Don’t know what to try next

[Loolops]

Hi I have severe IBS almost constantly taking omeprazole buscopan had all the diffferent tests and show nothing and basically told ibs and that’s it , I look 9 months pregnant ALL the time which distresses me also have anxiety depression snd on quite a lot of meds for that, just get do so fed up with it all I’m just at the end of my tether with it all 😢😢

[b1b1b1]

Have you worked with a dietician and tried the Fodmap diet?

[Loolops in reply to b1b1b1]

Yeh tried the formal for quite a while without any difference, haven’t had the option of seeing a dietitian!!! Haven’t seen gastroenterologist for a year or more go has referred me again but with COVID there is such a backlog just need to play the waiting game, not that I’m expecting much last time I seen him he never lifted his head from whatever he was writing so rude hopefully be a different doctor

[Nadya1964]

It didn't help me alot.Colofac is better.But mainly low FODMAP foods.

[Curious8654]

Sound like there should be more investigation into your situation I wouldn't back down I would keep at them ...

How are you going to the toliet are you frequent or that sorry for invasion but I know with Ibs it can be one way or another or both x

[Loolops in reply to Curious8654]

Yes a bit of both but mostly the runs and I mean runs go told me to take codine phosphate but then that makes me the other way had all tests I think I could have and disappointedly I feel I just have to keep taking the codine and then fybogel for constipation, been waiting to see gastroenterologist again for about 9 months I’ve lost over a stone in weight but still look 9 months pregnant 😡

[Paul1066]

You sound like you’ve been on a similar path to me so far, Omaprozole was useless, I’d suggest you try Mebeverine - I’m pretty sure that has helped me and helped several people I know. Worth a try

[Loolops in reply to Paul1066]

Thanks for suggestion but I tried that and didn’t do a thing for me 😡 GP. Is at a loss of what else to try and has referred me back to gastro but who knows when I’ll get appointment x

[Paul1066 in reply to Loolops]

I’ve been dealing with this for three years and GP has finally referred me to Gastro… only about another 22 weeks to go before appointment due…

[Loolops in reply to Paul1066]

Hope you get some help when you finally get to see gastroenterologist x

[Paul1066]

Thank you, I hope you get a break

[Oscar091]

Hi I know it’s so frustrating when you just want help. I’m in the same situation so depressed too I have a mind councillor that comes to see me every week. Amber

[Loolops in reply to Oscar091]

Me too but I don’t think they understand fully how this totally takes over your whole life , hope you feel better soon x

[Oscar091]

Thank you 🙏

[Pte82]

Unraveling a puzzle involving IBS is not a one answer solution. My son's began years ago and years after using an acne medication called isotretinoin also known as Accutane. He is still being treated for ulcerative colitis. The first link below contains a diagram of the vagus nerve, the brain- gut connection. Thiamine plays a critical role in the that connection and a deficiency impacts gut as well as brain function. Thiamine requires enzymes from magnesium to become bioactive and diarrhea can cause a loss of magnesium creating a possible deficiency. This link, although about SIBO, has a good graphic of the vagus nerve connecting the brain to the gut and has info also applicable to IBS. You can search on " thiamine IBS" for additional sources. Three forms of thiamine, benfotiamine, TTFD and sulbutiamine, are important to study as they offer benefits other forms do not. Remember the B vitamins work better together. Take time to find out about the other B vitamins. Florastor is a good probiotic for diarrhea. Understanding how anti thiamine factors in your foods and planning meals around them is an important step back to putting normality back in your life. Always consult with your health care professional before using any supplement.

eonutrition.co.uk/post/thia...

chroniclesinhealth.com/inde...

stuttersense.blogspot.com/2...

[Loolops in reply to Pte82]

Thank you so much for information, I’m just wondering if I had trigeminal neuralgia a few years back and had a pad put in at the bottom of my brain stem and the trigeminal nerve wonder if there could possibly be a link there ????

[Pte82 in reply to Loolops]

This may be an answer:

objectivenutrients.com/insi...

[Loolops in reply to Pte82]

Hi thanks but web link won’t open ??

[Pte82 in reply to Loolops]

If this link won't open search on " trigeminal neuralgia thiamine"

objectivenutrients.com/insi...

[Loolops in reply to Pte82]

Thanks for your thoughts had a look and it is really more about trigeminal and boosting energy nothing about IBS but was worth a look always be interested if you come across any info that might them tie them together

[Loolops in reply to Loolops]

Sorry just seen you last message after I sent you one will definitely look at this thank you

[Loolops in reply to Pte82]

None of the links will open 😥

[Pte82 in reply to Loolops]

If none of the sites open try restarting your device.

[doris22]

Hi. Omeprozole made my tummy problems unbearable. I felt like I had bricks in my upper stomach after eating. I changed to an H2 and the relief was great. Some have been discontinued (like Zantac/Ranatidine) but you can get others. PPI'S Are much more potent and disrupt the body's workings if you take them for too long. All the best.

[Loolops in reply to doris22]

Yeh I’ve been on omeprazole for a couple of years , what’s an H2 is it a prescription tablet thanks x

[doris22 in reply to Loolops]

Hi there. Yes it is. Ask your Doc if you can try them. It's a good way to wean yourself off Omeprazole. Google Famotidine. Much better for you. Then after a while you can cut them in half and slowly come off them. Then just take them if you have a flare up or you are going to eat something spicy etc. Hope this helps.

[Loolops in reply to doris22]

As there’s no appointments, I wrote it all down and left it at the surgery for my GP and never even got a phone call nothing to discuss it , so where do you turn so disheartened 🥲x

[JulieB5200]

Hi,you sound like me although I’m not depressed.I’m on esomeprazope and buscopan daily. I get anxiety but that’s probably because I have suffered so much pain and running to the loo it can make you not want to leave the house. I had weaned myself off omeprazole until last month when I became ill with severe burning pain in my stomach.So now I take esomeprazope which I don’t think is much different.The problem is I reckon they cause me more constipation which is no good for ibs.So now I’m left wondering what to do because my gp isn’t very helpful at all.Anyway I hope you are feeling better.At least everyone on here has an understanding of what we all go through.x