IBS Network
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Bowel Cancer diagnosis

Hi Everyone,

I have just had my gastroscopy and colonoscopy today and been told I have bowel cancer. I am lost for words and don't know where to start. I will have CT and MRI scans in the next 2 weeks to determine progression and treatment options (if any)

I have had abdominal pain and rectal bleeding for a good few months and the doctor was continually insistent it may have been internal hemorrhoids and other gas problems and gave me repeated prescriptions for same meds that was not working. Only recently was I referred to a specialist and have had to wait 7 weeks for the procedure today.

:(

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Sorry to hear this, I am sure you are in shock. I hope you will be looked after and you will get good care from your doctors and other people.

Good luck to you Ray.

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Thank you

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Are there any forums on here that you could use?

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I am not sure. I will have a look around

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Thanks Jim - Much appreciated

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You are welcome Ray.

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Hi ray

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My mum had bowel cancer, she had surgery and ended up with a colostomy bag but she lived to the rip old age of 92 which was 30+ years post op. I hope you are given a plan of action very soon, keep pushing if things are moving to slowly. Good luck.

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Thank you so much for your kind words and giving me a sense of optimism

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Your welcome, it's difficult right now for you but think positive, each day is one day nearer to overcoming this hiccup.

Take care.

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I can imagine what a shock it must be. Wishing you all the best and speedy return t full health... take care, hope you get all the support you need xx

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Thank you. Just hoping I have a health to get back to depending on what stage it is.

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So sorry to hear your news I will say a little prayer for you. Good luck .

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Thank you so much non char 😊

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I am so sorry to hear your news and wish you well with the treatment recommended. A friend had the same problem some ten years ago which was fixed with an operation so look on the brighter side.

I do worry about some of these G.Ps who seem to lack diagnostic skills. I try to use a homeopathic doctor (not homeopath) who gives more time when required and has been taught to think.

Best wishes, Tibbly

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Hi sorry to hear this but keep your chin up.

It's one thing ive been checked for as two of my uncles had bowel tumours one when they eventually took him to hospital was size of a football but it was really too late by then for him other has two removed and he's still going along.

hope you have a very "Stern" word with your Quack your not the first to have had that happen was a case in the news while back with a woman that had that.

There are health watches like Voice ability you can contact if GP's are "lax"

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Thank you Oscar. I am keeping positive and hoping for the best.

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I wish you a speedy recovery.

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Thank you

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I wish you a speedy recovery,try and think positive,it really does help.

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I'm so sorry to hear about your diagnosis. I wish you all the best for your future treatments and I hope that you make a speedy recovery and return to good health very soon. Try to take it one day at a time as I'm sure you're feeling very overwhelmed at the moment xx

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Thank you so much.

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Disgrace you had to wait so long to see a specialist. Hope you get on ok with your scans

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Thanks - Fingers crossed the scans provide better piece of news. I should have an appointment in the next 2 weeks.

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Thanks Senga - Can only hope for the best.

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Hi Ray,

While you have that horrible wait for the scans, you could go and see a Reiki Master near to you. Balancing energies in your body may do you a lot of good - and it's also very relaxing, which I imagine would be helpful too after such a shock.

You may also find a meditation app like calm.com a great help too. It can help to calm your mind and relax, and will be very useful during any treatment.

Do lets us know how you are getting on and reach out for support, Ray.

Alison

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Thank you so much Alison. Looks I have a Reiki Master nearby and will also try download the app that you have recommended.

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Hi Ray I am sorry to hear of your plight but rest assured they can do great thing now. A friend was diagnosedwith bowel cancer and only given a 35% survival rate. That was 8 years ago and he is doing well now ( just back of a 2 month cruise! ) at the start he was very ill and the treatment made him lose his hair and about half his weight but now he is firing on all cylinders.

There is light at the end of the tunnel you just have to be willing to look hard for it.

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Thank you so much Angie - These are the sort of stories that make me have a positive outlook on things.

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That's truly dreadful. After so much incompetence you ought to be seen immediately. I'm surprised because usually a cancer diagnosis means everything happens very fast. Can you see a different (better?) GP at your practice and ask for an emerge appointment? Or call the appointments line on the letter and ask for a cancellation slot? I'm truly sorry - you must be devastated- and I hope you can get seen asap.

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Thanks Charlie. It's been very frustrating and am truly on the verge of giving up. After colonoscopy this Monday gone they say I must receive a letter within 2 weeks with a date for CT and MRI scans which should fall in the 2-3 week window.

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Don't give up. There must be specific bowel cancer support groups who can offer more targeted help and advice. I really hope things turn out not to be as bad as they must seem right now.

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I'm so sorry to hear this. Wishing you a very speedy recovery.

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So sorry to hear this. God bless and hope you recover.

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Oh i am so so sorry to hear this, i pray they have caught it in time and treatment will be painless as possible and successful. praying for a speedy recovery.xxx

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Hi ray sorry to hear this I'm sure

You will be in shock

I had same problem I went to my doc for two years continuasly and was told I had iIBS

Until I told them that my sis died of Bowel cancer because they didn't diagnose her

So eventually got sent for colonoscopy

And sure enough I had bowel cancer

I had radiotherapy and chemotherapy

For 6weeks and two months later had the operation

I've been left with a stoma which can't be reversed

But to cut a long story short

The surgeons r brilliant

And I never thought I'd get used to my stoma but I have

It's only been 3 months since my surgery which lasted 12 hrs

Only because they gave me full historectmy just to be safe

But I'm doing great

I can still do ev that I used to

So il pray that everything goes well for you and good luck

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Thanks Tazmum. I have completed treatment with 80% response rate and due for surgery next wednesday (13 Sept). I am told I will have a temporary bag for some few weeks before reversal but of course all can change depending on surgery I guess. Glad to hear your persistence paid off and treatment and surgery went well. Here is wishing you a speedy recovery and many many cancer free years. :)

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My husband is where you were a year ago and is going for an exploratory operation on Thursday morning Not knowing what is going on is awaful The surgeon says it looks like cancer from the scan and cannot say more till He has had a look and done a biopsy So lets hope its treatable How are you going on now ?

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Hi there Katie,

It's been a journey and still on it. After diagnosis i was staged at 2 meaning no spread to lymph nodes or other organs. I had pre-op treatment to shrink the tumour and had surgery in September with a temporary stoma. I am now on post op chemo just as precaution and to mop up any lingering cells. I hope to have stoma reversal towards end of year and hopefully back to normal again. However I must say acceptance, positive attitude and eating healthy seen me to where I am today and in much happier place.

I hope all goes well with your husband, hope it isn't cancer but again if it is it's not a death sentence and can be successfully treated. There are many medical advances happening right now and survival rates for bowel cancer are on the up.

Take care and please reach out if you have any questions.

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