am feeling worst than before so I made the test quickly.

Thanks.

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SohanFrankyy
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14 Replies
greygoose profile image
greygoose

I'm not surprised you feel ill with that TSH! But why do you think you have no conversion problem? You don't have an FT4 for comparison. You could try increasing your dose to 50 mcg. But you should not increase by any more than 25 mcg at any time, and wait six weeks to test.

SohanFrankyy profile image
SohanFrankyy in reply togreygoose

I was told that if my FT3 is in the middle of the range then it means I am converting well. I am not sure about that. Last time I tested, both of my FT3 and FT4 were above the range.

Anyway, my test result is saying that my TSH is above 100, right?

Thanks for your reply.

humanbean profile image
humanbean in reply toSohanFrankyy

You do realise that a high TSH means you are very hypothyroid? In other words your thyroid is very under active and you need thyroid medication desperately.

Why on earth has your doctor mentioned Carbimazole to you? That is given to people who are hyperthyroid (over active), and such people would have a TSH which was zero or barely above zero.

Your serum FT3 is in the lower half of the range. Most hypothyroid people feel best with it in the upper third or upper quarter of the reference range.

Have you previously been hyperthyroid (i.e. over active)? That would have showed with a very high FT3 (i.e. well over the range) and very low or zero TSH.

SohanFrankyy profile image
SohanFrankyy in reply tohumanbean

No, I have never been hyperthyroid until I took T3+T4. Then I stopped T4 for few days and started to take a reduced dose of 37 mcg. Hence, my TSH has gone over 100!

Thank you.

Clutter profile image
Clutter in reply toSohanFrankyy

SohanFrankky,

I think you should resume 75mcg Levothyroxine and retest in 6-8 weeks.

FT3 is mid range but that is likely to be because such high TSH is absolutely flogging your thyroid to produce hormone. You should be aiming eventually for TSH around 1.0 or lower, FT4 in the upper range, and FT3 towards, or in, the upper third of range.

SohanFrankyy profile image
SohanFrankyy in reply toClutter

Thank yo for the reply mam.

SohanFrankyy profile image
SohanFrankyy in reply togreygoose

Besides, I used to have 75 mcg of T4 before I tried the T3+T4 combination and went into overdose.

Jazzw profile image
Jazzw

The doctor you are seeing is so far out of his or her depth, it's hard to imagine they're actually qualified. So let me get this straight, your TSH has gone from 0.21 to over 100 in a month? Good job you didn't take the carbimazole. Is he/she trying to kill you? Where are you - is this in the UK??

humanbean profile image
humanbean in reply toJazzw

Couldn't agree more, jazzw!

Clutter profile image
Clutter in reply toJazzw

Jazzw,

SohannFrankky's doctor prescribed Carbimazole after Sohann's FT4 and FT3 went over range after self-medicating. He is not in the UK or Europe. I agree that the doctor is out of his depth and it would be good if Sohann found a new doctor.

SohanFrankyy profile image
SohanFrankyy in reply toJazzw

I was suspicious about the doctor. So I posted about his prescription in this forum last time. Everyone suggested me to not to take Carbimazole and I am glad I have listened to that.

Thank you.

humanbean profile image
humanbean

Another point...

If you have an under active thyroid then you get prescribed levothyroxine. Let's say you end up on 100mcg levo per day. Let us imagine this is too high a dose for you. Your TSH will probably go very low. This does NOT mean you have gone hyperthyroid and need carbimazole. All you have to do is lower the dose of your levothyroxine slightly, perhaps 25mcg or 12.5 mcg per day.

SohanFrankyy profile image
SohanFrankyy in reply tohumanbean

Yes. This is what last time everyone was saying. But, my TSH has gone so up very quickly which is abrupt! I think I will take 75 mcg of levo and will see a new doctor after 5-6 weeks. I am really feeling serious headache, dizziness, and a constant ringing sound inside of my ear!

Thank you.

Anthea55 profile image
Anthea55

It's been known for test results to be skewed by something else that has been taken. I think I remember a report that biotin had caused problems like that. Does anyone else remember that?

Just found it ---

healthunlocked.com/thyroidu...

It might be worth getting your test repeated after you've been off supplements for a day or so (but not changing your medication). My private doctor asks for 48hrs off supplements before tests.

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