Finally a diagnosis..

[Molliemoo1]

Hi all 

After sending my blue horizon results to my private endocrinologist, he has written a letter to my GP in which he says "she clearly has subclinical hypothyroidism"

I'm really happy because the NICE guidelines specifically refer to" women with subclinical hypothyroidism":

"All women with a new diagnosis of subclinical hypothyroidism who are pregnant or planning a pregnancy should be started on levothyroxine therapy while waiting for referral to a specialist."

I'm going back to my GP one more time with this letter. If gp still says no to levothyroxine then I'm out. I've done everything I can so I'm going to change practices. 

I really want to be prescribed thyroxine on the NHS before we try to conceive again so that I'm properly monitored. 

Does anyone think I should formally complain about my GP if she still says no? 

[Hidden]

That's great! Well done for pursuing this. Yes, try it one more time I don't see why they shouldn't take note of this. It's good your thinking ahead and organising things. I'm taking levothyroxine but my levels are but lower than yours so the nhs would defo not give it to me. However, they are taking my blood tests every four weeks because they know I'm taking levothyroxine privately and because I have the antibodies. So I will continue taking the levo privately and blood tests done by nhs due to my antibodies as your TSH is more likely to rise that antibody negative women. I didn't even have to put up a 'fight' for it, they said if you don't mind having regular blood tests you may feel like a ginuea pig. I really don't mind that. But Nhs should monitor you in your pregnancy anyway due to your antibodies and risk of developing a raised TSH. Good luck with the GP again.

[Hidden in reply to Hidden]

And also because it runs in my family

[Clutter in reply to Hidden]

Orangepie,

You asked earlier should you increase dose to 50mcg and I suggested you discuss with your GP.  I'm really shocked your GP isn't prescribing the 25mcg. By all means increase dose to 50mcg.

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I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

[Hidden in reply to Clutter]

No I'm being prescribed this privately and he is is not willing to increase unless my TSH is still raised. Because it is 1.73 I think he will just continue with the 25mcg. I'm worried about losing more weight on a higher dose. My BMI is very very low so I am nervous of this.

[Clutter in reply to Hidden]

Orangepie,

Have you had weight loss since starting 25mcg? 

I've always had low BMI apart from a 3-4 year period when I went up 2 dress sizes in 9 months and had some curves.  In hindsight it was probably the onset of Hashimoto's.  I was diagnosed with Hashimoto's after I lost all the lovely weight and curves.  I lost 7kg when I was switched from T3 to Levothyroxine.  I've been using Extra Gainer protein shake for a few weeks and have visibly gained although I haven't weighed myself yet.

Let us know how your consultation goes.

[Hidden in reply to Clutter]

I have a consultation today.

[Clutter]

Molliemoo,

Ask for a copy of the endo's letter to be put on your medical file, and point out the NICE guideline again.  If you are still refused Levothyroxine make a formal complaint to the senior GP or practice manager that your GP is not complying the recommendation of your endo who is a specialist, and is ignoring NICE guidelines.

[Molliemoo1 in reply to Clutter]

Thanks I'll do that and I'll change surgeries as I feel like the other GPs at the practice are just backing my gp