Facial pain on levothyroxine

[hellodolly123]

I'm new here does anyone suffer from facial pain on levothyroxine?

[Sleepydreamer85]

Where abouts on your face? Since being on Levothyroxine, I have found my TMJ pain worse. It goes from my ear and down my jaw line. I had to have physio on it. It may have just been a coincedence though I dont know.

[Fiona8 in reply to Sleepydreamer85]

That's interesting I get facial pain. Will follow this

[FlippinThyroid]

Yes, I get a neuralgia and tooth and tongue pain, I get enlarged tongue and bite it constantly, by mistake. Also, eye pain, behind the eye. And, pain of the sinus draining behind the ear, on the right side.

[MariLiz in reply to FlippinThyroid]

An enlarged tongue can be due to low B12, mine was. I do get facial pain, neuralgia type pain too.

[Auntyp62 in reply to FlippinThyroid]

Mine was the same as your, diagnosed low b12 and on 8 week injections now symptoms have completely gone

[TSH110]

Prior to being diagnosed as hypo I used to get terrible pains in my salivary glands ESP if I drank any vermouth or cinzano! I also used to feel like my teeth were marching around my head - horrible and had all sorts of tooth and gum ache also got terrible and frequent headaches like dyhration ones and cluster type but no migraines. Levo did not suit me but did sort out that lot. I switched to ThyroidS and feel much better all round but stil have a few niggldy things like cramp and sudden bouts of tiredness but not bad on the whole hope the pain resolved soon oh and I got tha ttmj thing others mention jaw ache and mid alignment for years

[purplejuicy]

I have noticed I get the feeling of pressure in my jaw up by my temples, never had that before levo. Also suffering with very bad vertigo at the moment, it wakes me up at 4am when I'm not even moving?!

[culejules in reply to purplejuicy]

There is a virus going round nationally which causes virtigo type symptoms. My husband has had it for almost 9 weeks, but most people reckon it usually lasts 2-3 weeks.

[kj1234 in reply to purplejuicy]

"I have noticed I get the feeling of pressure in my jaw up by my temples, never had that before levo"-- I have this exact same issue, my jaw tension is better in the morning, but gets worse as the day goes by. I noticed it after starting Levothyroxine after 4 weeks..I'm at 8 weeks now and this jaw tension is bothering me. Did you find a solution to this jaw issue?

[purplejuicy in reply to kj1234]

sorry to hear this - glad i am not the only one though so means there's a pattern here. well since i wrote that reply (2 years) i am now self medicating with T3 along with a reduced dose of T4 and i take LDN which was prescribed to me - I must say i've not noticed much jaw pain like i used to have. However, i am going through a long drawn out flare up caused by fluoride, stress and a change in my medication (plus adding DHEA as per my Dr advice) and i have noticed the odd squeezing/spasm feeling by my temples/upper jaw on both sides. I really have no idea what the cause is still though or what really helps. its such a minefield.

[clown]

WOw! I have terrible facial pain I never thought it may be from thyroxine! What makes you think it is connected?

[Littlebee]

Yes I get facial pain. Before I started on T4 I had awful pain in my jaw and when I'm under medicated I can feel pain in my face and jaw. I'm taking T3 now and I can feel it wearing off by a strange tingling and coldness in my face.

I believe that everyone is different and this is one of the ways I feel any under medication.

[Poorlysic]

I get pain in jaw both eyes have developed twitch never ad befor. I also get sudden cramps all over my body even my throat area. I get shakes in hands all my gp is asking me"what does it stop you doing"well actually it's making me suicidal I feel so ill and there seems there is nothing to be done. Any help out there?

[Hidden]

I have awful jaw pain and as I have multi-joint osteoarthritis my dentist has put it down to that. But up until ten years ago I had chronic Migraines and was forever going to the dentist with what I though as toothache. Consequently one of the dentists pulled out the rest of my teeth. Yet I still have what feels like toothache. As well as shooting pains in my head, vertigo, shaky hands, pain all over my body, not just in my joints and my feet lock up when walking, on occasion. Never would I have thought the medication was the cause of it all!

[Granny56]

I also get intermittent facial nerve type pain mostly shooting down the middle of the left cheek and sometimes behind the left eye. I always associated it with my slipped disc ... Perhaps I should think again. I will follow this thread with interest.

