Found out today my tsh 3 level is 0 none at all... - Thyroid UK

Thyroid UK

141,250 members166,507 posts

Found out today my tsh 3 level is 0 none at all the Dr set me up with Cat scan I can't find anywhere on net with each zero tsh 3

Kerea7269 profile image
13 Replies
Written by
Kerea7269 profile image
Kerea7269
To view profiles and participate in discussions please or .
Read more about...
13 Replies
Clutter profile image
Clutter

Kerea, Do you mean your TSH is 3 or your FT3 is 0?

Kerea7269 profile image
Kerea7269 in reply toClutter

My Dr and pharmasist even said today when I asked him about it and said that was very rare so yeah I'm freaking out

Kerea7269 profile image
Kerea7269

Hi clutter, it is my tsh 3 that came back zero.. Dr setting me up with Cat scan just don' t know this could mea

helvella profile image
helvellaAdministrator

It is not that rare for people with hyperthyroidism or who are over-medicated to have zero TSH. Thyroid cancer patients are sometimes kept at that point by taking a relatively high dose of levothyroxine - when it is known as "suppressed TSH".

It is also possible to have such a low TSH if your pituitary gland has been damaged and cannot produce more than a tiny bit of TSH. However, if that were the case, you would probably be severely hypothyroid.

You don't give us much other information - like why your doctor did a TSH test, whether you know you have a thyroid problem, etc.

Rod

Kerea7269 profile image
Kerea7269 in reply tohelvella

Okay I had a regular blood screening done by my counselor and they faxed those results to my Dr. My just tsh came back 0.001 so that was a concern and had me go back for blood work on t2 t3 and t4. The results came back today and my t4 was normal but my t3 was a zero. So first he is sending me to cat scan for tumor and if that comes back normal he is gonna getme into a endo sspecialist. I just know it is noticeable in my neck, and no energy and eye site has gone bad and bad depression.

helvella profile image
helvellaAdministrator in reply toKerea7269

Are you on any medications at all?

They are peculiar results so perhaps the answer is going to be a bit of a surprise. Most doctors would be out of their depth trying to see what is wrong with you. I certainly am. Hope you get that scan and the referral speedily.

Rod

Kerea7269 profile image
Kerea7269 in reply tohelvella

I will but I guess this a or could be serious right? Cuz what u said last time about tumor etc sounded scary

helvella profile image
helvellaAdministrator in reply toKerea7269

Most tumours which affect the pituitary are not particularly serious beyond their immediate effects. That is, if they are caught and removed, that should be it. The word tumour means lots of things. It simply means a growth of cells into a lump.

Rod

Kerea7269 profile image
Kerea7269 in reply tohelvella

Thank you so much helvella u have helped me out so much on understanding and I'm not freaking like before?

Clutter profile image
Clutter

Kerea, there are three thyroid function tests : TSH, FT4 and FT3. Ask your GP receptionist for a printout of your thyroid results and then post them here for comment/advice.

Kerea7269 profile image
Kerea7269 in reply toClutter

Okay I had blood we done first and at first it just said tsh 0.001. So he sent me back to get another blood we done on tsh 2,3,4 my 4 was normal but my 3 came back 0 zero. So going in for cat scan if that's normal he is sending me to endo specialist and he said they may have to take some of my thyroid out, biopsy. Or could b anything but he definitely not looking good.

Kerea7269 profile image
Kerea7269 in reply toClutter

Oh sorry tsh2 was my mistake. It was just the 3 and 4 done the second time

Clutter profile image
Clutter

Kerea, I think you have a condition known as hypopituitarism where pituitary dysfunction results in low thyroid hormones. The dysfunction can be the result of a pituitary tumour or decades old head trauma or head/neck radio therapy. Pituitary tumours are usually benign.

pituitarysociety.org/public...

Not what you're looking for?

Moderation team

See all
helvella profile image
helvellaAdministrator
SlowDragon profile image
SlowDragonAdministrator
RedApple profile image
RedAppleAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.