help and advice

I have been on 75mg of thyroxine for a while bloods are good and have hashimotoes .I never feel well,doctor and specialist think my levels are fine -doctor thought it may be cfs but another specialist thinks not .I feel like I'm going round and round and getting no help. All the time i have the same symptoms from day one .fatigue ,aggressive,hand and lower leg tremors,tingling in face ,fingers go numb,sore throat ,hoarse gravel voice ,itching skin, ringing in ears etc same as day one .I have a few weeks well then bang back to square one then i have to sleep for 2 weeks . what do i do. I have no life I work and sleep ,rest all weekend to go to work again..

2 Replies

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  • JK004, 'fine' usually means results are within range which isn't the same as optimal. If you post your thyroid results and ranges (figures in brackets after results) members will advise whether you are optimally medicated.

    Many Hashi members have benefited from 100% gluten-free diet which can help reduce Hashi flares, symptoms and antibodies.

    chriskresser.com/the-gluten...

    thyroiduk.org.uk/tuk/about_...

    Ask your GP to test ferritin, vitamin D, B12 and folate. Tingling, numbness and tinnitus can be due to B12 deficiency, and fatigue may be due to low ferritin &/or low vitD.

    b12d.org/b12-signs-symptoms...

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    I am not a medical professional and this information is not intended to be a substitute for medical guidance from your own doctor. Please check with your personal physician before applying any of these suggestions.

  • Could you post your most recent blood test results with ranges. People will then be able to help you.

    Have you had B12 - Ferritin - Folate - Iron - VitD tested - and where were your levels ?

    Never accept normal from your GP - that means your results are in range. Where they are in the range is most important - especially as you have auto-immune issues. I am betting your B12 is VERY low - which could be the cause of many of your symptoms.

    Gut issues - it is very important to heal the gut - you could try being gluten free or dairy free. It does not work for everyone but helps many.

    Explore ALL possibilities before accepting a CFS diagnosis. Once that is on your notes - everything will be blamed on that. It is a syndrome after all - meaning lots of varying symptoms making up the whole !

    Much more likely to be LOW FT3 and LOW B12 .... :-)

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