Delayed response

[lilliput]

It seems to take longer to move. I play in an amateur orchestra and cannot move my lips fast enough. Or my fingers. Still no sense of smell. Getting worried.that it could be Parkinsons

[Banjogirl]

Hi. I can't advise re: Parkinson's, but when I was hypo before diagnosis, I could not get my mouth around the words I wanted to speak! My lips wouldn't move quickly enough. A loss of sense of smell is related to hypo issues too. What thyroid meds are you taking and do you have any test results that you could send in?

[T3sortedme in reply to Banjogirl]

I am much slower than I used to be. My wife takes less than a third of the time it takes for me to brush my teeth and get ready for bed! If I try and rush anything, I mess up. Worse when tired. I am mostly well now on T3 but still slow. Used to be so slow I could not follow conversations as they moved too fast. No Parkinson's in my case; just thyroid.

[fiona]

An example for me is my husband pops his head round the door to ask me something/say something. By the you've stopped what I'm doing, reacted and know what to say, he has gone.

Yesterday my well friend and her three year old girl came round. It was straight into showing me this toy, doing this doing that. Whereas in the company of ill person the pace seems subtly slower and you might have a slight pause before starting with something.

As for getting to bed, I have to go before I'm too tired or else it'll take me half an hour.

[Marz in reply to fiona]

Sorry have not read your other posts - have you had the routine testing of B12 Iron Ferritin Folate VitD ? They all need to be high in their ranges for you to feel well and for good conversion of T4 into the Active T3.

T3 only - has given me more energy than I have had for years and aches and pains have ebbed away ! Increasing B12 and D3 has improved my wellbeing too.

Diet - ? Allergies/sensitivities to foods can cause tiredness due to malabsorption of nutrients. Is being gluten free an option ?

[fiona in reply to Marz]

I've had previous testing for these nutrients and most didn't seem applicable, although when very ill I took ferrous sulphate to help for that reason. The one that was very applicable was Vit D which I've increased for the winter.

Nutrition, I believe in eating well and virtually every night we have either meat or fish. I try and keep my carbs down and have one tiny New potato on my plate. Sugar seems to be an issue with me, as I feel a bit sensitive, and I'm starting the year with stevia being the way forwards. When very ill in the past I got bloated very easily but less so now but I don't have bread in excess. I've not been gluten free or anything else, but my decisions have been based on what I've known is good for me, substantially and past experience.

80mcg daily of T3, low dose mastermind, nutri adrenal extra, magnesium, VitC, vit D, selenium, q10. I did a private antibiotics protocol last Feb/Mar which actually helped deep ache in legs.

I'm currently doing Buteyko breathing as I've had problems with air hunger, coughing mucous and lifelong asthma.

Problems with migraines as I take preventing meds sodium valporate. GP prescribed gabapentin for pain.

I've done loads but do get in a rut. In the unfortunate position of having ME/CFS and get the post exertion fatigue. But while it's a dustbin diagnosis.and I know cos my thyroid was why I went very ill. I agree about finding what you can do something about, when you get told there's no cure or treatment, but I've fold lots of things that have helped.

[Marz in reply to fiona]

...wow you are doing lots of good things. I have recently read the book by Datis Kharazian - Why Isn't My Brain Working ? Covers lots of areas of Functional Medicine with interesting Case Studies. Fat book - but with some interesting points. He previously wrote a Thyroid book.

Hope you soon feel better .....

[fiona in reply to Marz]

Thanks. I've not heard of Datos Kharazian's two books before. I've downloaded it to my kindle. My Mum is hypothyroid, my Dad has Alzheimer's, but thankfully he told his GP about his problems and they diagnosed him quickly and got him on medication. There could be info for any of us three there.

[Marz in reply to fiona]

...there is also a video posted on YouTube about Professor Smith and his research into B12 and Alzheimers. The link was posted by hampster1 on this forum. He was doing a presentation at the PAS conference. You can google it yourself if you cannot find it on hampster1's posts and he starts about 4 mins into the presentation. Also hampster1 lists good websites to learn about B12. I can only remember b12d.org Am in the UK at present and do not have access to info !

Good Luck !

[debjs]

Yes I had this when very hypothyroid - I was not converting T4 following my TT and became very ill. It was as though everything was in slow motion and sometimes my movements were jerky and uncoordinated. I also found it difficult to speak and move my lips which felt numb and swollen. Although they did not look swollen to anybody else they were swollen inside the rim of my lip and this has now gone. This has been a long haul but these symptoms have almost entirely recovered as I have increased my medication and I still have a way to go yet. Perhaps you need to consider an increase in your medication.

[lilliput]

Thank you for the reassuring replies. I was very tired at rehearsal and ditzy but hadn't slept the night before. Insomnia is still a big problem for me. I seem to have good and bad days regarding reaction speed but it was improving. I was diagnosed hypo in March 13 and take 100 mcg Levo.The only recent change has been dieting (since the 26th December) I'm deficient in vitamin D and take Joint Ace, cod liver oil and iron. I've upped my calories as I realised after a week that I was being too strict and felt a bit unwell. I'm presently eating about 1200 per day and not feeling hungry.I've lost about 3 pounds but MyfitnessPal shows low fat. As vit D is fat soluble I think I may need more.