admitted it was a fictitious disease.
Before his death, father of ADHD...: admitted it... - Thyroid UK
Before his death, father of ADHD...
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greygoose
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shawsAdministrator
Thanks GG for this info.
You're welcome. 
How many parents have gone through so much trying to get their children better.
I know, it's wicked, isn't it! They just lie to us all the time, what with the fraudulent TSH test, statins and cholesterol, and now this!
How many kids have been stuck on powerful drugs they didn't need.
An awful lot, I think!
Maybe it has caused permanent brain damage and may never recover.
I Don't know about that. But it can't do any good, can it.
Goodness I hope not, there are so many. Kids of them.
Many endocrinologists seem to think a lot of us have fictitious symptoms!
Yup. Because they have no idea what the symptoms are!
I gave at least 6 endocrinologists a list of symptoms from the Pituitary Foundation article on what you should tell them. The PF must've published a fictitional article, & I didn't realise!
Double agree gg.
I don't know.... My son and daughter were both diagnosed with add inattentive type... But we later discovered the mthfr c677t mutation was the cause. My son *dramatically* improved with L-methylfolate supplementation.
Doctors only look at what seems to be broken and slap a bandaid on it. They don't dig to get to the biological root of problems. I'm very much looking forward to precision medicine and its prevention based methodology using the latest research in genetics and biology to provide what your body needs before its broken.
I'd tend to agree with that. A ten minute consultation for you and a series of ten minute consultations all day for your doctor sadly doesn't lead to 'getting the bottom of things' which is probably where the 'take a pill to fix the problems caused by another pill' comes about.
I don't know what to think about this . My son has had problems all of his life.His GP was always putting him on anti depressents or anxiety pills. I paid privately for him to see a specialist in ADDHD and he diagnosed ADD. My is now 50 years old and has had a hell of a lot of worries in his life. He is now on a low dose of medication and says his mind is much more focused. It has apparently taken years for Doctors to treat adult patients with ADD and I do not think this article does anyone any good as this condition has ruined my sons life up to now.
I Don't doubt your son has had problems, and I Don't doubt a low dose of medication (anti-D's?) helps. What we are questioning is the diagnosis - in other words, the name the doctor put on his problems. Just because a doctor says you have something, doesn't mean it's really true.
I honestly think it's a go-to diagnosis, like fibro or CFS. When they Don't know what is wrong, they pick a name out of a hat. Sometimes because they're really stumped, sometimes because they Don't care. It's the easy way out.
Has your son been tested for hypo? A lot of so-called psychiatric disorders turn out to be low T3.
Some time ago he was tested and it came back "Normal" . Which of course does not necessarily mean normal for him. I have mentioned that I have Hashimotos to his GP.
There are opposing theories all through medicine. I think genetics will help tremendously, especially because it is getting so much cheaper.. And ill people are contributing to genetic research voluntarily, which speeds up the process. They are finding a lot of genetic data that links directly to different problems. It will help a lot with more accurate diagnostics and better front line treatment.
My mom had crippling, medication, resistant, severe chronic depression that worsened year over year. I really wasn't sure she would make it. It was really horrible. But eventually they found several contributing factors, including the mthfr gene mutation, and treated them and she is happy for the first time. At 68, she now looks forward to waking up each day and planning her life. Medicine is changing and making diagnostics and treatment a bit better. Within 10 years I think medicine will be drastically different.
All the best to you and your son...
Jen
I think 10 years is a bit optimistic...
Perhaps, considering how slowly medicine has advanced in the past. However in the past we didnt have access to all the genetic data or the relayed fields... Microbiome, nutrigenomics, etc. And in the past studies were small cohorts of volunteers with one specific illness. Based on those volunteers biology/mutations, they got differing results without being able to determine why. However, currently, genetics research and disease correlation are drawing patients into their communities to help speed up the process by giving researchers access to more data and broader studies than ever before. Also, the u.s. presidents precision medicine initiative is due to kick off in 2016. They have a one million patient volunteer target. They will be executing precision medicine and studying the results. If it results in significant health improvement and disease prevention, insurance will be quick to adopt new guidelines. We'll see what happens.
Well, of course, if you're in the US, it might be different. But, here in Europe, doctors Don't want to learn new things. They say that what they learnt in med school is good enough for them and they haven't got time to keep up with new research.
There is a hope that new up and coming doctors will learn better in med school. But Don't forget that Big Pharma still holds the reins and the purse strings. And it's not in their interests to have people getting well!
You raise the key point... Money. Pharma isn't the only lever. Health care subsidies are the other. your governments NHS, and our insurance companies want to decrease costs and lean heavily on prevention to do that. *that* is why I think change will happen sooner than later. Pharma also stands to win if illnesses are caught sooner. Plus its likely that they will find new products to treat underlying disorders. As we catch them in every person, via genetics and biology analysis, the growth of populations of patients being treated will drive more pharmaceutical research and new medications to treat existing disorders and underlying disease and deficiencies that right now people don't even know they have.
