Hi All, I've been on Levo for over 10 years, fo... - Thyroid UK

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Hi All, I've been on Levo for over 10 years, for the past 5 years I have been taking 225mg a day and I still feel sluggish, tired etc....

Tanya40 profile image
5 Replies

Any help or ideas for me?

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Tanya40
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helvella profile image
helvella

Welcome Tanya,

I think we need to start by saying the usual things:

Get your more recent blood test results from your GP surgery - including reference ranges;

Let us know if you are taking any other medicines or supplements;

Tell us more about yourself - did you feel great for the first five years then go downhill? Do you have a thyroid? Is it only tiredness, etc., or is it lots of other things?

When do you take your levothyroxine - morning or bed-time? Do you separate it from foods, drinks(other than water, supplements and other medicines?

Do you have a "normal" diet or are you on any form of restrictive diet (e.g. gluten-free, vegetarian, etc.)

Don't worry about how long your response is!

Rod

Tanya40 profile image
Tanya40 in reply tohelvella

Hi Rod

Thank you for the reply

I'm just going to write my results as I see them, they don't mean a thing to me! But my doctor did say that they seem fairly normal! Typical as they haven't been for years... Taken 13.09.13

TSH Level - 0.010mIU/L (0.3-3.94)

Free T4 Level - 24.500pmol/L (12.3-20.2)

Vitamin B12 - 618.000ng/L (191-663)

Folate - 16.400ug/L (4.6-18.7)

I take my Levo in the morning at about 5am with a cuppa tea. I eat breakfast at around 7am, I'm not on any particular diet but I do eat healthy.

I have a few glasses of wine at the weekend and I don't smoke. All the symptoms below have been on going for around 10 years with hardly any change if any probably worse over the last 5.

I also take 50mg of Sertealine in the evening I have been on these for 3 weeks for bad PMT symptoms!

I do have a thyroid

In general I feel sluggish, fuzzy head very forget full can slur my words at times, dry skin and hair which doesn't seem to grow!

Blurred vision, never feel full, my face feels heavy, heavy periods, itchy scalp and skin, depression and constipation.

Phew.....

I look forward to your reply

Tanya

Jackie profile image
Jackie

Hi As Rod says. Do make sure that the thyroid tests are for TSH, T4 and Free T3. If on levo alone ,you may need Levo ( T4) and T3. Only the bloods show that.

Best wishes,

Jackie

Ask you doctor to refer you to an Endo, I am under one after having similar symptoms to you and she has put me on T3 as well and I do feel a lot better. It's worth a try

harrys nan

Tanya40 profile image
Tanya40

I forgot to say; my doctor said that they don't prescribe T3?

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