Would love some experienced advice

Hi, I am a 24 year old female and I was diagnosed with MEN2a aged 9/10. I never took the diagnosis seriously (hardly ever took my tablets, levo thyroxine 175mg) until aged 18. I take them everyday now and what a difference. However, I have read multiple things about supplements to take but when I spoke to my doctor he told me to stop taking them (vit D and Zinc)?! Could anyone recommend what to take?

I am aware that I am on quite a high dose but I still feel tired and depressed, getting out of bed I find really hard. I eat a relativly healthy diet but still struggle to loose weight. Everytime I mention this to the doctors they tell me to eat less calories and I feel a bit dismissed to be honest. I'm writing this post as a general plea for tips for healthy living and coping with the lack of energy. Any suggestions would be greatly appreciated because I feel like I've had enough of being like this!

Kindest regards,

:D

3 Replies

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  • Welcome to the forum, Hladblu.

    Have you had a thyroidectomy? Thyroidless patients often don't do well on Levothyroxine as they've lost the ability to produce T3 via thyroidal conversion and peripheral conversion via other organs isn't always sufficient. The addition of Liothyronine (T3) can be beneficial.

    If you post your recent thyroid results and ranges (figures in brackets) members will advise whether you are optimally medicated on 175mcg.

    Did your GP tell you to stop supplementing zinc and vitD because blood tests showed high levels?

    We advise members to have ferritin, vitamin D, B12 and folate tested prior to supplementing. Levels are often low/deficient in hypothyroid patients and it is necessary to know what the levels are to gauge appropriate doses to supplement.

    Without testing, it is safe to supplement 1,000mg vitamin C, 325-375mg magnesium (not oxide which is difficult to absorb), 15mg zinc which is synergistic with magnesium, B Complex vitamin, and a multi-vit which if it contains iron should be taken 4 hours away from Levothyroxine. Other supplements should be taken 2 hours away from Levothyroxine.

  • Thanks so much for your reply. I have had a thyroidectomy and I be been told my paras are still there. My doctor told me not to take the supplements just to be 'safe' he requested the vit d test however due to my calcium levels being normal they didn't actually test the blood for vit d levels which makes no sense to me.

    I have also been to the doctors and am getting my blow tested tomorrow so will post the results as soon as.

    Thanks again for your advice on supplements :D

  • Hladbu, ask your GP to order vitD blood test again. It's best to know level so you can gauge the right dose to supplement. If GP can't persuade lab to test you can order a private vit D test from City Assays for £28 thyroiduk.org.uk/tuk/testin...

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