What To Do If Your TSH Is "Normal" And You Are ... - Thyroid UK

Thyroid UK

140,917 members166,037 posts

What To Do If Your TSH Is "Normal" And You Are Anything But! Plus a Printable Letter for Your Doctor! Izabella Wentz

13 Replies

thyroidpharmacist.com/artic...

Read more about...
13 Replies
humanbean profile image
humanbean

I've never seen an official reference range for TSH of 0.2-8.0 μIU/ml. Eye-watering and scary!

Clutter profile image
Clutter in reply tohumanbean

HB,

Someone posted earlier with TSH 9.21 but no treatment!

humanbean profile image
humanbean in reply toClutter

Doctors used to be held in high esteem. When did they become sadists? *Holds head in hands*

Clutter profile image
Clutter in reply tohumanbean

HB,

When they started rigidly adhering to guidelines/blood tests instead of being guided by them in conjunction with clinical symptoms?

humanbean profile image
humanbean in reply toClutter

Very likely. Since guidelines and blood tests became the the only thing that mattered doctors no longer seem to bother learning symptoms of different problems. I'll never forget reading on here a post from a member who was told that fatigue wasn't a symptom of hypothyroidism. It makes me feel a bit weepy just thinking about that.

Clutter profile image
Clutter in reply tohumanbean

HB,

I'm still cross with myself for saying NO! when my lovely trainee GP asked whether I'd lost much hair when I meant YES!   I had a bag of hair I was going to put in the garden for birds to nest with :(

Pastille profile image
Pastille in reply toClutter

Aww :'((

Naomi8 profile image
Naomi8 in reply toClutter

Given this situation I don't like to think what state I'd be in now without this forum.Now that I have been helped to source good quality reasonably priced T3 & NDT online I no longer feel held hostage to this mindset.Thank heavens for TUK & the internet.

Thank you admins for your patience & commitment.

Pastille profile image
Pastille

Amazing post! Thanks, I will be printing the letter x

Clutter profile image
Clutter in reply toPastille

Pastille,

The letter refers to changes in the USA ref ranges.  It won't be helpful to UK patients.

Pastille profile image
Pastille in reply toClutter

I'm still printing it. I need all the help I can get when I next see my gp. I have to explain why I have increased my dose from 100mcg to 125 mcg and I don't think it's going to be too easy. So I will take TUK link printout of TSH levels and anything else I can find ( do my own presentation in gp office )

Good luck xx00x00

humanbean profile image
humanbean

Although the results weren't as low as you have quoted, similar studies on Norwegians have shown up median levels of TSH between 1.3 and 1.7, the number rising with age.

eje-online.org/content/143/...

See the right hand half of Table 3 in the above link.

Not what you're looking for?

You may also like...

What to do if your TSH is 'normal' but you are anything but!

Thought this might be helpful for people as a back-up to their claims for decent treatment....
greygoose profile image

Do you need any treatment with high A-TPO but normal TSH?

I requested my first thyroid test in Nov 2014. Back then I didn’t know anything about thyroid and...
Tginger profile image

If your T3 and T4 are normal and your tsh is still a little high, let's say 15 and you feel great, do you think it would be ok to stay on

your low dose? Do you really need to be within a certain lab range? I know they want it below 5,...
marymerry83 profile image

How to prepare for your doctor's appointment and What to do if you feel dismissed by your healthcare professional

I have seen a few people asking how to prepare for their doctor's appointments, but have never...
humanbean profile image