Fat malabsorption EPI/SIBO connection

[Fancyshark]

Has anyone developed exocrine pancreatic insufficiency from having unsuccessful treatment of SIBO ?

[Hidden]

I have EPI and I used to have SIBO but it wasn’t caused by that. What makes you think EPI was caused by unsuccessful SIBO treatment?

Have you been diagnosed with EPI? Have you seen a gastroenterologist? Are you on treatment?

EPI which has no other obvious cause is associated with IBS and other digestive diseases. I have PA and it can be associated with that too.

Medics don’t know what causes it but it may be to do with the hormone CCK. Some research is going on in this space.

The important thing is to get a diagnosis and treatment as EPI is a chronic life long condition.

Good luck and take care.

[Hidden]

Also, have you had your B12 tested?

[Fancyshark in reply to Hidden]

Hi there and thanks for writing me back. I’m sorry you have EPI but I research all day long and have joined a few groups on fb and manny if not all people who had SIBO then developed EPI. yes I have had my b12 tested and it was very high along with my folate. I feel that I fat malabsorption due to SIBO or at least I’m hoping. I am working by with a gastro for years. He doesn't understand SIBO and never really knew much about it. I treated myself with lots of herbals thru the years and then this happened. I’m now about to try the rifaxamin/metronidazole route. Have you been re tested for SIBO? Do u know if it’s fully gone? It damages the Villi in the small intestine. It can pose as steatorreah/EPI My fecal elastase last checked was 12

Not good. I’m miserable ATM

when was the last tome u were tested?

I have tried to take TUDCA to help and some coffee enemas

Lol I’ve done it all but never treated with the heavy antibiotics

I am going to try now but am waiting to speak with a diff gastro who knows hopefully more than me 🤦‍♀️🙏🏻

[Jenny3267 in reply to Fancyshark]

Sorry to hear. I have high SIBO, and as my B12 and folate also tested high gastros and GPs say not to do with SIBO and malabsorption. I am extremely underweight and can't gain weight. They don't think SIBO causes this level of weight loss. Like you I think I have fat malabsorption due to SIBO too. I take multivits so guess that's why B12 high - but wouldn't SIBO stop absorption of that? Good luck with gastros, they don't seem to know much about it and some are sceptical that it even exists.

[Fancyshark in reply to Jenny3267]

Yes it’s a nightmare. These drs Shouid be ashamed of themselves for not really digging. Treating the symptoms and not the root cause. Have you been checked for mold? I’m about to get a mycotoxin test done. It’s not cheap but if it’s mold in your body is a huge reason why the body can’t heal. I know I have it since 2019 but didn’t think it was a big deal until now. I’ve read the body can’t heal or stay healed if it’s present. Great Plains lab in the states or bio labs in London offer the test. And these drs don’t know SHI...

SIBO causes the small intestine to not absorb. which reminds me I’m finally getting a test done that I will have to pay for £95 but well worth it. It’s called a D-xylose test but u will need a dr or FM/ someone you’re working with to sign off for it. It was a very hard test to find it took me a year. Anyway this test and I will copy and paste for u

The diagnosis of bacterial overgrowth can be made by physicians in various ways. Malabsorption can be detected by a test called the D-xylose test. Xylose is a sugar that does not require enzymes to be digested. The D-xylose test involves having a patient drink a certain quantity of D-xylose, and measuring levels in the urine and blood; if there is no evidence of D-xylose in the urine and blood, it suggests that the small bowel is not absorbing properly (as opposed to problems with enzymes required for digestion).

So u see this test can prove it’s either pancreatic or small intestine (SIBO) 🙏🏻

The lab u can order this from is The Doctors Laboratory 02073077373

I hope this helps you 🙏🏻

[Hidden in reply to Fancyshark]

I was tested for SIBO both with the NHS and privately on separate occasions. You are right that gastroenterologists don’t know much about it. That is a global issue. It is not in medical training. I did rifixamin when I was hydrogen dominant. I then got methane dominant and did herbal treatment. Both worked but not permanent although I don’t have it presently. I get to know the symptoms.

Your fecal elastase is very low indeed. Have you had a MRCP? And a CT of your abdomen? I had both to check for organ damage and to check my biliary tree and structural damage to the pancreas (MRCP). Was your high B12 within range? I say that as high b12 can be s sign of organ damage.

Sorry I’m just trying to give you clues. I am sure you will have researched all of this!

[Fancyshark in reply to Hidden]

Ugh no I didn’t see that B12 being high is a sign of it an damage? Even if I was supplementing with it? Which I was. Maybe that’s why so high. You can still have SIBO and feel ok. I know what u mean about the symptoms of SIbo and when it’s back. I think it did some damage to my small intestine. I’m trying to get the d-xylose test to confirm. Then I’m going to have a mold mycotoxin test done as I know I’ve been exposed to mold internally. Mycotoxin exposure can also cause fat malabsorption so I’m curious now What a world we live in. Thank goodness for google and forums otherwise we’d all be sheep

Yes I did have a MRCP without contrast bc I didn’t want it and it came back spotless. I wonder now bc I’ve not been good at all. I had a very stressful time a few weeks back when I visited NY.. family crap and it was non stop for 2 weeks. I was a shaking nervous wreck, I think that mixed in with some fatty foods and maybe too many herbals as I thought I also had COVID scare as my dad and step mom had it when they net with me and didn’t know it. I was taking cinnamon oil, garlic and oregano. I have lots of methane but starting to winder it I somehow killed lots of the archaic bacteria and it turned to more hydrogen SIbo??

