my daughter has just been diagnosed and has a T... - Thyroid UK

Thyroid UK

139,479 members163,720 posts

my daughter has just been diagnosed and has a TSH of 0.01 - Is this really low or still acceptable? Thanks

louise1996 profile image
6 Replies
Written by
louise1996 profile image
louise1996
To view profiles and participate in discussions please or .
Read more about...
6 Replies
Wiggy29 profile image
Wiggy29

Mine was undetectable at 0.05 but all ranges are different. I don't really understand results but I'm sure someone who does will help :) good luck x

Fruitandnutcase profile image
Fruitandnutcase

I only know from mine - I was <0.03 (0.35 - 5.5 ) and that was pretty low. I felt better when I reached 0.68 (same ranges)

What are her lab ranges and what was her T4 or even T3 if she had that done and how does she feel?

louise1996 profile image
louise1996 in reply to Fruitandnutcase

she feels awful, tired, achy, sick, nervous, but still waiting for an appointment. TSH seems to be the only test they did

Clutter profile image
Clutter

On my lab range 0.35-4.2 that would be considered suppressed. I felt very unwell when I was that suppressed. Generally only thyroid cancer patients are suppressed <0.1 to avoid recurrence.

Does your daughter have Graves?

louise1996 profile image
louise1996 in reply to Clutter

waiting for an endo appointment but wondered if it was worth going privately

in reply to louise1996

Hi louise I am no expert but my tsh was same as your daughters and I was started immediately on medication.Yes its far too low and no wonder she feeld so poorly I did too.With medication mine is now much more normal and I am starting to feel better.Has she not been put on any treatment? As an indicator I waited 7 weeks to see an endo but it varies depending on where you live.The NHS guidelines state you must be seen within 18 weeks of referral. It is important for your daughter to know there is treatment and she will het much better.Do let us know how she goes on.....kim

Not what you're looking for?

You may also like...