Graves and constant crying.......?: Does anyone... - Thyroid UK

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Graves and constant crying.......?

Sticky1982 profile image
13 Replies

Does anyone diagnosed with GD constantly feel hopeless, lost and crying all the time. Unable to make sense of it?

Please help :(

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Sticky1982 profile image
Sticky1982
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13 Replies

Hi sticky, Sorry you are feeling so sad.Oh yes I can definitely relate to all you say I was just the same, I was diagnosed a year ago and before diagnosis and treatmentI was weepy and anxious. Its alot to take it all at once especially when you feel so well rubbish really!

I was shocking would put a meal on the table then sit and cry all way through it, once I took off by myself to stay in a barn in the middle of a field as I couldn't cope.My family thought I was loosing the plot! So different to my usual self.

The good news is once I got going with my treatment I started to gradually feel better.

Have you been referred to the hospital and started on treatment?

Theres lots of info on here but just take it in little bitecsize chunks as its hard to concentrate at start of Graves.

For today just know that yes what you feelmis normal for Graves and you will feel better. Ask for copies of your blood results each time and maybe beta blockers would be helpful with some symptoms.

Take care , sending you a hug x...pipps

Sticky1982 profile image
Sticky1982 in reply to

thank you so much for your reply. I am on block and replace. 20mg carbimazole twice a day and 100mg levothyroxine once a day. I started these at the beginning of September. I don't get the heart palpitations or the anxiety anymore but I just feel so so sad. I have trouble sleeping too. I am not able to cope with things going wrong in my life like breakdown of relationships and anything slightly negative. Ive always been a super sensitive person but lately its ridiculous. Ive found a good article about Graves which made me realise more so that how I feel is probably because of Graves and not that I am becoming mentally ill. But at the same time it scares me that I will always have this :( thank you for taking the time to reply. Means a lot x

in reply to Sticky1982

I understand exactly what you mean, you have omly been on treatment for about 7 weeks, do you have any blood results? Maybe you are still overactive it can take a while to get back in range.

Then again I thimk there was a point for me when I suddenly realised I have Graves and probably have the antibodies forever and it then seems more real.It may be a good idea to have avword with your GP bout how you are feeling maybe some couselling etc might help .

I have noticed quite a few people with Graves say they are sensitive , I am a born worrier!

Sure much of whay your feeling is due to Graves but that does not exclude you from having other problems in their own right,

If you are crying all the time you need to let your doctor/ family/friends know how low you are feeling as you need some support.Keep coming on here, lots of good people dont suffer in silence. Good luck x

Fruitandnutcase profile image
Fruitandnutcase in reply to Sticky1982

Gosh sticky, when you said in yur email about becoming mentally ill it took me right back to how I felt before my treatment kicked in. I felt so weird and just nuts. Like you I was always super sensitive to other people's moods and I was such a worrier. I used to joke that I could worry for England. i couldn't cope when life got difficult and I often felt grouchy and angry. I lost friends because I was so intollerant I just couldn't be bothered with them.

So no you are not mentally ill - it just dpfeels like you are for a while. Once yur treatment has kicked in properly those horrible feelings will go and you will be fine. Yu need to be really kind to yourself. I don't think people realise you are with Graves. I lost a huge amount of weight and looked better than I had done inn a long time but that was only on the surface, inside I felt a mess. I slept a lot, I was really selfish and decided I wasn't going to feel I 'ought' to do anything, if I didn't feel I wanted to do something then I just didn't do it, I didn't care what anyone thought of me.

You will get back to normal, my very first email when I discovered the group was 'will I ever feel normal again?' And the answer was 'Yes' it took a while and I had a few ups and downs where I was needing to have my levo increased but I stopped my B&R a year ago and so far things are ok. So don't despair you will get back to your old self one day, keep a record of all your blood tests, I found that helped me because I knew what my blods were when I was feeling good and I was able to say to my doctor that I wasn't feeling good and that I knew I needed to be at

a certain level to feel good, so find out your results and make a few notes on how you feel at the different levels. Apologies for rambling on

Davnic profile image
Davnic

Sticky I totally get what you are saying. diagnosed earlier this year and I still have some days where all I want to do is curl in a ball and hide. They are fewer than they were, so it does get better. And definitely tell your family how you are feeling. it took a while but my hubby now nearly gets that this disease can totally take over my emotions and turn me into a total wreak. X

Heloise profile image
Heloise

Aw, sticky, feel your pain. My son went through this and got to the other side with his thyroid intact. I have to say I don't get the block and replace. He was on methimazole and a short time on beta blockers. We are in the U.S. however. Now he takes nothing. Sometimes Selenium can be helpful. stopthethyroidmadness.com/s...