Also, I'm sure your NHS as well as our health watchdogs, keep an eye on research and results and guidelines from other countries to ensure they are pursuing the best path to meet their goals (whatever those goals are.. Improve outcomes, reduce costs, etc(
Actually, it's not my NHS. I live in France. We have our own problems.
Oh my mistake! :'). I think this will change medicine in many countries. Just have to wait and see if it works out like that. I hope so. Too many people sick with many things or some undiagnosed long standing problem
Too right! And, another problem is, most doctors just Don't care.
Maybe... But, then again, maybe not. Personally, I Don't hold out much hope.
In the area of thyroid, I think we've gone backwards, rather than forwards.
As I'm nearly 71, it doesn't concern me very much, anyway. But I hope, for the sake of future générations, that you're right!
A big difference, I think, is that they're looking at a whole person and how things interconnect and have downstream effects. My suspicion is that thyroid disorders are a down stream effect of a broader autoimmune issue, which would explain why autoimmune diseases tend to clump together.
ADHD and ADD are along with bipolar, aspergers, tourettes and more, are now being connected to Thyroid. Did you get any thyroid bloods done Sylvia22 ? Just a thought.
I spoke to my son yesterday about this and he said he will ask the Doctor for a Thyroid Test Thanks for your input.
Sylvia22.
Please let me know if your Doctor agrees with the thyroid test as we have a child in our family with ASD
(anxiety is the main problem.)
OK
Being a Mom of an autistic son never gave him drugs. He is doing great in college. And I have to say his heart is so pure and sweet. He has come a long way. Main thing now is he is just not social which I hope doesn't hurt him in getting a job when he finishes school. I wonder if ADHD is over diagnosed. Thanks for all your info! xoxo Susita
I think it is very much over-diagnosed. Once they get a name like that, something for which there aren't any tests to prove one way or another, they can stick it on all the difficult cases they Don't know anything about, like they do with fibro.
Some kids / people just aren't social and that's just how they are. I've got two boys - I used to worry that one was a recluse - I used to joke that his. younger brother could have been born with a phone attached to his hand - he is the exact opposite but they are both ok.
The quiet one is just pretty self contained. In a way I'm pretty self contained too. If someone wants to be friends that's good but if not well I'm fine without them. In my case I sure it is because we moved around a lot when I was growing up - I went to seven primary schools - Only one secondary school though but it was too late for me by then.
We moved when my quiet one was seven and Mr Sociable was three but not since then, number one son was quiet long before that though.
Just accept yr lovely boy as he is - but yes, you don't half worry about your kids - and mine are grown up 😉
Any extremes are seen as abnormal, these days. So, if you're very quiet, or your very rowdy, you must be sick. It just psychiatry gone made. Psychiatrists are the pimps of the medical industry. (Am I allowed to say 'pimp'? My apologies if I'm not!)
He is a love Happy New Year to you!
Thanks nice to hear about other families....I like my own space and so does my husband who I believe has a bit of it all........ also my daughter. My son was so extreme hard to tell others the whole deal.......but he is doing so well I feel blessed......Luckily he is in a family that go's with the flow xo to all....
I wish him all the very best in life and you're right he is lucky to have a loving family who 'go with the flow' and who love him regardless.☀️
Thanks Fruitandnutcase xo
I think all those other illnesses listed along with ADHD, are thyroid linked, ADHD is connected with low thyroid, the excessive adrenaline, maybe ?
(mentions this on the Hormone Restoration website)
also people with hyper thyroid might have 'on the go' symptoms too.
Giving children ADHD drugs are probably masking over the root of the problem, just my thoughts, because a child in my family has a type of ADHD
(on the go symptoms/hyperactivity, anxiety, palpitations, cannot sleep at night and also has Low in range FT4 and high cholesterol.)
I think you could be right, Coastwalker.
Thanks for all the help from you all. This is a brilliant site.
Also thanks for all the sweet replies! xo
This article is pure bullshit why don't you actually cite any actual medical studies in the article instead of feeding innocent people with the wrong information? Saying that adhd doesn't exist is akin to saying that autism doesnt exist as there have been twin studies done that irrefutably prove that this is a real neurological disorder. You are a snake oil salesman praying on the weak and deserve to be banned from the Internet. Any parent listening to this and basing their decision of medicating their child based on an article found on the Internet deserve to be castrated in order for them to never have any more children. For God's sake people - you cannot be this easily fooled! Please listen to your Drs and not this quack.
If parents want to learn more about adhd and how it affects your child please watch this lecture by an actual Dr that has been studying adhd: youtu.be/SCAGc-rkIfo
To whom are you address your comments? The author of the article isn't on this forum. I didn't write it, just posted it because I thought people might be interested.
However, it seems to me that if the person who 'invented' the 'disease', admits that it was invented, and not real, I think we have to take notice of that. Don't you?
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