Ataxia symptoms

[Pauwi9]

I am just curious as to whether these ataxia symptoms I get could possibly be due to thyroid issues or to something else,anybody else had these kind of issues eg feeling off balance pulled to 1 side,speech issues,trouble reading and trouble writing

[Marz]

Could it be B12 ? Often very low in people with thyroid issues - and many others too....

b12deficiency.info/signs-an...

[Pauwi9 in reply to Marz]

Well that's the thing I had b12 test and the doctor says I was over normal so definitely not deficient as she put it

[Marz in reply to Pauwi9]

Do you know the actual result ? Docs will say normal when just in range. Anything under 500 can cause neurological symptoms. I think you will find the UK range is around 180-900 - so it would be good to know where you are.... As you can see from the link I gave you above - ataxia is a symptom.

As is often stated on this forum - everyone should obtain copies of every blood test result so you can monitor your own progress - as it is our right...

nhs.uk/chq/pages/1309.aspx?...

Whatever your result, you must remember only 20% of that is available at a cellular level where the B12 is needed. Hence the results need to be near the TOP of the range to prevent cognitive decline....

[Framboise]

I have the feeling of being off balance and a pulling to one side sensation, but I think mine is due to a low back injury and having had an unstable sacro-iliac joint ever since. No amount of thyroid hormones has altered mine, only manipulation and massage etc., but I'd love to think it could be something permanently correctable so will watch this thread with interest. Do your off balance sensations alter according to whatever shoes you are wearing? If I change shoes to a different heel height - I'm mean a difference of half an inch, not changing from flats to stilettos - I can feel quite 'off'. No-one has been able to explain that.

[Pauwi9 in reply to Framboise]

No I just seem to be off balance most of the time,sometimes it changes briefly and then back to pulling to the right,the main problem is my speech and memory which only started when all these balance problems started,and they came on sudden starting about 4 years back

[Marz in reply to Framboise]

Hi Framboise - I too suffer back issues and have had surgery for stenosis around seven years ago. I started B12 injections at Easter this year and it took me some time to realise that I had not taken any pain relief on tough days. Completely unbelievable. Of course B12 is involved in the myelin sheath so it does make sense....

[motherelle]

Have you been checked for Coeliac anti bodies ?

[Pauwi9 in reply to motherelle]

Yeah I was checked for this as I was getting a lot of bloating thanks

[debjs]

I have had these symptoms too- poor balance, pulling to the left, feeling of left leg dragging, difficulty following lines of printed words when reading, eyes seem to jump, difficulty writing and a rocking sensation. My B12 was low in range and this improved slightly with supplementing B12 but is definitely worse when I am under- replaced so thing it is also thyroid related.

[Pauwi9 in reply to debjs]

Yeah this is exactly what I'm getting I find it hard to talk just after I wake up as well,the other day I tried to talk to my partner in waking and 3 attempts it took me and I just spoke gibberish.i have now started to take high dose b12 regardless of my b12 results as I think somewhere along the lines my b12 could partly be to blame,I shall see.but it's weird how your symptoms exactly match mine,wish I could get a diagnosis

[debjs in reply to Pauwi9]

I used to find it hard to open my eyes on waking as though I had no power in my eyelids. This has definitely improved with higher dose of replacement. I was told my B12 was in range but was 155 and bottom of range is 150 so barely there! Also the eye jumping improved with Vit D supplements. Hope you can get things sorted.

[Pauwi9 in reply to debjs]

Yeah thanks and me it's been a nightamre

[sued007]

i was like this when ferritin and vit d low, also when meds slightly high. Had iron infusions at hosp and vit d injections at docs and things improved. Also now only take Activas Levo ands things much improved. At the time thought i was going mad or was about to have a stroke or something-dreadful feeling. Hope you get it sorted soon x

[jellynpain]

Hi,

I suffer these symptoms. Have been desperate to get this sorted. My ataxia has had a huge impact on my life. Strangely always been worse effected left side.

My speech & brain fog is a nightmare. Can't find words, complete speaking sentence etc..

I have been diagnosed with CFS/ME, FM & a Micro pituitary adenoma, Congenital Atrophy Thyroid Gland (?..how do they know I was born with & not damaged by autoimmune issues etc) . Bloods come back as normal (had an extremely low cortisol test some time ago, ok after).

Pain and tingling around skull. I get pain that feels like its pulling on my skin...I know sounds crazy (& I am not honest).

Rushing across neck, pain, bloating, vision problems, extreme constipation... list goes on!

Suggestion re Lupus though Ana ok.

Consultants been useless.

Sorry can't offer any help, but sharing often helps.... keep in touch if you feel may help to compare results, tests etc.

Wishing you well xx

[Pauwi9 in reply to jellynpain]

Yeah the main problem is the speech to be honest,nobody else seems to pick up on it but sometimes I give up mid sentence since I've had my thyroxine increased I actually feel worse and I'm sure my tsh is probably really low

[jellynpain]

Interesting you are on treatment, my Endo isn't doing anything as bloods within range (he is literally reading the results, not my symptoms).

Are you hyperthyroid?

I am due to see my Endo very soon. I know he wants me off clinic which I don't agree with. Am going to try & go over my symptoms but he's not a listener!

Any tips?

Can you go back or phone your Endo about the slurry speech problem?

X

[Pauwi9 in reply to jellynpain]

At present its just a go who is treating me,he's put me on 150 mg of thyroxine problem is I don't feel like I'm getting any better had lots of tests mri scans etc blood tests problem is still no joy I have weeks with hardly any symptoms then bang back to my normal I'll feeling self

[Pauwi9 in reply to Pauwi9]

Gp

[jellynpain in reply to Pauwi9]

I have a fab gp but I don't think he is keen to medicate me due to complex selection of things (could be any of diagnosed causing problems). Trouble is Endo is terrible, so caught in the middle.

I fluctuate but very rare to have a completely symptoms free day.

You being treated as hypothyroid? Can I ask if you get any dashing & were your hormone blood results 'nhs normal'?

It's such a complex thing hormones!

I would say get Endo referral but bit wary to due to lack of help from my Endo.

X

[Pauwi9 in reply to jellynpain]

Yeah they were nhs normal but my levels are fairly good to be honest my las test my tsh was 1.7 and my t4 was 19 so they were fairly good anyway and he raised my dose from 100mg to 150mg and I still feel just the same

[Pauwi9 in reply to Pauwi9]

Think I'm stuck with this weird illness

[jellynpain in reply to Pauwi9]

You and me both