[Veggiequeen]

Hi It is interesting to see that other people have similar symptoms to me. I became thyrotoxic on Levo. The main symptom I had was a horrendous pain in my right eye and became sensitive to light and sound. I stopped taking it and the pain went. I also suffer from vertigo occasionally. Most recently I had been taking Tiromel as I take t3 only. I am prescribed t3 but had a reaction to a batch so bought Tiromel. The pain in my eye started again. I stopped taking it and the pain went away. It turns out that I may be allergic/sensitive to an ingredient in the Tiromel. I am also sensitive to non latex gloves and they contain the same ingredient. So I am getting patch tested. I have Horners Syndrome in my right eye. So it could be that being Hypothyroid causes it or it could be an allergy like mine is. One thing is for sure this is not a straightforward health problem. I have no idea why these issues always seem to manifest in my eye. Have most recently been prescribed Thybon Henning T3 as the Mercury Pharma went up to £300 per 28 tablets and the health board changed to this brand. So am once again looking at the excipients and hoping all will be ok.

Carol

[decembersignup]

Sometimes yes, along with other symptoms that come and go. It could be side effects, it would be an infection trying to take control and not getting hold of it. If you watch every ache and twinge you will become a hyponchondriac with no quality of life - only ever thinking about, worrying about or talking about that. I know plenty who do it with their various illnesses. It is no way to live. My advice to you having spoken to a lot of people with illnesses and having had this for a while is not to keep dwelling on it and turning each little thing into a big thing, concentrate on work, family, friends, fun and living. We have one life, just one, and it disappears a little at a time day by day, do not waste it on worrying and being negative.

Find your way to move forward. I sometimes get glue ear, I used to go to the doctor and spend hours trying to phone them and chat to them and see them and get antibiotics for it, it would just come back anyway, so I worked out a way to deal with it myself, far quicker and more effective. Research and research, there are no short cuts to knowing all the answers, just hours and hours of research. Find the best sites and devour the information there till you are knowledgeable in our own right, like a sponge soaking up water. In the end it is better, quicker and easier than asking someone each time - especially as that person may get it all wrong.

[mistydog]

I suffered with Trigeminal Neuralgia when on levo. The doctor gave me Carbemazepine to deal with the pain, which worked, but turned me into a zombie and I honestly don't think I really recovered my words 100% (Probably 98%). Try NDT and see if it helps. I've not had it on that.

[helvella Administrator Thyroid UK]

hellodolly123 ,

I had some facial pain - before levothyroxine.

Will never be sure, but it seemed to improve as I took 1000 microgram methylcobalamin. At first, very regularly, then less often. What seemed convincing to me was that whenever I started to feel a slight twinge, I'd take another methylcobalamin - and it seemed to help within an hour or two.

Now I just occasionally take some. But I am also now on levothyroxine (112 micrograms a day). And I never get pain, hardly ever even a start of a twinge.

Never had a B12 test, nor any other test which appeared to point at low B12.

[Maryh1]

I was told I had trigeminal pain. That's pain on the right side of face. Haven't had it lately. It comes and goes.

[jacrjacr]

this is interesting....a while back when i went from 90mcg of ndt to synthroid t4 only, the dr put me on 150 grains of synthroid and i started having temple sides by the eyes sharp pains, dull pain behind the eyes, and back of the head cluster headaches and yet test didnt show i was over medicated.....they even did two mri's......turns out that i only needed 88mcg at that time.....when dr backed me back down...all of it went away and labs showed fine.....so i always assumed it was over medicated....

yet recently.....i started taking iron bec of low normal ferritin and hair loss and i dont know if it connected but..i have started having weird ache on side of neck not near the thyroid, temple pressure here and there and wondering......what is this.....still on t4 only and yet now considering thyro gold ......i think it is something in the synthroid t4 only....maybe? it comes and goes.....and my last two labs i had showed my tsh at the bottom of normal meaning borderline too much if i take more and yet my ft3 and ft4 are not in the top range of normal.......yet i have no reverse t3 issues and no antibodies.....

[AnitaApple]

I don't get pain but I used to get numbness and tingling which was usually on one side of my face - seems to have gone now but just noticed buzzing in my ears grrrrr!