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[Support12]

Look for advice my dad was sent for operations to take part lung away told was cancer but to then find out he didnt have cancer he has TB be not getting sent home till he sees a TB specialist he been put on antibiotic 4 days ago he also live with me and my kids but we still not been told if we need tested just want my dad home

[hottchoc]

Yes it is important you all get tested, and if your dad is active, then he must be confined to another room in the house for two weeks. It’s so sad that doctors never think of TB but always the obvious.

[MsPJ]

Hi I also had surgery for suspected lung cancer but after I was discharged 3 weeks ago I’ve been told based on histology and radiology it was most likely TB. I am recovering really well from keyhole surgery and started TB antibiotics 3 days ago. My husband has been tested and is waiting for his results. My TB team seem nice and supportive so I am optimistic I’ll be cured. Good luck to your family.

[hottchoc in reply to MsPJ]

That’s so awful, are you in the UK?

[MsPJ in reply to hottchoc]

Yes I’m in the UK. I was pleased I have t got cancer so am feeling optimistic but wary about restarting MTX for inflammatory arthritis & wondering if it was actually tubercular arthritis.

[hottchoc in reply to MsPJ]

It always upsets me to hear that doctors always think lung cancer but never TB, especially in this country. You should be asking them questions why they missed - hope you feel better soon

[Hidden in reply to hottchoc]

Hello Hottchoc really upsetting as we all know who have had to scale mount Everest to get to see an Infectious Disease doctor but what do you think of this anomaly which makes the reader suspect that this infectious disease doctor who sent me for another Quantiferon Gold test in March did not believe and criticised my report of a private QF G test 2016 and said detected did not mean positive in his opinion. I had the test he authorised in March 21 which he said was Negative.

I did not believe that test to be correct so went well away from where I live to a private infectious disease doctor who did an identical QF Gold test 4th May 21, which he wrote was Positive. He also wrote that my result was 'to be expected'. He also said the Detected statement on the 2016 private QF Gold blood test meant Positive.

Would any patient trust that local doctor to deliver truthful results on any tests for TB?

[hottchoc in reply to Hidden]

Hi, the thing here is, a positive test does mean you have contracted TB, however there are many many people who have latent TB and not active. So I think that’s what your doctors are saying, positive test but not ACTIVE

[Hidden in reply to hottchoc]

Thaks for the reply.... the Quantiferon Gold test I had which is the best confirmative test that TB microbe has entered the body is well publicised. I understand the Quantiferon test does not confirm active or latent TB.I had a private Quantiferon gold test Jan 2016 that reported Detected.

The infectious diseases doctor who I've seen twice criticised that result, writing that Detected in his opinion was neither positive or negative. he then asked me do I mind having another test. I agreed.' His' report said the test he instigated was Negative,march21. I did not believe his result so I had a private identical test 4 May 21. That test was positive. Not only that but contradicted the doctor' opinion who criticised my 2016 test. In addition he wrote my Positive result was 'to be expected'.

Ironically these two doctors knew each other and are on first name terms.

I have not asked for further and better information yet as per the lab document but this is the right of data protection in the NHS.

It makes one wonder if it is thought upon intuitively is the patients choice of where to be treated within the NHS to bring about impartiality into the equation of a patients care?

Who would have trust in any doctor who by the evidence, suggests manipulation of test results.

Good resistance to the micobacteria TB causes untold problems for those, as I that are on many occasions resistant, but on some occasions need medication to reduce the 'colony' so that then the immune system can 'manage' what is left in the system.

It has been written on this forum - a doctor said 'all he knew about tb is that when it comes back undetected it kills you'

I know from your previous writings you were appalled by the fact that not near enough doctors know anything about TB. That seems very true.

Due to scrutinising my 'paperwork' I would 'trust' the doctor who I consulted privately in May this year, as opposed to the one who seems to have manipulated the negative result in March. It appears that patients of 90 are treated for Lymphoma so why not TB? The only reason a none diagnosis of TB is 'better' for the doctors before this latest infectious disease doctor is to save the doctors before him their reputations.

I take a dim view of that excuse because it causes none treatment same as another person on this forum who had he thought TB arthritis. I understand fully what he said "no diagnosis no treatment."

I am not being facetious but I understand you may write a book explaining the inadequacies of the TB system which I feel is well overdue. That book would cause much stress to the writer so I'll have to forgo that authorship. It does need doing though.