Also, this functional neurologist points out the why you have the emotional difficulties when the thyroid is erratic.

youtube.com/watch?v=nZ_CP7l...

Marek profile image
Marek

Hi

I did suffer from depression for 15 years even though I was taking armour and adrenal at the time I used to feel tearful when someone said something that upset me. However in 2010 I started adding more animal fat to my diet, seviche and my depression went never to be came back to this day.

glo42 profile image
glo42

Just to reassure you that it does get better sticky!

I can relate to how you are feeling now, but Carbimazole has helped me to become less weepy and anxious. You have to realize that you have an illness and talk to your family and friends and tell them how bad you are feeling and see your doctor too, because you don't have to suffer in silence.

Maybe you could write a daily diary of your feelings? I have done this and it's been a help to look back and remind myself just how awful I felt when I was first diagnosed. You don't have to write much, simply write; good, awful, weepy, weary, an ok day etc.

Thyroid conditions give us all a real roller coaster ride, but there are many on this brilliant site who are much more knowledgeable than I am and will help you with your blood results.

Keep focused and take care of yourself xxx

Sticky1982 profile image
Sticky1982

you are all so great, supportive and kind. I went to the hospital today and had my bloods done, gotta wait until next week for results. I also went to the doctors and broke down about how suicidal I feel (please do not worry I would never ever ever hurt myself or do anything) and that I cannot face feeling like this anymore. he has signed me off work for at least a week and I go back next Friday for my results. feel better knowing that how I am is because of this illness and feel stronger knowing that you have all been there and that I will get better. I feel like such a negative person at the moment. I find it really hard to understand it a but I am getting there. it's obvious to the people around me that I am not well but then they focus on it and it heightens my feelings! so I have a week off now to do as I want. had a lot of bad things happen recently so I think it's a combination of what life has thrown at me and Graves' disease! hoping that I can pursued them to take me off of b&r then take the thyroid out! thank you all xx

Clutter profile image
Clutter in reply to Sticky1982

(((Sticky))), you're not being negative, it's the Graves messing with your metabolism and your head making you *feel* negative. Adverse events and stress that you'd normally shrug off assume mammoth proportions when you're ill. You will feel better when the Carbimazole kicks in and stops the excess hormone rampaging through you.

Use your week off to rest and do something which makes you feel better in yourself. Don't waste it on chores. If you still feel bad at the end of the week ask for an extension to your sick note.

in reply to Sticky1982

Hi Sticky, Good to hear back from you and I am glad you have been to see your GP.Is uour doctor understanding? As Clutter says do just as you please this week plenty of TLC.I used to over react to the slightest bit of stress, it got to the point where family would try and keep stuff from me as I would ho eay over the top! Think I will always be a bit of a worrier but I am much better than I was.Well done gor opening up to your doctor as if you dont tell them how you feel they wont know.Have you got family support?

Maybe get some basic ingo printed off for work to read and family as Graves is not something many people know about..

Keep in touch and go for more time off if you need it.

Pipps x

Sticky1982 profile image
Sticky1982

The doctors have been great, I've seen 3 different ones each time I've been and they all been good. the one yesterday was a locum and he knew so much about Graves. They clearly haven't got my medication right, thyroxine is too high dose I think and carbimazole is not fighting it off. Once I get my bloods next week I'm sure they will fix it all. Got a 5k run today with my family, gonna try and manage it! I must be mad but know training helps my mental state. It's the feeling that you're going crazy, I'm usually such a self aware person. feeling better today though, thank you both :) x

Bradleyeb profile image
Bradleyeb

I know exactly how you feel! I feel like I'm going crazy too! Am considering going to Drs re: anxiety medications or getting my calcium checked as apparently this can make you feel anxious! Hope you are feeling better x

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