TB: My father was told he had lung cancer copd and... - TB Alert

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Kitkat70 profile image
7 Replies

My father was told he had lung cancer copd and asbestosis. After he died we had him autopsied and it was TB. He wasnt given the correct treatment. As our entire family cared for him, does it mean we could have it?

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Kitkat70 profile image
Kitkat70
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7 Replies
Soul01 profile image
Soul01

KitKat70. so sorry to hear about your father. Do any of you have any symptoms? If so, get tested. If not, you might want to get tested anyway as I think some people can have TB and not have symptoms. Was it pulmonary TB or did they find it elsewhere?

hottchoc profile image
hottchoc

Oh wow, that’s terrible news. I go on all the time about campaigning for TB Awareness, and this is exactly why! Still nobody is checking for TB when then have an ongoing productive cough and antibiotics aren’t working. I am writing a book as we speak about my journey with TB. We just don’t learn from it. We have an epidemic with over 350 dying in the U.K. every year. So why does everyone think it only happens in third world countries? If we are not told about it then we cannot look after ourselves! You need to start asking questions kitkat xx all the best x

in reply tohottchoc

Credit is due to you....... The whole issue should as soon as possible be brought out into the open with maximum publication. No names mentioned but a clever hematologist told me

that TB only exists when it is 'brought in' meaning the infected people who are refugees!

He is totally incorrect on the subject of TB & yet he has been made a Professor. That fact should open all eyes in this country of ours. If that does not make clear the shambles that is TB and the checking of it I do not know what is.

This medical professional has massive status but needs to learn but try telling such people what the facts are....... There are many like him and the fact is that due to the power held

by them it is most difficult to 'pierce the armour' of these professionals......

Another disconcerting issue is the fact that they will all tell lies if they feel a mistake has been made.... They are still closing ranks just like the old days. The truth of tuberculosis must be out there for all to see and ponder on the subject.

That is diabolical. I am in the process of resolving mistakes that I can see has happened to me since 1978. Later on in 1990 I had a supra clavicular (collar bone) lymph node swell quite out of the blue and was told that I had lymphoma! I was super fit at the time but was under quite a bit of stress with the tax man right on my back! So the lesson there is do not get stressed because stress can cause illness ( the immune system goes downhill in many a patient)! A phenomena to be avoided.

As I have already said in my previous posts I have at last been interviewed by a nice lady TB specialist but although she is very pleasant and the ultimate professional I sense that they are still 'at it' regarding not being completely straight forward as the NHS criteria states and that is for all doctors to be 'candid'! Why on earth does the medical profession not state that they have ordered doctors to 'tell the truth' instead of mumbo jumbo that is not easily deciphered?

I now have quite a bit of 'evidence' that strongly suggests even to a layman that mistakes have been made & yet as usual as per donkey's years ago all and sundry knew full well that doctors 'close ranks' and will do all they can to protect the brothers and sisters in the same game......The club they are in is far more 'close knit' than the Masons! In my opinion, nothing has changed. We all make mistakes and that includes doctors.

For sure, some doctors need to wise up in a few areas of diagnostics and a massive improvement for starters would be to bring in immediate legislation that they MUST ALWAYS REFER TO PREVIOUS MEDICAL HISTORY WHICH AT THE PRESENT THE MAJORITY DO NOT REFER TO MEDICAL HISTORY........ It is laughable that the medical profession state that 80% success in a diagnosis relies on referral to the patients medical history.

HelenC profile image
HelenCPartnerTB Alert

Dear Kitkat70,

I am so sorry that your Dad's TB was not diagnosed until after his death, and that you now have reason to fear for your own health.

It is possible that your Father developed TB because he was in poor health from other lung conditions. TB is an opportunistic infection that seeks its chance to take hold when someone's immune system is under pressure. So though you may be at risk, if you are in good general health please be reassured that your immune system is usually able to ward off TB bacteria.

You may want to be tested to see if you have the bacteria in your body in a latent state. Latent TB can be treated before it can cause harm - or if you chose not to be treated or are over the recommended age limit, knowing you have latent TB would help you act quickly if you did develop symptoms.

Otherwise, it is important to look out for the common symptoms of TB: cough, fever, nightsweats, weight loss, loss of appetite and tiredness. If you have any of these symptoms and they do not resolve after 3 weeks then you should talk to a doctor as soon as possible.

Best wishes,

Helen

Kitkat70 profile image
Kitkat70 in reply toHelenC

Thanks Helen, now the professional are calling something different for death. Mycobacteriumxenopi. X

There is supposed to be a climate of candidacy within the medical profession but through experience I have proof that is not happening and never has been the situation. The medical profession still has the idea and purports the idea that doctors do not make mistakes and if they do they will close ranks and smooth the problem over......

The fact is that those who are doing it think all us lot are as thick as barrow loads of tripe. There are several web site that broach the subject including of course what causes a patient to sue???? Those who have 'gone' cannot do anything whatsoever to have recompense in that matter! When a mistake is made how on earth can anything be learnt from that mistake if it is brushed firmly under the carpet? There are many many cleaver and caring medical professionals who do not make mistakes and many it is unfortunate to say who do make mistakes. The body is complex and one glaring item that needs immediate redress is that of referring to ancient medical history which at the moment and in history many doctors and it might truthfully be said the majority of health professionals do not carry out that important detail which in certain circumstances may be crucial to the patients health.........

It is astounding that I was informed that GP's found it difficult to access paper notes. I found that totally unacceptable and in my view patent rubbish. I feel strongly that it should be in the legislation and indelible in a doctors mind to consult all patients previous medical history and especially so if the diagnosis is 'difficult'.

Has a layman go to advise that in many a 'difficult' case the ancient history may well be a pointer to a potentially serious problem ?

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