Is that even possible? I’ve had nothing but diarrhea in the last few weeks. Sorry.. and pain under my ribs not terribly, lots of gas but that seems to be my life, burning feeling in my chest area that has lasted for 3 weeks that I thought I was getting a cold but it never came. When I wake up I have butter taste in your mouth (acid reflux) but must be too little acid! I was tested for COVID Btw and I didnt have it or get it, thank god! Anyway I’m awaiting to hopefully get these other diagnostic tests to help and see a better gastro I doing in London who knows about the fat malabsorption/SIbo connection

Dr haidry in London

Thanks for getting back to me.

Have u had a mycotoxin test?

If not I really advise u should

[Hidden in reply to Fancyshark]

My s as policies I didn’t realise you were supplementing with B12 which explains why it was high. That’s to be expected. I’m in injections so it is always high. My personal view about the herbals us that I felt better after I had come off them. It took about 6 weeks but as I say I feel clear of SIBO NOW. I think you probably can kill methanogens but still have your hydrogen high. It’s a tricky set of circumstances! I know about low stomach acid as I have PA which causes it. I use Betaine HCL with every meal. That definitely helps absorb fat and also allows me to absorb folate as I no longer needs supplements for that.

I haven’t read about mycotoxin so will have s as look thank you!

Hang in there and good luck!

[Fancyshark in reply to Hidden]

You too! Thanks What is PA? Pancreatitis? I googled but not sure

Also what brand HCL do u take and how much of it milligrams?

I was taking it for awhile and then it started to give me the burn so I stopped bc I didn’t think I needed it anymore but perhaps I’m back to needing it again. Thank you

[Hidden in reply to Fancyshark]

PA is pernicious anaemia. It is an autoimmune gastritis which causes B12 deficiency and means your stomach doesn’t make acid. It can be associated with EPI.

Can you tell me where you got your Mycotoxin test? Did you need to be referred? I’d like to do it on my own.

[Fancyshark in reply to Hidden]

Hi yes you can do it in your own but u will need someone in that group to basically be your provider. They will assign someone to you. The lab you use if you’re in the Uk is Bio labs and the lab if you’re in the states is Great Plains laboratory. Just google their sites and u can order test from the site however I may need a practitioner on their company to go over results. The test is around $300 or £225 but I think if u find out u have the mold than u may have found your problem Are u sensitive to minerals by any chance? Smells? Chemicals? Fragrance? Does it give u a headache or anything?

[Hidden in reply to Fancyshark]

Thanks for the info. I’m in Scotland so will look them up. I’ve been doing a lot of reading around and it’s very interesting as is the treatment for mould removal which helps with gastrointestinal symptoms too! I’ve not noticed any sensitivity to the thins you mention but if it is cold or damp or if I’m ever camping and it rains them I’m coughing for hours do those conditions don’t work for me so mould may well be an issue. Thanks again.

[Fancyshark in reply to Hidden]

My pleasure to share knowledge. We are all we have bc these drs until it happens to them don't know anything sadly. Please let me know if u get a mycotoxin test and results. I'm in Scotland too... Aberdeen. I'm American but married a Scott. Oddly enough my health issues didn't happen until I was over here. I have gardened and def smelled mold many times so perhaps I breathed it in. Thats all it takes. However it's on so many foods like cereals, whole grains, beer/wine/ especially known in coffee, nuts and seeds and the list goes on. Good grief

[Hidden in reply to Fancyshark]

It’s cold and damp here, especially in Aberdeen! I used to work for GE up there so know it reasonably well. I’m in Pitlochry now 😀

[Fancyshark in reply to Hidden]

I love pitlochry... Such a lovely place to visit. Yes its cold and damp.. I prob do have more mold from living here. Take care and let me know if you get that test. Thanks

[Fancyshark in reply to Hidden]

Hi again I have read some of your other posts and I will say it was PPI use that got me into this mess bc I took them for 13 years cutting off all my acid HCL which is so important fir our bodies especially when foreign invaders enter the HCL kills off the bad guys. After bc 13 years of taking and lowering my acid so much is how I needed up with SIBO and so forth. Try doing a prep with ACV 20 min before u eat. You take 1tsp acv apple cider vinegar in 2oz water I think

Here’s the link to learn how to increase your HCL before eating. It’s essential for digestion

Keep in touch I’m interested in hearing more. I really feel like the drs here in the Uk just don’t put all the missing pieces of the puzzle together and we are left to fend for ourselves. Hang in there 🙏🏻 toyourhealth979994037.wordp...

[Hidden in reply to Fancyshark]

Thanks for the link! Will take a look.

[Fancyshark in reply to Hidden]

Hi Martin please read my response to flowers380 below It’s about mold in the body and have u ever been checked. It’s very important