Thyroid test normal but going down hill

l have been hypothyroid for 20 years. I have recently had my daily dose reduced from 75mg to 50 as a result of my GP advising l had gone slightly hyper. Thyroid test repeated 4 weeks later and GP confirmed my results are normal. I feel anything but normal since the reduction. Symptoms include exhaustion unable to pick up my energy even needing to sleep in the afternoon, dizzy spells and loss of balance, impaired cognitive ability, poor memory and now excruciating migraine attacks. My GP said it could be depression and offered Seretonin which it definitely is not and l refused it. My GP has also referred me for Chronic Fatigue. I maintain a healthy vegetarian diet, don't drink or smoke. My GP won't budge and l don't know what to do. My cognitive and physical health are rapidly going down the pan. Please can anyone advise.

14 Replies

  • What blood test results is the doctor relying on?

    Why not simply order NDT via the web and self treat

    Pm me for details

  • Hi, thanks for your response must appreciated. Sorry but I have to admit I am pretty ignorant and have a lot to learn. I am going to get copies of my last two blood tests so will post them to give more information.

    What is NDT and which website. Lots for me to learn so apologies 😊

  • Learn as much as you can. Start with the ThyroidUK website which is a mine (goldmine?) of information even if you don't live in the UK

  • Thank you. For years l have blindly taken what I have been told before realising GP's don't really know.

  • NDT is natural dessicated pigs thyroid which is much more complete than the chemical levothyroxine which is only t4

    Wheras NDT has t4 t3 t2 t1 and calcitonin

    Unless because your vegetarian you object to trying it many many people find its the only way they feel well

  • Thank you so much for suggesting this. I am vegetarian so would struggle with it being an animal byproduct. However I fully appreciate how dreadful thyroxine makes you feel and how it also brings bad side effects with it and understand why it would be a good alternative

  • Subhudra,

    It will help members advise if you post your last two sets of thyroid results with the ranges (figures in brackets after results).

  • Thank you Clutter for your prompt reply. I will contact my surgery and request them today. Many thanks

  • Doctors' "normal" = the average feeling-unwell of undermedicated persons

  • Yes, l'm beginning to see that Elijii, good point.

  • Hi subhudra,

    Have you had your Vit B12, Folate, Vit D and Ferrittin checked? It is extremely important to have good levels of all 4 for Thyroid Hormone Replacement to work well.


  • Hi Jose651, Thank you for your reply. I have asked for copies of my last two blood tests so should know more then. I started talking a daily multi vitamin for the immune system containing C, Zinc, Selenium, D and E. I have had two days of continuous severe migraine so don't know if it's linked to starting the multivitamins. Holding off until I get copies of my test results which I will put up to see if anyone can help. Thank you for your advice.

  • Ah Ok, not everything can be put down to Thyroid disease, as I found out last year.

    B12def/PA and Vit D def can cause a lot of your symptoms, like loss of balance and Dizzy spells etc, so please ensure that they have been checked lately.

    J 👍

  • Many of your symptoms seem like LOW B12 - check out the website below. B12 Deficiency is more than a vitamin deficiency - can be a neurological condition once the B12 is below 500 - scroll down and have a look ....

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