Leaky gas

[alicemarsh]

Has anyone the following IBS symptoms - bowel movements normal mostly, but have unpredicable bad "leaky gas" - by that I mean uncontrollable flatulence with ABSOLUTELY no warning and no feeling - just bad odour from lower bowel.

No pain, and no feeling of bloating as such at all.

I am trying to work out things that help with this particular variant of IBS - I run a small group on email that share ideas.

If anyone has had these exact symptoms since having gastroenteritis like I did years ago - please let me know what has helped you. Thanks. PS I think its a long term upset of the bowel flora (bacteria in the gut) but this is just a guess as doctor's don't know. Haven't managed to cure it yet.

[Olive69]

I dont hav ibs...bt i do leak gas.....im in my teens...cn i contct u?

[alicemarsh in reply to Olive69]

Hi Olive 69 that would be great I have an email address that you can contact me on [e-mail] - I have a couple of contacts that also have this leaky gas syndrome and there are a few ways of reducing it but I have not eliminated it entirely. It is so unpredicable.... Do contact me on the email and we can discuss further if you wish. I am trying to gather ideas of what works and what doesn't to help myself and others. Also am trying a new thing soon to do with the pelvic floor - which may help. I am sometimes at my wits end as its so difficult to explain to others if they don't have it... it would be lovely to hear from you. To share ideas.

If you are worried about emailing me then you can just discuss on here of course. Its just that not everyone on this site has this condition. I leave it up to you.

Things that I have tried - Shreddies carbon filter underwear that is supposed to absorb gas, Yakult to improve bowel flora, platforms for using the loo, tissues that are strongly fragrant that I keep in my pocket.

Might be worth trying these - the next thing I am trying is a Kegel machine to see if this tightens the pelvic muscles and is said to improve this condition of gas leakage. There is one testimony on there that says it helps. Hope this helps you explore some positive suggestions for now.

[Olive69 in reply to alicemarsh]

Thanku fr ur reply.....i jv been goin thru dis fr 3 yrs..im in collg now....i dont hv a yahoo id....r u in fb? Mayb i share abt my condition nd symptoms to u....

[alicemarsh in reply to Olive69]

Hi You dont need a yahoo ID its just a normal email. If you have email you can contact me as normal.

[alicemarsh]

Hi - if you cant send emails then you can find me on fb but it will be difficult as there are many alice marsh's - so if you don't want to mail me I think its might be easier to just contact me on here.

Did you get the information I sent of the things I have tried above - it is worth checking them out on the web. Shreddies underwear, and yakult for the bowel and the scented tissues.

Some people have a condition where they think they smell and this is a psychological condition. That would need a pyschiatrist.

There is also a thing called TMAU which is a condition where the body doesn't break some substances down properly and this causes odour.

Check this out on the internet first. See if you think you may have this - as yet I am undecided if I have this or not? But you could try cutting out some of the foods listed and see if that helps? I know I cannot eat most of these foods. However I also smell of tiny amounts of other foods that I have eaten if they have any strong odour - eg garlic.

I hope some of the info helps you - do put more info if you can of your exact symptoms on here and then we can see if it sounds the same.

It may also help someone else to share who needs to talk about it too.

[alicemarsh]

Sorry meant to leave the link for TMAU - in case this helps you.

Read this (copy and paste the link below) and see if it sounds like what you have :

Trimethylaminuria

nhs.uk/conditions/trimethyl...

[alicemarsh]

ALso look at the video in case this is any help investigating TMAU

Again copy and paste the link below into your browser :

tmau.org.uk/index.php/tmau-...

[KSeszchmen]

Hey. I've only just signed up to this after seeing your post. I also have the same condition / symptoms as you. It started when I was 19; I am now 26. I find that if I eat dry foods without oil such as fish that's fine but foods with sauces seems to trigger it. Have you found anything else since posting this that has helped?

[alicemarsh]

I am trying simethicone now and the things I have said above in the posts- its in windeze Ill let you know if it helps. Yes I cant eat any sauces.

[Help789]

Yes I have and would really like some advice about it too as it's mortifying when at work or out socially. I tried kegel exercises and shreddies but none are really working

[alicemarsh in reply to Help789]

Hi there

The best thing I have found is keeping a diary every day if what I eat and correlation with the smells. That is the only way I have really cut out the problem in the end.

I wear the shreddies as back up. They work well wheh sitting down but not so well wheh walking around I feel. But they are some help.

The same things always give me the smells so bad f you are careful about writing every Hth in down you can eliminate most things that cause a problem if it is the same type as me.

I find the worst things are beans any sauces seafood fish that smells strongly like mackerel or kippers and any meats that are difficult to digest. I only eat a small amount of chicken when I am not working. I eat a lot of fish but only bland fish such as cod or lemon sole and leave the skin usually.

Do try the food diary - things that are harder to digest may take a few days to have an affect but if you keep a diary every week you will see patterns snd should be able to eliminate that food.

If you think you are having to eliminate too many foods then talk to your doctor about seeing a dietician. You need carbs proteins fruits and veggies and minerals in the diet.

Hope that helps snd let me know how I get on.

[Help789 in reply to alicemarsh]

Thank you. I have a limited diet already as I don't eat meat. I eat fish though. Don't think is fish for me but do need to make a proper effort with a food diary. I think eggs, cauliflower and lentils seem to be the worst so far or if I have too much dairy. Think I might ask for another referral to the nutritionist. Has anyone given up sugar? Wondering if that might help

[alicemarsh in reply to Help789]

I could not eat eggs cauliflower or any lentils and beans no I agree with all those. Have you ever been tested for lactose intolerance worth getting tested if not that could cause problems with dairy. The doctor should be able to order a test you need to have dairy stuff as usual before you are tested though or will not show anything up if you see what I mean.

[Help789 in reply to alicemarsh]

OK will check that out. Thanks x