Search
Search
About
Log in
Join
Experiences with
Valcyte
Posts
Communities
12 public posts
Filter results
Recurrent CMV Update
So, the pattern has been 2 weeks off
Valcyte
with CMV at target. Third week off
Valcyte
CMV increases but doesn’t meet the threshold to restart
Valcyte
. CMV viral load doubles every 1.5 days like clockwork. Fourth week off
Valcyte
CMV exceeds threshold to start
Valcyte
.
So, the pattern has been 2 weeks off
Valcyte
with CMV at target. Third week off
Valcyte
CMV increases but doesn’t meet the threshold to restart
Valcyte
. CMV viral load doubles every 1.5 days like clockwork. Fourth week off
Valcyte
CMV exceeds threshold to start
Valcyte
.
Jayhawker
in
Kidney Transplant
6 months ago
low WBC Count & CMV Update
I was placed on
Valcyte
1800mg daily. Seven weeks later they discontinued
Valcyte
. My CMV had been at target <35 for two weeks at that point. It remained at target without medication for only 2 weeks. Then the CMV was back. I was put back on
Valcyte
1800mg daily and am still on it today.
I was placed on
Valcyte
1800mg daily. Seven weeks later they discontinued
Valcyte
. My CMV had been at target <35 for two weeks at that point. It remained at target without medication for only 2 weeks. Then the CMV was back. I was put back on
Valcyte
1800mg daily and am still on it today.
Jayhawker
in
Kidney Transplant
8 months ago
CMV viral load already elevated again
After 5 weeks of treatment (
Valcyte
1800mg daily) my viral liad was at <35. It stayed there for only 4 weeks. Than it elevated. Over two weeks it elevated to 501. They restarted
Valcyte
So, have any of you experienced anything like this with CMV? Was your transplant team able to get it in check?
After 5 weeks of treatment (
Valcyte
1800mg daily) my viral liad was at <35. It stayed there for only 4 weeks. Than it elevated. Over two weeks it elevated to 501. They restarted
Valcyte
So, have any of you experienced anything like this with CMV? Was your transplant team able to get it in check?
Jayhawker
in
Kidney Transplant
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Appt with infectious disease specialist today: New CMV game plan
She also said that some patients experience “concerning” side effects to
Valcyte
like I am; but there are other medication options. She walked me through those. She then talked about the treatment plan we’ll follow. 1. Discontinue
Valcyte
immediately. Suspend Myfortic for 4-6 weeks.
She also said that some patients experience “concerning” side effects to
Valcyte
like I am; but there are other medication options. She walked me through those. She then talked about the treatment plan we’ll follow. 1. Discontinue
Valcyte
immediately. Suspend Myfortic for 4-6 weeks.
Jayhawker
in
Kidney Transplant
8 months ago
CMV Update
Treatment plan for current CMV flare-up: Temporarily discontinue Myfortic Increase Prograf by .5 mg No antiviral medication (
Valcyte
) How has it gone?
Treatment plan for current CMV flare-up: Temporarily discontinue Myfortic Increase Prograf by .5 mg No antiviral medication (
Valcyte
) How has it gone?
Jayhawker
in
Kidney Transplant
6 months ago
6 month transplant anniversary!!! Whoo hoo
Inspite of my low WBC count and pulling of bactrim 7 months early as well as
valcyte
1 month early, I’ve had no infections. So I’m staying infection-free with mask wearing and lots of hand washing, etc. I have an appointment at the transplant center tomorrow.
Inspite of my low WBC count and pulling of bactrim 7 months early as well as
valcyte
1 month early, I’ve had no infections. So I’m staying infection-free with mask wearing and lots of hand washing, etc. I have an appointment at the transplant center tomorrow.
Jayhawker
in
Kidney Transplant
11 months ago
Sirolimus - mouth sores!
I was prescribed
valcyte
and magic mouth wash neither of which seem to be very helpful. Anyone else out there experienced this? What did you do? I’m not crazy about switching meds again (I can no longer take tacrolimus). Any thoughts/suggestions?
I was prescribed
valcyte
and magic mouth wash neither of which seem to be very helpful. Anyone else out there experienced this? What did you do? I’m not crazy about switching meds again (I can no longer take tacrolimus). Any thoughts/suggestions?
Denise-80
in
Kidney Transplant
2 years ago
Kidney Teansplant and CMV
He’s on
Valcyte
.
He’s on
Valcyte
.
Sister9555
in
Kidney Transplant
2 years ago
Elevated creatinine — six months post transplant
They removed the anti viral (
valcyte
) and everything returned to normal. However, they put me on Dapsone (e.g. anti-infective) and removed it after two weeks due to, I believe, dropping hemoglobin. Now that's getting better but my creatine rose from 1.21 to 1.35.
They removed the anti viral (
valcyte
) and everything returned to normal. However, they put me on Dapsone (e.g. anti-infective) and removed it after two weeks due to, I believe, dropping hemoglobin. Now that's getting better but my creatine rose from 1.21 to 1.35.
Hidden
in
Kidney Transplant
3 years ago
Neutropenia - Again!
Resolved over the next two months with a reduction of Myfortic to 180mg twice a day (with higher dose of Prograf), removal of
Valcyte
, and one injection of Neupogen. Once things were stable we started to increase the Myfortic. Mid-April we increased it back to standard dose - 540mg twce a day.
Resolved over the next two months with a reduction of Myfortic to 180mg twice a day (with higher dose of Prograf), removal of
Valcyte
, and one injection of Neupogen. Once things were stable we started to increase the Myfortic. Mid-April we increased it back to standard dose - 540mg twce a day.
danielleblock
in
Kidney Transplant
4 years ago
Neutropenia?
Current Meds - Prograf: 3mg in AM, 3mg in PM - Myfortic: 180mg x 2 daily (reduced from 540x2 daily when WBCs started to drop) - Bactrim ( switched to Mepron when WBCs started to drop, but did not tolerate GI side effects) -
Valcyte
Had blood drawn this morning and clinic called this evening to tell
Current Meds - Prograf: 3mg in AM, 3mg in PM - Myfortic: 180mg x 2 daily (reduced from 540x2 daily when WBCs started to drop) - Bactrim ( switched to Mepron when WBCs started to drop, but did not tolerate GI side effects) -
Valcyte
Had blood drawn this morning and clinic called this evening to tell
danielleblock
in
Kidney Transplant
5 years ago
Cmv
However this past week they discovered that I had been tested positive fot the CMV virus and immediately put on the
Valcyte
Drug. Can anyone help me with your experience with this?
However this past week they discovered that I had been tested positive fot the CMV virus and immediately put on the
Valcyte
Drug. Can anyone help me with your experience with this?
kidneytransplan
in
Kidney Transplant
5 years ago
Filter results
Clear filters
Posted in
All communities
Kidney Transplant
12 results
Sort by
Most Relevant
Newest