Doctors unsure but think it's IBS

Hi,

My problems began mid January this year, strong smelling urine then diarrhoea with low pelvic cramps that I can only describe as really bad period pains.

The doctors have run bloods for inflammation, other tests for Ovarian cancer, liver and kidney functions etc and all have been negative. My stool samples also came back negative for any raised markers. I've also had a pelvic ultrasound to check my uterus and ovaries which was fine.

I had my annual kidney/renal bloods and a ultrasound scan in November as had back pains then. I have the bloods and urine checked every year as I have blood and protein in my urine (blood is not visible). These were also fine.

I've been on mebeverine for a month and a half now (buscopan gave me really bad side affects such as shortness of breath). I'm still getting the low pelvic (really low down, below belly button area more pubic area) cramping but it's dulled. I don't feel bloated, constipated or have any high abdominal pains. My stools have firmed up but are still soft and I've noticed black specks in them (not undigested food as far as I can tell), they're also pale in colour. I've also noticed streaks of red blood on the stools, this comes and goes.

I'm also experiencing lower back pains, across back and then sometimes more in one side. At the moment I've had a horrible pain in my lower right side (actually on the side of body round to the back) which is really tender to touch and feel like I can feel a lump there. I also get numbness in my arms, only one side at a time. I noticed my feet seem to have swollen a bit as well as my right forearm. This seems to come and go as well.

Along with the back pains I have a horrible cramping, burning sensation in my inner thighs and often am short of breath. I've also lost about 11lbs since mid January and I seem to still be loosing weight. I'm eating but don't have an appetite. There's nothing that seems to set me off, I eat and have no urgency to use the toilet. I use to only go once a day and now it's that or more (can be very loose or constipated).

The pains don't lessen or disappear after a bowel movement. Often I feel nauseous after a movement, but never feel like I haven't evacuated everything.

My doctor referred me to the gastro unit at hospital but they looked at referral and said I need to see a dietician (which I've been referred to and still waiting to hear). My doctor thinks they didn't want to see me due to my inflammation markers not being raised.

I'm tired and getting really down about it all. I'm worried about food, worried about the pains and worried something's really wrong with me.

I've started going to yoga to see if that helps, not sure so far but will keep at it.

Sorry for the long post, if anyone out there has anything similar to me please respond, it'll be comforting to know I'm not alone.

6 Replies

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  • Something is really wrong. Too many crazy symptoms. See another doctor.

  • Get a second opinion for sure. Insist on GI dietician at this point is only going to help with food. You need to figure out where pain is coming from. No endometriosis?

  • I've seen 4 different doctors now (as it's so hard to get a GP appointment at my surgery you just have to go with whoever you can!) Doc I saw yesterday mentioned endometriosis and has given me antidepressants to take for pain. She at least said if I keep loosing weight then gastro will have to see me!

  • I got a gastro app cos of the weight loss. I didnt get the option of nutrienist, i was referred straight for a colonoscopy

  • Hi babe patricia here your so desribing a lot of the symtoms I suffered for years & they ruled out a lot of what it wasent & then said I had ibs untill i lost so much weight & needed a blood transfusion right away becouse I had severe anemia brought on by not getten the right nutrients unknown to me it was never ibs but coeliac disease it has the same symptoms as ibs but with coeliac disease it attacks its own tissue & gluten is destamental to your health when you eat it & you lose loads of weight with out tryen so babe get tested for celiac disease its a simple blood test & you are suffering like I did for yrs take care patricia

  • Hi there

    I gave the exact pains as you do in terms of the pelvic pain and the back aches and period pain feeling it's really horrible. Sometimes I get blood that I can only see when I wipe but I put this down to going too much and it must get sore!

    I've had blood tests urine tests stool samples and a ct scan to see what's wrong but there seems to be nothing which is frustrating. I would say doing yoga is a good shout as it's calming but I've also found swimming is brilliant for my ibs so this could help you? X

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