Hi, I have not been on here recently, however I have just been told that I have leukaemia, I have had a spate of kidney infections and they took my blood count after having my 3rd in 6months. as you can imagine I have been scared stiff, as I have had 2 people die from it in my family and my uncle has it at present. anyway after a 2 week wait I finally got to see the consultant, she informs me I have neutropenia which is a low white blood count, and a blood disorder which means my bone marrow is not working. I have been reading up on symptoms, which include sore mouth, bad teeth, sinus problems, and breathing difficulties, and more on list, and with genetic neutropenia stunted growth. Mostly all these things I have suffered with my entire life, except breathing difficulties. They do not know what is the cause yet, and I am going for numerous tests to find out. What I would like to know is if I have had this my entire life, how on earth did they not find out sooner, when I was little and found out I had an underactive thyroid for growth problems, or even when I had my 3 children by caesarean section. ? or is it something else like my kidneys that are failing that have caused it. I also read that taking medication for hyperthyroid can cause it. If anyone has any information I would be most grateful, I daresay they will find out later, rather than sooner, but if I have some knowledge I will be able to help myself, as I don't trust the doctors anymore than I can throw them, especially my own useless article who knew since January this year my blood count was low and did not do anything about it. It was only when I pointed out to another doctor my family history that he decided to send me for consultant appointment. Angry and very scared.
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